Saturday, April 21, 2012

Where to Start-Kansas


Kansas Infant Toddler Services (authorized by the Individuals with Disabilities Education Act - IDEA Part C) is administered by the Kansas Department of Health and Environment (KDHE). KDHE provides grants to local networks to assist in maintaining and implementing a statewide system of coordinated, comprehensive, multidisciplinary early intervention services for infants and toddlers with disabilities (birth through 2) and their families.

Kansas Community Early Intervention Networks :

Tiny-K Early Intervention Services

Tiny-k is a statewide system that provides early intervention services to children ages birth to three and their families.
Children with developmental delays or disabilities are eligible for tiny-k services.
The Northeast Kansas Infant Toddler services is a tiny-k program for the 7* counties in northeast Kansas:


Easter Seals Capper Foundation provides exceptional individualized services to ensure that people with disabilities and their families have opportunities to live, learn, work and play in their communities.

You can also reach the Easter Seals Capper Foundation at:
3500 SW 10th Ave.
Topeka, KS 66604-1995
p:(785) 272 - 4060
f: (785) 272 - 7912


The Kansas Department of Social and Rehabilitation Services (SRS) was established in 1973 as an umbrella agency to oversee social services and state institutions. With a mission to protect children and promote adult self-sufficiency, SRS serves over 500,000 Kansans today. 

Customer Service Phone: 1-888-369-4777  

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.


Each year, Families Together Inc. provides, without fees, direct support to more than 12,000 Kansas families. In addition, through workshops, conferences and partnerships with state, local and national organizations, they provide training to more than 1000 additional families and professionals working with children and youth with disabilities. Their Kansas City Center currently provides support and information to more than 2,400 families and professionals in Wyandotte, Leavenworth, Johnson and Miami counties.
By building partnerships with local, state and national disability related agencies, school, parents, community partners and individuals with disabilities; Families Together, Inc. has become a highly effective parent training and information center. The majority of staff members at Families Together, Inc., are the parents, grandparents, or siblings of individuals with disabilities, and our Board members include parents, educators, educational advocates and education researchers. They know the difficulty in finding one’s way through the “maze of disability services”.
From a weekend family event hosted more than 25 years ago to a federally mandated/funded organization with four Centers and five regional coordinators; Families Together, Inc. continues to lead the way in finding unique innovative ways to reach out to the families they support.

Garden City Center
1518 Taylor Plaza
Garden City, KS 67846
(888) 820-6364 (KS parents)
(620) 276-6364

Kansas City Center
10563 Lackman Rd
Lenexa, KS 66215
(913) 287-1970
(877) 499-5369 (KS parents)
Fax: (913) 287-1972

Topeka Center
501 Jackson, Suite 400
Topeka, KS 66603
(800) 264-6343 (KS parents)
(785) 233-4777
Fax: (785) 233-4787

Wichita Center Region
3033 W.2nd, Suite 106
Wichita, KS 67203
Phone: 1-888-815-6364 (KS parents)
(316) 945-7747
Fax: (316) 945-7795


To encourage, and empower families affected by Down Syndrome.
To provide access to emotional, educational, and financial resources.
To promote public inclusion, acceptance, and awareness that people with Down syndrome have the same feelings, desires, and expectations as anyone else.
To advocate medical, educational, and legal issues that affect people with Down Syndrome

For Further Information Write or Email us at SEKDSS P.O. Box 405 Chanute, KS 66720


The Down Syndrome Guild of Greater Kansas City is a 501 c 3 nonprofit organization whose mission is to provide support and resources for individuals with Down syndrome and their families. DSG seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding people with Down syndrome.


Having a child with Down syndrome sets your life in a new direction and may well give you a new set of values as you learn and grow.
The mission of the Down Syndrome Society of Wichita is to enhance the lives of individuals with Down syndrome and their families by providing them with support and resources and by raising public awareness about Down syndrome.

PO Box 782736
Wichita KS 67278-2736
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President:  Rebecca McCaulley

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