Where to Start-Michigan

MICHIGAN EARLY INTERVENTION PROGRAM

Children's Special Health Care Services (CSHCS) is a program within the Michigan Department of Community Health. It is for children with special health care needs and their families. The program can help with referral and financial assistance for specialty services and support for primary caretakers. For more information call the CSHCS Family Phone Line at 1-800-359-3722 or visit their webpage. (CSHCS)

http://www.michigan.gov/mdch/0,4612,7-132-2942_4911_21429-59375--,00.html

EASTER SEALS:

Easter Seals Michigan serves and supports people with disabilities or special needs and their families so they can successfully live, learn, work and play in their communities.

(248) 475-6400 (voice)
800-75-SEALS (toll-free)
2399 E. Walton Blvd.
Auburn Hills, MI 48326
http://mi.easterseals.com

 

MEDICAID WAIVER PROGRAM:

MI Waiver for Children w/SED (0438.R01.00)
Provides respite, child therapeutic foster care, community living supports, community transition, family home care training, family support and training, therapeutic activities, therapeutic overnight camping, wraparound for individuals w/mental illness SED ages 0-19

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/MI0438R0100.zip

MI Children's Waiver Program (4119.R05.00)
Provides respite, enhanced transportation, fiscal intermediary, community living supports, environmental accessibility adaptation s and specialized medical equipment and supplies, home care training-family, home care training-n on-family, specialty service for individuals w/autism, MR, DD ages 0-17

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/MI0438R0100.zip

http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Waivers/Waivers.html

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

GENETICS CENTERS OF MICHIGAN

genetics@michigan.gov

Phone: (866) 852-1247 (toll-free)
(517) 335-8887www.MIGeneticsConnection.org


CAPITAL AREA DOWN SYNDROME ASSOCIATION

CADSA was created by parents of children with Down syndrome as a support system. Our organization offers emotional support to people with Ds and their families, and provides assistance and guidance in several areas.

Website: http://cadsa.tripod.com/

Email: lansingdownsyndrome@yahoo.com

Phone: (517) 575-4308

Address: P.O. Box 25112

Lansing, MI 48909

DOWN SYNDROME ASSOCIATION OF WEST MICHIGAN

The mission of the Down Syndrome Association is to provide support, resources and advocacy with the aim of increasing awareness and opportunities for individuals with Down syndrome, their families and caregivers.

Website: http://www.dsawm.org

Contact: Charlene Hill, President

Email: dsawm@iserv.net

Phone: (616) 957-4934

Fax: (616) 974-9612

Address: PO Box 888164

Grand Rapids, MI 49588

DOWN SYNDROME GUILD OF SOUTHEAST MI

The Down Syndrome Guild of Southeast Michigan (DSG) is a non-profit parent led, community based support network designed to strengthen, empower and inform families and communities about people with Down syndrome.

Website: http://www.dsgsemi.org/

FAMILIES EXPLORING DOWN SYNDROME

Families Exploring Down Syndrome (FEDS) wants you to see how people with Down syndrome and their families "shine on" and how we can all help make this a better world, not only for them, but for everyone. Take a moment to explore our site. It's full of Down syndrome-related information, resources, and of course, stars.

Website: http://www.familiesexploringdownsyndrome.org/

Email: FEDSyndrome@aol.com

Address: P.O. Box 1191

Sterling Heights, MI 48311

CENTRAL MICHIGAN DOWN SYNDROME SOCIETY

2020 South Mission, #152, Mount Pleasant, MI 48858
Telephone: 989-621-5697
Email: elizabethsmom@charter.net

DOWN SYNDROME SUPPORT TEAM

The Down Syndrome Support Team of Washtenaw County, MI is a group of parents with their children that meet monthly, share experiences, ideas, work together to offer our children great opportunities, build friendships, and so much more.

If you have a child with Down Syndrome and would like to talk to someone or come and meet other parents and children in your area, please contact us. We would love to hear from you.

Mailing Address: 9227 Fieldstone Lane, Saline, MI 48176
Telephone: 734-944-1595
Email: eluther@downsyndromesupportteam.com
Website: www.downsyndromesupportteam.com

F.R.I.E.N.D.S.

23875 Rockingham Street, Southfield, MI 48033
Telephone: 248-354-1427
Email: friends021@netzero.com

ST. CLAIR COUNTRY DS SUPPORT GROUP

2509 Woodstock Drive, Port Huron, MI 48060
Telephone: 810-367-2045
Email: kellydinardo@comcast.net


SPECIAL PARENTS INITIATIVE FOR DS EDUCATION AND RESOURCES (S.P.I.D.E.R.)

 

SPIDER is a group of concerned family and friends that have been brought together by one common denominator, all of us are blessed with having a child with Down Syndrome in our lives. Most of us were not prepared for the sudden and often drastic changes in our lives that occur, when a "Special Needs Child," comes into our life. One universal concern has been the lack of adequate information and services that are immediately available to assist our families. There are many questions in the first few hours and weeks of our child's life that need to be addressed, such as medical, physiological and emotional. We are here to answer these questions and to make available any resources to our families. This will insure that our children have the greatest advantages from the beginning and throughout their lives.
http://www.lapeerspider.org/

THE ARC OF MICHIGAN

The mission of The Arc Michigan is to ensure that people with Developmental Disabilities are valued in order that they and their families can participate fully in and contribute to their community.

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1325 South Washington Ave. Lansing, Michigan 48910-1652

Phone: (800) 292-7851 or (517) 487-5426 Fax: (517) 487-0303 http://www.arcmi.org/