ILLINOIS EARLY INTERVENTION PROGRAM
Early Intervention Clearinghouse's mission is to serve the 20,000 families in Illinois who have infants and toddlers enrolled in early intervention (EI) services. They are a resource for you—we’re only a phone call or email away. They have a library of videos, books, manuals, and journals related to the development of young children with special needs and their families. The librarians are information specialists who can help find resources for you and your service provider. The web site links to other resources in the state and nation.
Illinois Early Intervention Clearinghouse
Early Childhood and Parenting Collaborative
University of Illinois at Urbana-Champaign
Children’s Research Center, Room 20
51 Gerty Drive
Champaign, IL 61820-7469
Toll free: (877) 275-3227
Local: (217) 333-1386
http://eic.crc.uiuc.edu/
ILLINOIS DEPARTMENT OF HUMAN SERVICES
Illinois Early Intervention Clearinghouse
Early Childhood and Parenting Collaborative
University of Illinois at Urbana-Champaign
Children’s Research Center, Room 20
51 Gerty Drive
Champaign, IL 61820-7469
Toll free: (877) 275-3227
Local: (217) 333-1386
http://eic.crc.uiuc.edu/
ILLINOIS DEPARTMENT OF HUMAN SERVICES
Bureau of Early
Intervention
222 South College, 2nd Floor
Springfield, IL 62704
222 South College, 2nd Floor
Springfield, IL 62704
Phone: (217) 782-1981, option 1
Fax: (217) 524-6248
TDD/TTY: (217) 558-6482
http://www.dhs.state.il.us/page.aspx?item=31183Fax: (217) 524-6248
TDD/TTY: (217) 558-6482
PROVIDER CONNECTIONS
The Center for Best Practices in Early Childhood Education
Western Illinois University
1 University Circle
Macomb, IL 61455
Phone: (800) 701-0995
Fax: (309) 298-3066
Office Hours: M-F 8am - NOON & 1pm - 4:30pm
http://www.wiu.edu/ProviderConnections/
EASTER SEALS
MEDICAID WAIVER PROGRAM:
A waiver is a program that provides services that allow individuals to remain in their own home or live in a community setting. Illinois has nine HCBS waivers. Each waiver is designed for individuals with similar needs and offers a different set of services.
http://www.hfs.illinois.gov/hcbswaivers/#HCBSwaivers
A waiver is a program that provides services that allow individuals to remain in their own home or live in a community setting. Illinois has nine HCBS waivers. Each waiver is designed for individuals with similar needs and offers a different set of services.
http://www.hfs.illinois.gov/hcbswaivers/#HCBSwaivers
TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)
Under the Tax Equity and Fiscal Responsibility Act
of 1982 (TEFRA), states may provide Medicaid
coverage
to children with severe disabilities, disregarding their family income, if these
children require care at an institutional (hospital, nursing home or intermediate
care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.
RUSH UNIVERSITY MEDICAL CENTER (GENETICS):
The Section of Genetics at Rush
University Medical Center in Chicago , Illinois
Contact Name Kisha Johnson MS, CGC 312-942-6298 contact_rush@rush.edu
THE ARC OF ILLINOIS
20901 LaGrange Rd. Suite #209 | Frankfort, IL 60423
Phone: 815-464-1832 | Fax: 815-464-5292
http://www.thearcofil.org/
HEART OF ILLINOIS DS ASSOCIATION
The Heart of Illinois Down Syndrome Association, Inc. is a 501(c)3 not-for-profit organization and all contributions are tax deductible. Your support will help us in our continued advocacy on behalf of individuals with Down syndrome.
Heart of Illinois Down Syndrome Association, Inc.
c/o Bethel Lutheran Church
425 N. Missouri Ave.
Morton, IL 61550
Phone: 309.712.4852
Email: info@hoidsa.org
http://www.hoidsa.org/
CENTRAL ILLINOIS DS ORGANIZATION
The Central Illinois Down Syndrome Organization (CIDSO) is a not-for-profit organization of families and interested persons working to increase public awareness, support families, and improve opportunities for those touched by Down syndrome.
P.O. Box 595
Normal, Illinois 61761
(309) 452-3264info@cidso.org
New Parent Outreach
The process of acceptance begins as soon as Down syndrome is suspected. To support parents and extended family during this time, a parent outreach member will gladly make hospital or home visits.
For new parent outreach, contact:Brenda & Kevin Harms, (309) 378-2388
Rick & Jennifer Bauersfeld, (309) 874-2038
B.U.D.S. (BRINGING UP DOWN SYNDROME)
Mailing Address: P.O. Box 11, Arenzville, IL 62611
Telephone: 217-997-5879
Email: briggsj@frontiernet.net
DOWN SYNDROME FAMILY CONNECTION
Bloomington IL
812-339-2012
email: info@downsyndromefamilyconnection.org
www.downsyndromefamilyconnection.org
CELEBRATE DIFFERENCES
Celebrate Differences is committed to creating a place for families of children with disabilities to feel a part of a larger, accepting community. We realize parents are experiencing the feeling of being overwhelmed with emotions, worries and questions. We want families to know there is hope and resources available to help. Celebrate Differences offers a place where children, adults and families feel welcome and safe. A place where they are able to utilize their gifts and celebrate their uniqueness; where they can truly be themselves.
5375 Route 34, Ste 3 - Oswego, IL 60543
630.885.3006
http://www.celebratedifferences.org/
CHAMPAIGN COUNTY DOWN SYNDROME NETWORK
Champaign County Down Syndrome Network is available to assist you in any way we can. By offering opportunities to network with other parents, attending conferences, having social get-togethers and holiday parties, we hope you find a venue that is comfortable for you. We have monthly newsletters as well as meetings to keep you informed of the upcoming events and latest information regarding Down syndrome.
Email: newparents@champaigndsn.org
Phone: (217) 355-6289
http://www.champaigndsn.org/
DS SUPPORT
DS Support is a support group for families and friends of individuals with Down syndrome. Located in the south suburbs of Chicago, we host meetings and outings from time to time.
2328 E Lincoln Hwy, Suite 210
New Lenox, IL 60451
815-272-1068
info@dssupport.net
http://www.dssupport.net/
GIGI'S PLAYHOUSE
Mission: To increase positive awareness of Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community.
1069 West Golf Road
Hoffman Estates, IL 60169
847-885-PLAY
Fax: 847-885-4903
http://gigisplayhouse.org/
KANKAKEE AREA DOWN SYNDROME SOCIETY
Contact Name Kisha Johnson MS, CGC 312-942-6298 contact_rush@rush.edu
THE ARC OF ILLINOIS
20901 LaGrange Rd. Suite #209 | Frankfort, IL 60423
Phone: 815-464-1832 | Fax: 815-464-5292
http://www.thearcofil.org/
HEART OF ILLINOIS DS ASSOCIATION
The Heart of Illinois Down Syndrome Association, Inc. is a 501(c)3 not-for-profit organization and all contributions are tax deductible. Your support will help us in our continued advocacy on behalf of individuals with Down syndrome.
Heart of Illinois Down Syndrome Association, Inc.
c/o Bethel Lutheran Church
425 N. Missouri Ave.
Morton, IL 61550
Phone: 309.712.4852
Email: info@hoidsa.org
http://www.hoidsa.org/
CENTRAL ILLINOIS DS ORGANIZATION
The Central Illinois Down Syndrome Organization (CIDSO) is a not-for-profit organization of families and interested persons working to increase public awareness, support families, and improve opportunities for those touched by Down syndrome.
P.O. Box 595
Normal, Illinois 61761
(309) 452-3264info@cidso.org
New Parent Outreach
The process of acceptance begins as soon as Down syndrome is suspected. To support parents and extended family during this time, a parent outreach member will gladly make hospital or home visits.
For new parent outreach, contact:Brenda & Kevin Harms, (309) 378-2388
Rick & Jennifer Bauersfeld, (309) 874-2038
B.U.D.S. (BRINGING UP DOWN SYNDROME)
Mailing Address: P.O. Box 11, Arenzville, IL 62611
Telephone: 217-997-5879
Email: briggsj@frontiernet.net
DOWN SYNDROME FAMILY CONNECTION
Bloomington IL
812-339-2012
email: info@downsyndromefamilyconnection.org
www.downsyndromefamilyconnection.org
CELEBRATE DIFFERENCES
Celebrate Differences is committed to creating a place for families of children with disabilities to feel a part of a larger, accepting community. We realize parents are experiencing the feeling of being overwhelmed with emotions, worries and questions. We want families to know there is hope and resources available to help. Celebrate Differences offers a place where children, adults and families feel welcome and safe. A place where they are able to utilize their gifts and celebrate their uniqueness; where they can truly be themselves.
5375 Route 34, Ste 3 - Oswego, IL 60543
630.885.3006
http://www.celebratedifferences.org/
CHAMPAIGN COUNTY DOWN SYNDROME NETWORK
Champaign County Down Syndrome Network is available to assist you in any way we can. By offering opportunities to network with other parents, attending conferences, having social get-togethers and holiday parties, we hope you find a venue that is comfortable for you. We have monthly newsletters as well as meetings to keep you informed of the upcoming events and latest information regarding Down syndrome.
Email: newparents@champaigndsn.org
Phone: (217) 355-6289
http://www.champaigndsn.org/
DS SUPPORT
DS Support is a support group for families and friends of individuals with Down syndrome. Located in the south suburbs of Chicago, we host meetings and outings from time to time.
2328 E Lincoln Hwy, Suite 210
New Lenox, IL 60451
815-272-1068
info@dssupport.net
http://www.dssupport.net/
GIGI'S PLAYHOUSE
Mission: To increase positive awareness of Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community.
1069 West Golf Road
Hoffman Estates, IL 60169
847-885-PLAY
Fax: 847-885-4903
http://gigisplayhouse.org/
KANKAKEE AREA DOWN SYNDROME SOCIETY
KADSS is a group to help families that have children or family members with Down syndrome. We wanted a place where parents can talk, help and encourage each other so that we can empower our children and family members to reach their full potential. We also encourage children and other individuals with Down syndrome to come so they have a place to come and have fun and meet new people.
815-210-8944
http://www.kadss.org/
LIVINGSTON AREA DOWN SYNDROME SOCIETY
LADSS was formed to serve the needs of those with Down syndrome in the North-East Central, Illinois.
http://www.ladss.org/index.html
RIVERBEND DOWN SYNDROME ASSOCIATION
The Riverbend Down Syndrome Association is incorporated in Illinois as a not-for-profit corporation and a tax exempt organization under Section 501(c)(3) of the Internal Revenue Code with Employer Identification Number: 14-1982424 and a community group of the Down Syndrome Association of Greater St. Louis. We are an all volunteer group that provides support and information to parents of children with Down syndrome in Southwestern Illinois. Our aim is to support each other and enrich the lives of our children so they may reach their fullest potential to lead an independent life within the community.
http://www.riverbendds.org/index.htm
NATIONAL ASSOCIATION OF DOWN SYNDROME
NADS is the oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home. Their pioneering efforts have made it easier for later generations of individuals with Down syndrome to be accepted by their families and communities, to develop their capabilities, and to work towards independence. Our mission is to ensure that all persons with Down syndrome have the opportunity to achieve their potential in all aspects of community life. We offer information, support, and advocacy.
Post Office Box 206
Wilmette, IL 60091
630-325-9112
or email:
info@nads.org
http://www.nads.org/
UPS FOR DOWNS
UPS for Downs is a parent directed, non-profit organization offering support, education, and encouragement for parents, families and others who love and care about persons with Down syndrome.
They inspire community acceptance by sharing with others the presence, potential and abilities of people with Down syndrome.
1070 S. Roselle Rd., Schaumburg, IL 60193
Phone: (847) 895-2100
http://www.upsfordowns.org/home.aspx
FAMILY IDEAS NETWORK FOR DOWN SYNDROME
Established in 1975, FINDS is a McHenry County, Illinois, not-for-profit volunteer organization run entirely by parents and their children with Down Syndrome. FINDS is a network of families who work together to maximize the potential of each individual person with Down Syndrome and improve the quality of their lives.
P.O.Box 1441, Crystal Lake, IL http://www.findsdownsyndrome.com/home.html
LINCOLN LAND DOWN SYNDROME SOCIETY
Lincoln Land Down Syndrome Society is a support network for families residing in and around Sangamon County to promote awareness, acceptance, inclusion and education of people with Down syndrome.
Jason Schnepp, LLDSS President
3512 Banyan Drive
Springfield, IL 62712
Phone (217) 741-1832
http://www.lldss.org/
815-210-8944
http://www.kadss.org/
LIVINGSTON AREA DOWN SYNDROME SOCIETY
LADSS was formed to serve the needs of those with Down syndrome in the North-East Central, Illinois.
| LADSS contact information: | Livingston Area Down Syndrome Society 13298 N 3400 East Rd. Chatsworth, IL 60921 Phone: 815-689-2202 |
| Director: David Melvin | Email: david@ladss.org Phone: 815-848-4851 |
RIVERBEND DOWN SYNDROME ASSOCIATION
The Riverbend Down Syndrome Association is incorporated in Illinois as a not-for-profit corporation and a tax exempt organization under Section 501(c)(3) of the Internal Revenue Code with Employer Identification Number: 14-1982424 and a community group of the Down Syndrome Association of Greater St. Louis. We are an all volunteer group that provides support and information to parents of children with Down syndrome in Southwestern Illinois. Our aim is to support each other and enrich the lives of our children so they may reach their fullest potential to lead an independent life within the community.
http://www.riverbendds.org/index.htm
NATIONAL ASSOCIATION OF DOWN SYNDROME
NADS is the oldest organization in the country serving individuals with Down syndrome and their families. It was founded in Chicago in 1961 by parents who chose to go against medical advice and raised their children with Down syndrome at home. Their pioneering efforts have made it easier for later generations of individuals with Down syndrome to be accepted by their families and communities, to develop their capabilities, and to work towards independence. Our mission is to ensure that all persons with Down syndrome have the opportunity to achieve their potential in all aspects of community life. We offer information, support, and advocacy.
Post Office Box 206
Wilmette, IL 60091
630-325-9112
or email:
info@nads.org
http://www.nads.org/
UPS FOR DOWNS
UPS for Downs is a parent directed, non-profit organization offering support, education, and encouragement for parents, families and others who love and care about persons with Down syndrome.
They inspire community acceptance by sharing with others the presence, potential and abilities of people with Down syndrome.
1070 S. Roselle Rd., Schaumburg, IL 60193
Phone: (847) 895-2100
http://www.upsfordowns.org/home.aspx
FAMILY IDEAS NETWORK FOR DOWN SYNDROME
Established in 1975, FINDS is a McHenry County, Illinois, not-for-profit volunteer organization run entirely by parents and their children with Down Syndrome. FINDS is a network of families who work together to maximize the potential of each individual person with Down Syndrome and improve the quality of their lives.
P.O.Box 1441, Crystal Lake, IL http://www.findsdownsyndrome.com/home.html
LINCOLN LAND DOWN SYNDROME SOCIETY
Lincoln Land Down Syndrome Society is a support network for families residing in and around Sangamon County to promote awareness, acceptance, inclusion and education of people with Down syndrome.
Jason Schnepp, LLDSS President
3512 Banyan Drive
Springfield, IL 62712
Phone (217) 741-1832
http://www.lldss.org/
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