Wednesday, April 18, 2012

Where to Start-Iowa


Early ACCESS is Iowa’s system of early intervention services for infants and toddlers with or at risk for developmental delays. With our dedicated staff of compassionate professionals, Early ACCESS Iowa can connect you to local children’s providers within the Early ACCESS system.

1-888-IAKIDS1 (1-888-425-4371

Easter Seals mission is to provide exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities.

You can also reach Easter Seals at:
515-289-1933 (voice)
515-289-4069 (tty)
515-289-1281 (fax)

Or, via regular mail at:
P.O. Box 4002
Des Moines, IA 50333-4002 


The Iowa Home & Community Based Services (HCBS) waivers are Medicaid Programs from the federal government which have rules set aside or “waived”. This gives you more choices about how and where you receive services. It is for people with disabilities and older Iowans who need services.

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.
Please check with your state office to see if TEFRA is offered in your state.


Many diseases and disorders are caused by a person’s genetic makeup. These include abnormalities in genes that occur randomly or because of environmental exposures. Other genetic factors “run in the family” and are inherited at birth from one or both parents.

The Division of Medical Genetics, based in the University of Iowa Department of Pediatrics and UI Children’s Hospital, is a comprehensive statewide resource for families and health care professionals.

Iowa City, Iowa

UI Children's Hospitals Pediatric Specialty Clinics
200 Hawkins Drive, Colloton Pavilion
Iowa City, Iowa 52242

Monday through Friday
8 am-5 pm


  • Appointment: 319-356-2229
  • Emergency: 319-356-1616
  • Toll Free: 888-573-KIDS (5437)

Ames, Iowa

McFarland Clinic
1215 Duff Avenue, 2nd Floor
Ames, Iowa
Phone: 877-891-5350

Bettendorf, Iowa

Lincoln Healthcare
865 Lincoln Road
Bettendorf, Iowa 52722
Phone:: 877-891-5350

Dubuque, Iowa

Mercy Health Center
250 Mercy Drive
Dubuque, Iowa 52001
Phone: 877-891-5350

Fort Dodge, Iowa

Physician's Office Building West (behind Trinity Regional Hospital)
804 Kenyon Road, Suite L
Fort Dodge, Iowa 50501
Phone: 877-891-5350

Mason City, Iowa

Mohawk Square
22 Georgia Avenue, Suite 310
Mason City, Iowa 50401
Phone: 877-891-5350

Pleasant Hill, Iowa

Mercy East Pediatric Clinic
5900 East University Avenue, Suite 300
Pleasant Hill, Iowa 5032
Phone: 877-891-5350

Waterloo, Iowa

Covenant Medical Center
3421 West 9th Street, Suite G4400
Waterloo, Iowa 50702
Phone: 877-891-5350


The Arc believes that all people with intellectual and related developmental disabilities have strengths, abilities and inherent value; are equal before the law; and must be treated with dignity and respect. The Arc represents, supports and acts on behalf of individuals and their families regardless of level of disability or membership in The Arc. The Arc believes in self-determination by empowering people with the supports needed to make informed decisions and choices.

3821 71st Street Suite A
Urbandale, IA 50322
Ph: 515-210-6686


Our goal is to provide education, support and advocacy to those individuals, their friends, families, and professionals in the Iowa City and Cedar Rapids area that are blessed by Down syndrome. We hope that through our efforts, we can enhance the quality of life for all individuals with Down syndrome.

Hawkeye Area Down Syndrome Association, Inc
162 Collins Road, #328
Cedar Rapids, IA 52402
Phone: (319) 775-5146


They invite you to join families and friends of persons with Down Syndrome in the community.


The Northwest Iowa Down Syndrome Society is an organization dedicated to the education and support of people in Northwest Iowa touched by Down Syndrome and other developmental disabilities. NW Iowa Down Syndrome Society started in the spring of 2006 as a group of families who have the common bond of a child with Down Syndrome. They are affiliated with the National Down Syndrome Society and National Down Syndrome Congress, and are guided by volunteer members who serve as our officers. We also receive support from the staff at Prairie Lakes Area Education Agency. Their goal is to support families through personal contact and networking opportunities, educational programs, meetings, and a future e-mail based newsletter.

For further information on our organization or if you have any questions, please contact Scott Hallgren, President of NW Iowa Down Syndrome Society, at 712-580-6671 or by e-mail at


For the Quad Cities Area covering Moline, ... including Davenport and Bettendorf in Iowa.

Up With Down is a non-profit support and advocacy group for individuals with Downsyndrome and their families. We are based in Des Moines and serve more than 250 families in central Iowa.


Designer Genes' mission is to provide information, resources, advocacy and support to individuals with Down syndrome, their families and their communities. The steps listed in our mission lead us as we strive to reach our vision of a community where all individuals with Down syndrome have opportunities and resources to live independently and to fully participate in all aspects of their communities.

2491 Sable Ave
Readlyn, IA 50668      

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