3 of 21: Where to Start-California

CALIFORNIA EARLY INTERVENTION PROGRAM

Every state has an early intervention program serving eligible families with children from birth to their third birthday. In California this program is called Early Start. California also has another program, Prevention Resource and Referral Services (PRRS), for some families whose children are not eligible for Early Start, but do meet the PRRS referral criteria. You will find more information about both these programs below, including how to make referrals. http://www.php.com/services/early-intervention-infants-toddlers-0-3

PARENTS HELPING PARENTS

Sobrato Center For Nonprofits-San Jose
1400 Parkmoor Avenue Suite 100
San Jose, CA 95126
Phone number (408) 727-5775
Toll Free in CA (855) 727-5775
Fax Numbers: General (408) 286-1116, Education Dept (408) 286-1117

THE ARC COLANO-SOLANO P0ARENTS UNITED FOR DOWN SYNDROME

Vallejo, CA
(707)552-2935
email: arcgforcier@email.com
http://www.thearcsolano.org/

PREVENTION RESOURCES & REFERRAL SERVICES (PRRS)

http://www.warmlinefrc.org/prevention-resource-and-referral-services-prrs.html
General Email: warmline@warmlinefrc.org
Sacramento (main office)

EASTER SEALS:

2025 Hurley Way, Suite 100
916-922-9276 / 800-660-7995
(916-922-1490 Español)

Placer
6960 Destiny Dr., Suite 106
Rocklin, CA 95677
916-632-2100
(916-922-1490 Español)

Yolo

(Inside Socially Speaking)
907 3rd Street
Davis, CA 95616
530-759-1127
(916-922-1490 Español)

They provide exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

http://www.easterseals.com/site/PageNavigator/ntlc10_mffc_homepage

http://www.easterseals.com/MTFFC_state/California_MTFFC_profile.pdf

Easter Seals Northern California
http://noca.easterseals.com/site/PageServer?pagename=CANO_homepage

415-382-7450 (voice)
707-584-1889 (tty)
415-382-6052 (fax)
800-234-7325 (toll-free)

20 Pimentel Court, Suite #A
Novato, CA 94949

Easter Seals Southern California
http://southerncal.easterseals.com/site/PageServer?pagename=CALA_homepage

1570 E. 17th Street
Santa Ana, CA 92705Phone: 714-834-1111
Fax: 714-834-1128

MEDICAID WAIVER PROGRAM:

Medi-Cal waiver services are geared toward specific populations and targeted groups based on need. For disabled individuals requiring Home and Community-Based Services, there may be services available for such target populations as the elderly, developmentally disabled, or Medi-Cal beneficiaries with mid- to late- stage AIDS, or who require assisted living.

http://www.dhcs.ca.gov/services/medi-cal/Pages/AccessMedi-calWaivers.aspx

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

GENETICS/BIOCHEMICAL CLINIC

Comprehensive services, including diagnostic evaluation, complete nutritional assessment, long-term management, recommendations for treatment and genetic counseling of children and adults with suspected or diagnosed inborn errors of metabolism.

http://www.lpch.org/clinicalSpecialtiesServices/ClinicalSpecialties/Genetics/metabolicBiochemicalGeneticsClinic.html

GENETIC MEDICINE CENTRAL CALIFORNIA:

CLINIC ADDRESS (please use office phone numbers above)
2900 Fresno Street, suite 101 (Francyn Garden complex, across street from hospital)
Fresno, Ca. 93721
tel: (559) 227-4472; fax: (559) 227- 4217

CALIFORNIA DEPARTMENT OF HEALTH-GENETICS

http://www.cdph.ca.gov/programs/gdsp/pages/default.aspx

DOWN SYNDROME ASSOCIATION OF LOS ANGELES

16461 Sherman Way, Suite 180
Van Nuys, CA 91406
818-786-0001 voice
818-786-0004 fax
email: info@dsala.org

http://www.dsala.org/

FRESNO AREA DOWN SYNDROME SOCIETY

Fresno, CA
(559)228-0411
Email: execdir@fadss.net

DOWN SYNDROME ASSOCIATION OF SAN DIAGO

Their mission is to enhance the quality of life for people with Down syndrome and their families through education, social and support programs.

9245 Sky Park Court Suite 130
San Diego, CA 92123
Phone: 619.594.7389
Fax: 858.268.4275
Email: dsasd@projects.sdsu.edu
http://www.dsasdonline.org/

DOWN SYNDROME ASSOCIATION OF CENTRAL CALIFORNIA

(559)228-0411

http://www.dsacc.org/

DOWN SYNDROME ASSOCIATION OF ORANGE COUNTY

151 Kalmus Drive, Suite M-5

Costa Mesa, CA 92626

Phone: 714.540.5794

Fax: 714.540.5872

http://www.dsaoc.org/

DOWN SYNDROME FOUNDATION OF ORANGE COUNTY

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info@dsfoc.org
By Phone
(949)757-1177

By Fax
(949)757-1877

http://dsfoc.org/

By Mail
Down Syndrome Foundation
1451 Quail Street, Suite 110
Newport Beach, CA 92660

Office hours subject to change. Please call or email before stopping by to make sure someone is there to greet you.

DOWN SYNDROME ASSOCIATION OF RIVERSIDE COUNTY WEST

Down Syndrome Association of Riverside County West, a non-profit organization, was established in 2007 by families who recognized a need for support and resources in their community. The DSARCW serves children and adults with Down Syndrome and their families as a place to receive information and support. The DSARCW is affiliated with the National Down Syndrome Society and the National Down Syndrome Congress.

DSARCW
PMB 118, 387 Magnolia Ave suite 103
Corona, Ca 92879
(951) 314-3937
Info@DSARCW.org

Lindsey Ferrell - Founder and President
email Lindsey@DSARCW.org
phone (951) 314-3937

Maryann Kwiat - Secretary
email Maryann@DSARCW.org
phone (951) 898-6478

Mary Williams - Treasurer
email smewilliams@ca.rr.com
phone (951) 808-9845

http://www.dsarcw.org/

DOWN SYNDROME CONNECTION OF THE BAY AREA

The Down Syndrome Connection of the Bay Area consists of a group of caring individuals, educators, therapists and involved community members whose passion and commitment is to serve families who have members born with Down syndrome.

Down Syndrome Connection of the Bay Area
101-J Town and Country Drive
Danville, CA 94526

Phone: 925-362-8660
Fax: 925-362-8663

General Inquires: down_syndrome@sbcglobal.net
Webmaster: webmaster@dsconnection.org

http://www.dsconnection.org/

DOWN SYNDROME ASSOCIATION OF HEMET

Adele Cox President

951-852-1054 or dsahemet@ymail.com
Rachelle Amundson Secretary951-375-6112 or ramundson99@yahoo.com

http://www.dsaoh.org/

B.U.D.S. OF THE REDWOODS

Building Up Down Syndrome (BUDS) of the Redwoods welcomes you! We are an affiliate group of the National Down Syndrome Society. This site is for residents in and around the area who are living with the effects of Down syndrome in their lives, or anyone interested in support or information regarding Down syndrome. They will list opportunities available for you here at California's North Coast, as well as afford you the opportunity to communicate with others in the area about Down syndrome. They look forward to hearing from you!

5278 Northridge Rd

Eureka, CA 95503

budsoftheredwoods@suddenlink.net

EXCEPTIONAL PARENTS UNLIMITED

EPU's mission is to strengthen and empower children and families facing extraordinary medical, developmental, and parenting challenges.

Fresno- Exceptional Parents Unlimited
4440 N. First Street
Fresno, CA 93726
Phone: 559/229-2000
FAX: 559/229-2956
TTY: 559/225-6059

http://www.exceptionalparents.org/

LIFE IMPRESSIONS PLAYGROUP (AGE 0-12)

Moreno Valley

Contact Lana (951)247-9556

email lanamaycards@aol.com

UNO MAS!

This site exists to celebrate the uniqueness of people with Down syndrome, and to offer support to new and expectant parents. Our goal is to help all families to share experience, advice and support during both joyous and difficult issues.

http://www.unomas21.com/

CENTRAL COAST DOWN SYNDROME ASSOCIATION

(805)710-2138

email: crowefamily6@gmail.com

CLUB 21 LEARNING AND RESOURCE CENTER

Club 21 Learning and Resource Center is a non-profit 501(c)(3) organization whose mission is to support individuals with Down syndrome, their families, and communities so that those individuals may reach their potential and become fully included members of society.

(626) 844-1821539 North Lake Avenue
Pasadena, California 91101info@clubtwentyone.org
http://www.clubtwentyone.org/

NATIONAL DOWN SYNDROME COALITION

National Down Syndrome Coalition's mission is simply to demonstrate to society the positive impacts of Down syndrome with various forms of media, parent support groups, parent counseling, provision of resources, community outreach, and with the education and training of parents and professionals. Their vision is to see a changed society that is educated, aware and appreciates the positive differences that people with Down syndrome can bring. They envision that the inclusion of all people with Down syndrome would occur equally within every aspect of daily life from classrooms, to sports, to driving, to jobs, to marriage. They hope that you will develop a heart for our vision and want to join us in our mission to further the field for Down syndrome.

heather@ndscoalition.org

(916) 532-4773 Main/Cell
(916) 663-1151 Fax

P.O. Box 725
Roseville, CA 95661

http://ndscoalition.org/

DOWN SYNDROME INFORMATION ALLIANCE

DSIA has over 20 trained Parent Mentors to support families as they get a new diagnosis of Down syndrome for their newly born or expected child. New parents often have many concerns, ranging from what the future holds to what their child's immediate needs are. Parent Mentors reach out and provide support whenever and wherever needed, including at the hospital or later at the family's home. Parent Mentors receive specialized training in daylong workshops, and DSIA staff and volunteers coordinate with local hospitals, agencies, and families to ensure all families who want support receive it! Also, DSIA provides each new family our Down Comforter Package containing a parent guide and other useful information and resources. Call the 24-hour support line at 916-842-7175 or email: support@downsyndromeinfo.org to get the support of a Parent Mentor.

http://www.downsyndromeinfo.org/

DS ACTION

DS Action consist of parents, grandparents, doctors, educators, registered nurses, social workers and other business professionals interested in improving the quality of life of all people with Down syndrome. DS Action holds monthly meetings in San Diego to identify the unmet needs of people with Down syndrome and to find creative solutions to meeting those needs. As an example, DS Action determined that many children with Down syndrome do not receive the same level of recommended medical and developmental care, and that parents often find it difficult to get referrals to a variety of available intervention services. To meet this need, DS Action worked to establish a Down Syndrome Center, where all children with Down syndrome would have an equal opportunity of receiving recommended evaluations, referrals and intervention services. Working with Rady Children”s Hospital – San Diego, DS Action has made this idea a reality.
The Down Syndrome Center is a much needed resource to the entire region of Southern California as well as neighboring jurisdictions including Mexico. DS Action is affiliated with the National Down Syndrome Society(NDSS) and National Down Syndrome Congress(NDSC).

(619) 694-4615
PO Box 23453 San Diego, CA 92193
http://www.dsaction.com/

SPECIAL PARENTS INFORMATION NETWORK (SPIN)

SPIN is a non-profit parent-to-parent support and information network serving parents, guardians and families in Santa Cruz and San Benito Counties who have a child or children with special needs of any age. SPIN is a Family Empowerment Center on Disabilities.

Mailing Address:P.O. Box 2367
Santa Cruz, CA 95063
SPIN has three locations to assist you:
Click on the maps for enlargements and directions.
http://www.spinsc.org/

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South Santa Cruz County 294 Green Valley Rd., Ste. 313 Watsonville, CA 95076 Phone: (831) 722-2800 Fax: (831) 722-2580 Cece Pinheiro Executive Director cpinheiro@spinsc.org Elizabeth Chavez (habla Español) Parent Support and Training Coordinator echavez@spinsc.org Jorge J. Bru Bilingual Mentor Parent Program Coordinator jbru@spinsc.org

North Santa Cruz County 740 Front St., Suite 175 Santa Cruz, CA 95060 Phone: (831) 423-7713 Sonia Plageman Parent Support and Training Coordinator splageman@spinsc.org Nancy Winans Mentor Parent Program Coordinator nwinans@spinsc.org

San Benito County New Office in San Benito County 321 San Felipe Rd., Suite 5, Hollister, CA 95023 Mailing Address: PO Box 2367 Santa Cruz, CA 95063 Phone: (831) 722-2800 Ricardo Cornejo Parent Support and Training Coordinator rcornejo@spinsc.org

BRIGHTERSIDE OF DOWN SYNDROME OF SAN JOAQUIN COUNTY

Our mission is to enhance the quality of life for people with Down syndrome and their families. We promote awareness, understanding and acceptance of Down syndrome in San Joaquin County through educational, social and support/connection groups.

tbodsofsjc@yahoo.com

P.O Box 32252
Stockton, CA 95213
(209)933-7315 Ext 7740

http://www.tbods.com/

UPS AND DOWN SYNDROME SUPPORT GROUP

Sutter Creek CA

(209)267-0538

upsanddownsyndrome@gmail.com

kris.ford@sbcglobal.net

SONOMA COUNTY DOWN SYNDROME SUPPORT GROUP

To promote advocacy, raise awareness, further educational pursuits, and support research for people with Down syndrome and their families.

52 Mission Circle, #124
Santa Rosa, CA 95409
http://www.sonomacountydownsyndromesupport.org/