Sunday, April 13, 2014


Feeling like you are covered in snot all day really gets you motivated to find a solution.  It has been a long road but (knock on wood) hopefully we have found what works for us.

As you all know we try to stay as natural as possible.  We are not big fans of treating symptoms long term, we are much more interested in correcting the problem.  Rashes, runny noses, diarrhea, vomiting and allergies are ways for the body to detox.  We do not want to suppress the bodies process of eliminating toxins.  Taking care of congestion is a day to day job, as is supporting the entire body.

Now why is the elimination of congestion so important.  For me it always comes back to something very close to my heart-SPEECH.  If your child is congested, they will have fluid on the ears.  If they have fluid on the ears, they will not hear.  If they do not hear, they will not speak or will not speak with good articulation.  Oral Motor Therapy is very important but if your child does not hear every syllable they will not repeat every syllable.  Fluid on the ears causes a multitude of problems and has absolutely no benefit.  Also, remember when your child can not breath through their nose they will open their mouth and become a mouth breather.  Typical Down syndrome mouth posture is usually due to congestion.  Low tone and congestion would make anyone a mouth breather.

Here is what has worked for us.

1.  Evaluate diet.  Start with getting rid of dairy.  Getting rid of mucus is hard enough, you do not need the help of dairy.  You can search the internet high and low.  Some of the "experts" will say there is no connection but all the experts that I know agree-GET RID OF IT!  If you are not sold, eliminate it just to test the theory and see if you agree.  We drink raw goat milk but there are many options.  Goat milk tastes exactly like regular milk.  When tested Emma did not test positive for Celiac, but her belly is very sensitive to it.  In order for the body to have its immune system on its toes, you must have a healthy belly.  Gluten is vary hard for our little ones to digest, I always recommend gluten and casein free.  Your child's belly will thank you for it and their brain will thank you for eliminating the "brain fog".  Eliminating sugar and starchy foods will also be beneficial.

2.  Suction and saline every day.  Help the nose eliminate the allergen.  You do not have to purchase, you can make your own by simply mixing 1/4 tsp of salt into 1/2 cup lukewarm water.  Use bulb to spray into nose.  This mixture does need to be made fresh daily. 

3.  Local honey every day.  Taking a high-quality raw local honey before and during allergy season can actually lessen your allergies. Bees carry the pollen that aggravates seasonal allergies, and some of that pollen becomes part of the honey. Consuming honey daily can help your body grow accustomed to the pollen and immunize your body against it.  I put it in Emma's AIR tea every day...which brings me to my next item.

4.  AIR Tea.  I learned about this from Andi Durkin.  We started using it with Emma when she was 6 months old.  It worked wonders.  For some reason when Emma got a little bigger I stopped it.  I ran out and just did not reorder.  Within a month the snot returned.  It takes a couple of weeks to see the benefits but ahhhh the benefits.  I only give to Emma in the morning because it seems to make her a little spunky.  We start every day with AIR Tea, honey and lemon essential oil.  You can order from Si Jin Bao Herbs at  Click on the order now tab in the upper left hand screen then scroll down and choose AIR Tea, they will then prompt you set up an account.


I add a couple of drops of lemon to Emma's tea every morning.  It is a refreshing pick me up and the aroma that she inhales as she drinks is wonderful for opening sinus.
I combine these three and rub on the pads of the feet and toes, in front of her ears and high across forehead to keep passages clear.  First I put 1 drop of Idaho Blue Spruce into the palm of my hand, I then rub my fingers from my other hand in the oil and apply a small amount to the lip under Emma's nose.  I then add the Peppermint and Wintergreen and apply to feet and sinus area.  Peppermint is strong so avoid eye area and under nose.
This too is an option for allergies.  Apply to the bottoms of the feet for little ones, or adults can ingest 5 drops of each in a capsule to replace allergy medicine (please only ingest pure, unadulterated essential oils)
Make sure that you only use pure oil.  There are only a few that are truly pure.  It is nearly impossible to walk into a store and purchase a true pure oil.  Emma is an oily baby, we have used oils with her for a while.  They are very powerful so be careful.  I can put oils directly on Emma but we started out by mixing with carrier oil such as coconut oil.
We only use Young Living.  You can order all the oils by going to the following link:
6.  Cool Mist Humidifier every night.  Humidifiers recommend using only distilled water, which I fully agree.  We use the Crane for cost and effectiveness.  There are many other great choices and you can spend a lot of money on some really nice ones or little less on a basic one.  Do your research and choose what works best for you and your budget. 
7.  Lugol's Solution of Iodine 5%.  I add this to the humidifier water to help purify the air in Emma's room.
8.  Eucalyptus in our Young Living Home Diffuser.  We use a diffuser that we got from Young Living.  It is a small amount of water and about ten drops of Eucalyptus or Balsam Fir.
9.     Push the liquids.  Emma drinks a vegetable broth that we make with added pineapple juice and 5 ml of apple cider vinegar organic.  Both help eliminate congestion and promotes good digestion.
10.   Be aware of allergens.  Know your childs triggers.  Some stuff is controllable but some is just simply environmental and is temporary and we just have to push through.  This is when honey helps.  Avoid people that smoke.  The theory of "I do not smoke in the house or around my child" is not an argument.  If you smoke or if anyone who is in close quarters with your children smoke it is causing problems for your child.  It is in their clothes and hair and this will effect your child's sinuses.  You also need to eliminate what you can, like indoor pets, too when possible. Wash hands and change clothes to remove irritants after playing outside or going to store.  
11.   Support the immune system with vitamins.  Emma's supplements are based on her lab results.  We have Emma on a TNI (Targeted Nutritional Intervention) program so we know her specific needs.  Figure out what vitamins your child needs but do not skip the following:  Multivitamin, DHA Omega 3 and Probiotic.
12.   Alternative therapy with chiropractic and cranial sacral therapy.
13.   Simplify your cleaning supplies, Thieves is a wonderful alternative.  If the body isn't busy fighting off toxins/chemicals it will be more prepared to fight off germs, especially kids with the MTHFR defect.
Now I realize this seems overwhelming and it looks like a lot of work but I assure you it is not.  Snot is so harmful to our kids.  If you can control the congestion you will save yourself a ton of work in other areas.
Once again all oils can be ordered at Mothering with Essential Oils

Saturday, April 5, 2014

First-Of-Its-Kind Hotel Will Train, Employ People With Disabilities

Jeff Huffman could no longer sit by and watch his son with Down syndrome get repeatedly denied employment opportunities. So, he decided to develop a job that had never before existed.

Huffman volunteers with the Arc of Indiana, an organization that empowers people with developmental disabilities. When the concerned dad proposed that the organization start a program that trains its clients to work in the hospitality industry, it enthusiastically accepted the challenge, according to the nonprofit’s blog.

The organization decided to build a Courtyard by Marriott unlike any other hotel in the hospitality industry, the Star Press reported. The Muncie, Ind., hotel -- which is slated to open in the summer of 2015 -- will train people with disabilities, and will then give them a chance to apply those skills by working at the hotel.

The venue expects that at least 20 percent of the jobs will be filled by people with a range of disabilities, according to the Disability Scoop. The unemployment rate in the U.S. for people with disabilities in February was 16.8 percent -- more than double the rate for people without disabilities, according to the Department of Labor.

Considering that the hospitality industry added 80,000 jobs last year, and demands a wide range of skills, the Arc of Indiana thought this would be the ideal area to try and create work opportunities for its clients. "As far as the typical guest experience, this Courtyard will be no different," Sally Morris of the Arc of Indiana told the Disability Scoop. "That said, this hotel will not just meet ADA standards, it will exceed them. Every decision we are making is meant to enhance the guest experience for all of our guests."

Please support this hotel when visiting the area.
4011 W Bethal
Muncie IN 47304

Thursday, April 3, 2014

Doctors For "Our" Kiddos

One of the best things that you can do for your child is find someone that knows what you are dealing with.  Chances are that person is not at your local pediatricians office.  We have an amazing pediatrician and we are very blessed with her support, but even she admits that she is not a specialist on Down syndrome-and I do not expect her too be.  As my children's mother it is my job to be their expert.  When I need guidance I research what I can and present my findings to the professionals.

You will hear a lot of people say...."don't worry just treat them like the rest of your children".  This statement is partially true in my opinion.  We most certainly treat Emma like the rest of our kids. She enjoys all the same things our other kids do.  She plays dress up, she sings and dances, she climbs and slides, she has fits and gets in trouble like the rest of our kids do.  She goes to Mother's Day Out just like the other kids did, and she does all the other countless things our other kids do or did.  She also has 8 therapy sessions a week, hypothyroidism, cardiologist visits once a year, orthodontist appointments at the age of 2, labs drawn every 3 months, has a restricted diet and is on a  neurodevelopmental program unlike the rest of our kids. With that said...Emma's life will always be a little different than theirs.  Because of the 21st chromosome it is very important that Emma gets bio medical support.  We believe that we have to have someone that understands exactly what Down syndrome is and how we can help Emma's body function at it best.

There are not a lot of physicians that truly understand this about our kids, so I have decided to compile a list of ones that I feel are good choices.  Because we use Erica Peirson I will start with her.  Our appointments with Dr. Peirson are done via Skype.

Erica Peirson, ND
2161 NE Broadway St.
Portland, OR 97232

Norm Schwartz, MD
Ph: 414 351 5772
Fax: 414 351 5760
4200 W. Good Hope Road
Milwaukee, WI 53209 USA

David Berger, MD, FAAP
3405 W. Fletcher Ave
Tampa, FL 33618
(813) 960-3415

The Franz Center
3160 Southgate Commerce Bld. #64
Orlando FL 32806
Phone 407-857-8860
Fax 407-857-7099

(for thyroid)
Raphel Kellman, MD
150 East 55th Street, 6th floor
New York, NY 10022

(212) 717-1118

Recognize the value of biomedical treatment of children and adults with Down syndrome Please sign.

Saturday, March 29, 2014

4 Gen Farm

One thing that we say time and time again....EAT LOCAL.
Our lives revolve around food. We nourish our bodies with it, but we also celebrate, entertain and express affection with it. So it’s no surprise that we all want the healthiest, freshest, best-tasting food. To serve the best—and trigger other positive effects on the economy, the soil, wildlife and the welfare of those who raise what we eat—here are 8 reasons to shop for local foods:
  1. It’s better for everyone’s bottom line When we shop for local foods, we get the satisfaction of knowing that we are contributing to our local communities and economies. For example, research out of Brock University suggests $3 billion would be added to the local economy if 5 million Ontarians spent $10 of their grocery budget on local foods each week. You don’t always spend more to shop for local food; in some cases it can cost less because in-season foods are generally cheaper and travel costs are minimized. 
  2. It supports the future of farming The stronger our local farmer gets, the more we ensure local goods can be grown and raised for generations to come.
  3. It promotes biodiversity Our demand for local food creates greater variety. Farmers who run community-supported agriculture programs, sell at farmers’ markets and provide for local restaurants have the support they need to raise more types of produce and livestock than multinational commercial enterprises looking to squeeze every dollar out of one type of crop.
  4. It promotes cultural diversity Many local farmers are growing varieties of “culturally diverse” ingredients locally so traditional recipes from different heritages can still be honored and prepared—fresh—close to home.
  5. It empowers consumers Shopping locally gives us a chance to engage our growers directly. Building a relationship with farmers is fun—who doesn’t love a trip to the farmers’ market! We get to learn something new about our food, including when the freshest produce is in-season. And we are reassured when we ask growers directly about sustainable production, including whether pesticides are used. It’s important to ask about growing practices because buying local does not automatically mean the food is sustainably produced.
  6. It promotes a greater sense of family When we buy local foods, we are encouraged and inspired by our food. Who doesn’t spy a brimming basket of apples and think, “homemade apple pie!” We hit the kitchen, whipping up favorite family recipes and applying our creative juices. And then, we get to savor the bounty with loved ones, enjoying the experience slowly, talking about the effort and the end result (rather than wolfing down pre-made reconstituted food with the TV on!).
  7. It boosts our well-being Of course, when local foods are grown sustainably, using humane animal practices and without pesticides and chemical fertilizers, we can also be confident that our food is healthier and environmentally friendly. So every time you buy food grown in your region, you can feel good knowing you are making a difference.
  8. It tastes better! Finally, local foods taste better because they are in-season, recently harvested and didn’t have to travel far to get to our plates.

    Here is a great farm that was recommended by someone that we trust.

    4 Gen Farm is your local source of tasty, wholesome food for your family. Know where your food comes from!

    Know where your food comes from!

     Know your farmer!

     They are 4 generations working together, working with the land, and natural relationships (soil enrichment, water, animals, companion plants) in a transparent, responsible, trustworthy manner to provide wonderful, tasty, clean, nutritious food for local families.


    Contact Information
    Phone:  (743) 439-7674
    Get Directions: