Where to Start-Hawaii

HAWAII EARLY INTERVENTION (0-3 YRS)

The Early Intervention Section (EIS) is a federal and state-mandated program that provides services to support the development of infant and toddlers from birth to three years of age. Information and support are also provided to parents to increase their knowledge about and ability to support their child's development.

http://idea.ed.gov/part-c/search/new


CONTINUED SUPPORT (3-21)

http://idea.ed.gov/explore/home

 

EASTER SEALS

Easter Seals Hawaii has been providing services to infants, children and adults with disabilities and other special needs, and support to their families since 1946.

You can also reach Easter Seals at:

808-536-1015 (voice)
808-536-3765 (fax)
888-241-7450 (toll free from the Neighbor Islands)

Or, via regular mail at:

710 Green Street
Honolulu, HI 96813

http://hawaii.easterseals.com/site/PageServer?pagename=HIDR_homepage


HAWAII WAIVER PROGRAM

http://www.pascenter.org/state_based_stats/medicaid_waivers_info.php?state=hawaii#waiver_5

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

HAWAII GENETICS

The Genetics Program:

• Provides information and education about topics in genetics.
• Administers grants related to genetics.
• Coordinates genetics activities.
• Supports clinical genetic services.
• Does research on clinical and public health genetics topics.
• Develops public policy surrounding genetics.
• Offers technical assistance.

741 Sunset Avenue
Honolulu, HI 96816
(808) 733-9055
(808) 733-9068 (fax)

State Genetics CoordinatorSylvia Au, M.S., C.G.C.
(808) 733-9063sylvia@hawaiigenetics.org

Genetic Counselors

Lianne Hasegawa-Evans, M.S., C.G.C.(808) 733-9039lianne@hawaiigenetics.org
Kirsty McWalter, M.S., C.G.C.(808) 733-8387kirsty@hawaiigenetics.org

http://hawaii.gov/health/family-child-health/family-child-health/genetics/index.html

THE ARC OF HAWAII

The Arc in Hawaii is committed to helping Hawaii's people.

http://www.thearcinhawaii.org/


HAWAII DOWN SYNDROME CONGRESS

The Hawaii Down Syndrome Congress was established in April of 1985 and is affiliated with the National Down Syndrome Congress and the National Down Syndrome Society. They are a Non-profit organization of families and professionals. They have members in the Hawaiian Islands, and the Pacific Basin, and are presently serving over 190 families.
     Their mission is to foster self advocacy and self confidence in persons with Down syndrome and their families. They are building a sense of community and fellowship for all persons concerned with Down Syndrome. They provide the latest updates and research to parents and professionals throughout the Hawaiian Islands.

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Roy P. Yamane Honolulu	(808)-672-6444
Darryl & Karen Keane Kailua, Oahu	(808)-247-1986
Rachel & Max Matsunobu Kahului, Maui	(808-877-4527
Mary Ann & Wally Gallup Big Island	(808)-329-1934
Ana & Omar Munoz Koloa, Kauai	(808)-241-1307

http://hidownsyndrome.com/



DOWN SYNDROME OHANA OF HAWAII

Down syndrome Ohana of Hawaii is a group of families joined together to support all individuals with Down syndrome in the home, school, and community life.

A program of Keiki O Ka 'Aina Family Learning Centers
3097 Kalihi Street
Honolulu Hi, 96819
Phone: (808) 843-2502
Fax: (808) 843-2572
Email us: dsoh@keikiokaaina.org
http://www.dsohawaii.com/

MAUI DOWN SYNDROME FAMILY SUPPORT GROUP


53 Nohokai Street
Kihei, HI 96753
Business: (808) 879-7040