Where to Start-Arizona

ARIZONA EARLY INTERVENTION PROGRAM 

The information on this website can help you learn more about how babies grow, and help you better understand how the AzEIP System can help your family. There are even suggestions on ways that you can become involved with AzEIP.

https://www.azdes.gov/main.aspx?menu=98&id=2646

Arizona Early Intervention Program (AzEIP)

3839 North Third Street, Suite 304
Phoenix, Arizona 85012
Phone: (602) 532-9960, toll free in Arizona (888) 439-5609

EASTER SEALS:

Easter Seals Blake Foundation has been providing services to children and adults with disabilities since 1950. Our educational, therapeutic and community living programs are designed in accordance with our mission: to enable each individual served to discover and meet his or her maximum potential for independent, productive living and developmental growth.

5704 E. Grant Road
Tucson, AZ 85712Ph (520) 327-1529
http://www.easterseals.com/site/PageServer?pagename=AZTU_homepage

MEDICAID WAIVER PROGRAM:

The Arizona Health Care Cost Containment System (AHCCCS) Demonstration allows the State to offer health care coverage to several groups of individuals who normally are not eligible for Medicaid. Working age adults without dependent children can qualify to receive the same comprehensive benefit as other groups traditionally eligible for Medicaid. Women who had Medicaid coverage due to a pregnancy can qualify afterwards for family planning coverage for up to 24 months, provided they do not have other health insurance. Persons eligible for the full Medicaid benefit generally must enroll in a health plan in order to receive their coverage. Persons in need of long-term care services can receive access to nursing home and community-based alternative services through the Arizona Long Term Care Services program. Families with children eligible for CHIP may choose instead to receive help with paying premiums for employer-sponsored health insurance. 

The Waiver program expired in 2011 for Arizona and is currently pending.  Please read more by clicking on the link below.

http://www.cms.gov/MedicaidStWaivProgDemoPGI/MWDL/itemdetail.asp?filterType=dual,%20data&filterValue=Arizona&filterByDID=2&sortByDID=2&sortOrder=ascending&itemID=CMS028619&intNumPerPage=10

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

ARIZONA GENETICS COUSELING:

http://www.mayoclinic.org/genetic-counseling-sct/faq.html 

SHARING DOWN SYNDROME ARIZONA

The Mission of Sharing Down Syndrome Arizona is to educate and empower, but especially give hope to individuals who have Down syndrome (and their families who love them) so these children may grow up to become independent self-advocates. We promote positive acceptance, understanding and inclusion is embraced by all as we celebrate each life.

745 N Gilbert Rd #124 PMB 273
Gilbert, AZ 85234
Phone- 480-926-6500
Fax- 480-926-6145
http://www.sharingds.org/


DOWN SYNDROME NETWORK ARIZONA

4025 E Chandler Blvd #70-C3
Phoenix, AZ 85048
PHONE: 480.759.9150FAX: 480.759.9180
E-mail us: info@dsnetworkaz.org
http://www.dsnetworkaz.org/


SOUTHERN ARIZONA NETWORK FOR DOWN SYNDROME

Southern Arizona Network for Down Syndrome's mission: To improve and enrich the lives of individuals with Down syndrome and to promote public awareness.

http://www.sandsaz.org/home.shtml

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Phone:	520-47SANDS (477-2637) SANDS 520-477-BWAZ (477-2929) Buddy Walk
Fax:	1-520-777-6207
	SANDSAZ.org P.O. Box 17011 Tucson, AZ 85731

DOWN SYNDROME RESEARCH GROUP-UNIVERSITY OF ARIZONA

Phone: 520-626-0244
Email: jedgin@email.arizona.edu

http://dsrg.web.arizona.edu/


LETI FOUNDATION

LETI Foundation (LETI) will address an unmet need in the community in the area of multi cultural families of children with significant disabilities or complex educational and medical needs. Supports include educational knowledge, empowerment, knowledge and awareness of available resources and services in the community and social events for family interaction. All supports/programs will be offered in a form of workshops, trainings, support groups and or family gathering.

http://www.letifoundation.com/go2/home_page.cfm


SANTA CRUZ PARENT LOVE CONNECTION

MARIASCHOLNICK@YAHOO.COM