Where to Start-Missouri

MISSOURI EARLY INTERVENTION PROGRAM

First Steps offers coordinated services and assistance to young children with special needs and their families. First Steps is designed for children, birth to age 3, who have delayed development or diagnosed conditions that are associated with developmental disabilities.
http://www.eikids.com/mo/matrix/

http://dese.mo.gov/se/fs/ParentInfo.html

EASTER SEALS:

Easter Seals provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

Easter Seals Missouri
13975 Manchester Road
Manchester, MO 63011
Phone: 800-664-5025
Phone 2: 636-227-6030
http://www.easterseals.com/site/PageServer

MEDICAID WAIVER PROGRAM:

MO Children w/DD (MOCDD) (40185.R03.00)
Provides day hab, in home respite, personal assistant, behavior therapy, community specialist, crisis intervention, environmental accessibility adaptations, out of home respite, specialized medical equipment & supplies, support broker, & transportation for children w/MR/DD 0-17 yrs

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/MO40185R0300.zip

The Missouri Department of Mental Health's Division of Developmental Disabilities (Division of DD) administers five Medicaid Home and Community Based (HCB) Waiver programs for individuals with mental retardation or other developmental disabilities. The five waivers are the Comprehensive Waiver; Missouri Children with Developmental Disabilities Waiver (MOCDD or Sarah Jian Lopez Waiver; Community Support Waiver; Partnership for Hope; and Autism Waiver.

http://dmh.mo.gov/dd/progs/waiver/

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

MISSOURI GENETICS

1101 Hospital Drive. For more information please call 573-884-6735 and to schedule an appointment please call 573-882-6921.

Geneticists:
Stephen Braddock, M.D.
Judith Miles, M.D., Ph.D

Genetic Counselors:
Janda Buchholz, M.S.
Jennifer Kussmann, M.S
Dawn Peck, M.S.

ALBERT PUJOLS WELLNESS CENTER FOR ADULTS WITH DOWN SYNDROME

121 St. Luke's Center Drive, Chesterfield, MO 63017
314-576-2300
314-576-2300
Email: ads.wellnesscenter@stlukes-stl.com
Website: www.stlukes-stl.com



DS ASSOCIATION OF GREATER ST. LOUIS

The mission of the Down Syndrome Association of Greater St. Louis is to benefit the lives of people with Down syndrome and their families through individual and family support, education, public awareness and advocacy.
8420 Delmar Boulevard, Suite 200, St. Louis, MO 63124
314-961-2504
Email: info@dsagsl.org
Email 2: execdirector@dsagsl.org
Website: www.dsagsl.org




DOWN SYNDROME GROUP OF THE OZARKS

The Down Syndrome Group of the Ozarks mission is to build a network of support for individuals with Down syndrome and those who love and serve them in Southwest Missouri.

This will be achieved by providing support and education on early intervention services, promoting inclusive education, highlighting appropriate medical services, encouraging quality employment opportunities and advocating for community awareness and acceptance.


P.O. Box 1598, Springfield, MO 65801
417-885-9905
888-655-5173
Email: info@ozarksdsg.org
Website: www.ozarksdsg.org




HEARTLAND DOWN SYNDROME ASSOCIATION

Cape Girardeau, MO 63701
Email: heartlanddsa@msn.com




THE ARC OF MISSOURI

The Arc of the United States Missouri Chapter is a grassroots organization working to support and empower persons with intellectual and developmental disabilities and their families through advocacy and education, expanding individual choices and promoting community inclusion.

7400-C N. Oak Trfy
Gladstone, Missouri 64118-1747
(816) 436-3009
terryblanks@kc.rr.com

DOWN SYNDROME GUILD OF GREATER KANSAS CITY

The Down Syndrome Guild of Greater Kansas City is a 501 c 3 nonprofit organization whose mission is to provide support and resources for individuals with Down syndrome and their families. DSG seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding people with Down syndrome.

http://www.kcdsg.org/