Friday, April 20, 2012

Where to Start-Indiana




INDIANA EARLY INTERVENTION

Mission:  To assure that all Indiana families with infants and toddlers experiencing developmental delays or disabilities have access to early intervention services close to home when they need them. This is accomplished through the implementation of a comprehensive, coordinated statewide system of local interagency councils called first steps.

Bureau of Child Development Services (BCDS)
402 West Washington Street, W453, MS-51
Indianapolis, Indiana 46204-2739

Toll Free Number: 1-800-545-7763
FAX: 317-234-6701
FirstStepsWeb@fssa.in.gov
http://www.in.gov/fssa/ddrs/2633.htm



EASTER SEALS

Easter Seal Crossroads:
Easter Seals mission is to provide exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities.

You can also reach Easter Seals Crossroads at:
(317) 466-1000
(317) 466-2000 fax
Or, via regular mail at:
4740 Kingsway Drive
Indianapolis, IN 46205
http://www.eastersealscrossroads.org/


Easter Seals Northeast Indiana

Easter Seals Arc of Northeast Indiana celebrates over 50 years of providing services to children and adults with disabilities and other special needs, and support to their families.

4919 Coldwater Road
Fort Wayne, IN 46825
260/456-4534
260/745-5200 fax
1-800-234-7811
Office hours: 8:00 a.m. to 5:00 p.m.
http://neindiana.easterseals.com/site/PageServer?pagename=INNE_homepage


Easter Seals Southwestern Indiana

The mission of the Easter Seals Rehabilitation Center in Evansville, IN is to provide life-changing services that maximize the independence of children and adults with disabilities and to ensure equal opportunities to live, learn, work and play in our community.

You can also reach the Easter Seals Rehabilitation Center at: 812-479-1411 (voice)
812-437-2634 (fax)
Or, via regular mail at:

3701 Bellemeade Ave.
Evansville, IN 47714



INDIANA WAIVER PROGRAM


Indiana has two types of Medicaid waivers:
  • Medicaid waivers for children and adults with medical needs.
    Apply at your local Area Agency on Aging.
  • Call: 800-986-3505.
    • Aged and Disabled Waiver (A&D)
    • Traumatic Brain Injury Waiver (TBI)

  • Medicaid waivers for children and adults with intellectual and other developmental disabilities.
    Apply at your local Bureau of Developmental Disability Services. Call: 800-545-7763.
    • Autism Waiver
    • Developmental Disabilities (DD) Waiver
    • Support Services (SS) Waiver



TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)


Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.
Please check with your state office to see if TEFRA is offered in your state.

INDIANA GENETICS (RILEY HOSPITAL FOR CHILDREN)

The Riley Hospital for Children Clinical Genetics at Indiana University Health provides services to more than 1000 individuals and families per year. Our board certified geneticists and genetic counselors serve patients in multiple clinics throughout central and southern Indiana. These services are supported in part by Title V, Maternal and Child Health Block Grant funds administered through the Indiana State Department of Health, Maternal and Child Health Services.
The Riley Clinical Genetics at IU Health also directs the Indiana University Genetic Counseling Program, provides clinical experience to PhD students and offers post-doctoral fellowships in clinical genetics.

800.248.1199 push (option #2)
317.944.5000
705 Riley Hospital Drive.
Indianapolis, IN 46202
http://iuhealth.org/riley/genetics/clinical-genetics/

 

THE ARC OF INDIANA

 The Arc of Indiana is committed to all people with developmental disabilities realizing their goals of learning, living, working and playing in the community. http://www.arcind.org/

107 N Pennsylvania St # 800 Indianapolis, IN 46204
(317) 977-2375


DOWN SYNDROME ASSOCIATION OF NW INDIANA

The Down Syndrome Association of Northwest Indiana, which was founded over 25 years ago, serves families of both children and adults with Down Syndrome. Our volunteers provide support, information and services to children with Down syndrome and their families. Thanks to the generosity of those in the community, we have been able to distribute, free of charge, accurate and encouraging information to families experiencing the birth of a child with Down syndrome including personal contact with another parent who has been trained to offer support.

2927 Jewett Street, Highland, IN 46322
(219) 838-3656 Phone
(219) 838-6959 Fax
dsa@dsaofnwi.org
http://www.dsaofnwi.org/



DOWN SYNDROME ASSOCIATION OF NE INDIANA

One of the objectives of DSANI is to provide current information and support to parents as soon as their child is diagnosed. While they do not claim to be experts themselves, they hope to help you sift through the wealth of information available, and find the most up-to-date and educational.

Through their Outreach Program, they offer "Expectant Parent Packets" and "New Parent Packets" of resource materials to new parents receiving a diagnosis of Down syndrome for their child. These materials are available upon request and through referrals from area hospitals.

P.O. Box 13611
Fort Wayne, IN 46865
260 471 9964
 dsani4u@aol.com
http://www.dsani.org/


DOWN SYNDROME INDIANA

Welcome to Down Syndrome Indiana where we are dedicated to enhancing the lives of individuals with Down Syndrome through education, support and advocacy. We are glad you are here, and we hope that you become an active part of our family!

Down Syndrome Indiana would like to congratulate you on the birth of your new baby. They have compiled a list of helpful resources for new parents that they can provide to you at no cost. To request a parent packet please contact Rachel Lowe by calling 317-925-7617 .

http://www.dsindiana.org/newParents.php


COLUMBUS AREA DOWN SYNDROME SUPPORT GROUP

The Columbus Area Down Syndrome Support Group is a support
network that informs and educates parents, self-advocates, family
members, professionals, and friends of individuals with Down
syndrome. We are committed to raising awareness of Down syndrome
and promoting an inclusive culture where all people with Down
syndrome are valued participants in the social, recreational,
educational and economic opportunities in the communities we serve.

P.O. Box 1732
Columbus, Indiana 47201-1732
Telephone: 812-375-9594

http://cadssg.org/

 
DOWN SYNDROME FAMILY CONNECTION

Down Syndrome Family Connection's purpose is to promote greater acceptance and understanding of Down syndrome; to educate, inform and involve all people to recognize the uniqueness and capabilities of individuals with Down syndrome and the inherent dignity of all people with developmental disabilities; and to provide education and support for communities, families and individuals living, learning, and growing with Down syndrome.

RAISING SPECIAL KIDS
Raising Special Kids is a Down syndrome support group formed in conjunction with Hillcroft Services, Inc. and Down Syndrome Indiana to provide a network for families and caregivers in East Central Indiana.

Meetings are held the 2nd Tuesday of each month from 6pm to 7pm at:

Hillcroft Services
114 East Streeter Avenue
Muncie IN, 47303.

Hillcroft and VSA Arts provide quality therapeutic programming for children of all ages for each monthly meeting. Therefore, reservations are required in order for us to plan accordingly.

For reservations, contact:

Debbie McCoy
765-378-6728
slaterjomc@gmail.com

Please include the name and age for each participant.

HAMILTON COUNTY DS PARENT GROUP
Carmel IN
jgoodrich@indy.rr.com


ELKHART COUNTY DS SUPPORT GROUP
Goshen IN
574-534-5113
email for more info:
mlind@mac.com / ecdssg@mac.com
www.ecdssg.org


DS FAMILY SUPPORT AND ADVOCACY GROUP

Email: info@michianadownsyndrome.org 
Regular mail:
DSFSAG
51201 Old Cottage Dr.
Granger, IN 46530

Phone:Call Kathy at 574-234-0590
http://www.michianadownsyndrome.org/


SMILE ON DOWN SYNDROME

The mission of S.M.I.L.E. on Down Syndrome is
-To provide hope for the future to families within the tri-states of Indiana, Kentucky and Illinois who have a family member with Down Syndrome and
-To provide an on-going parent-to-parent support system, making available a network of resources within the community at large, i.e. social, physical, emotional, spiritual and educational contacts to holistically meet the needs of the parents, siblings and persons with Down Syndrome and thus, inspiring the entire community to raise their level of respect of those with special needs.

PO Box 994
Newburgh, IN 47629

812-925-6839


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