Sunday, April 22, 2012

Where to Start-Kentucky


First Steps is a statewide early intervention system that provides services to children with developmental disabilities from birth to age 3 and their families. First Steps is Kentucky's response to the federal Infant-Toddler Program. First Steps offers comprehensive services through a variety of community agencies and service disciplines and is administered by the Department for Public Health in the Cabinet for Health and Family Services.

Anyone can refer a child for First Steps services by calling
877-417-8377 or 877-41 STEPS.

Department for Public Health
275 E. Main St., HS2W-C
Frankfort, KY 40621

Local Providers (This is a small list of available options):

Cardinal Hill Rehabilitation Hospital
Versailles Road
Lexington, KY 40504
(859) 254-5701

Cardinal Hill of Northern Kentucky
31 Spiral Drive
Florence, KY 41042
(859) 525-1128

Cardinal Hill Rehabilitation Center/Easter Seals of Louisville
9810 Bluegrass Parkway
Louisville, KY 40299
(502) 584-9781
Toll Free 1-888-584-9781
TDD (502) 568-1229


Early Head Start expands the benefits of Head Start to low-income families with children under age three and to pregnant women. The Head Start Family Income Guidelines for 2004 are available at:

Children in foster care or from families receiving public assistance (TANF or SSI) are eligible for Head Start and Early Head Start services regardless of income.

Ten percent of enrollments are offered to children with disabilities. Children who come from families with slightly higher income may be able to participate in Head Start when space is available. Your local program can discuss this with you.

This link provides information on how to get your child into Head Start or Early Head Start.

To find a local Head Start or Early Head Start program in your area, use the on-line national Head Start Program Search Tool at:
If you are ineligible for Head Start, the Child Care Aware program can help you in locating other child care services in your community. To find the local child care resource and referral agency, please contact:

Child Care Aware
Toll-free: 800-424-2246s
Web site:

Easter Seals serves children and adults with disabilities and special needs with services designed to meet their individual needs. Easter Seals also includes families as active members of any therapy program, and offers the support families need.

Easter Seals of Northern Kentucky

31 Spiral Drive
Florence, KY 41042
859 491-1171

Web Site: For services offered and additional information

Easter Seals Kentucky
Cardinal Hill Rehabilitation Hospital
2050 Versailles Road
Lexington, KY 40504-1499
Phone: 859 254-5701 Toll Free Phone: 800 888-5377TTY: 859 254-5701
Web Site: For services offered and additional information

Easter Seals West Kentucky Child Development Cente
801 North 29th Street
Paducah, KY 42001
Phone: 270 444-9687 Web Site: For services offered and additional information
Visit for more information on Easter Seals.

The Home and Community Based (HCB) Waiver program provides Medicaid coverage to individuals who are aged, or disabled, and who may, without these services, be admitted to a nursing facility. These individuals must meet nursing facility level of care to be eligible to participate in the HCB Waiver program.

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

The Weisskopf Center for the Evaluation of Children (WCEC) in the Department of Pediatrics at the University of Louisville, is a unique center that provides diagnostic evaluations to infants and children with, or at risk for, developmental disabilities, congenital anomalies, genetic disorders, autism, organic behavior disorders (ADHD) and learning disabilities, as well as genetic counseling to adults.

The WCEC serves as a demonstrative model for the provision of evaluation and treatment services to children and their families with autism, other developmental disabilities, and genetic disorders.

Contact Information:
571 S. Floyd St.
Louisville, KY 40202
Phone (502-852-5331
Fax (502) 852-0955

DSACK is a non-profit volunteer organization comprised of families and professionals who are interested in bettering the lives of people with Down syndrome, and helping them to realize their life aspirations. DSACK’s ultimate goal is to provide support, resources, and opportunities for individuals with Down syndrome and their families.


Down Syndrome of Louisville, Inc. (DSL) is a non-profit organization founded in 1977 by Mary Carter, an early childhood educator who established the first Early Intervention Education program for children with Down syndrome in Kentucky. Our grassroots organization grew with parent support to incorporate in 1991 to offer services for individuals with Down syndrome of all ages.

ADDRESS: 5001 South Hurstbourne Parkway, Louisville, KY 40291
PHONE: 502.495.5088
FAX: 502.495.5038
BUSINESS HOURS: 9:00am-7:00pm, Monday-Thursday & 9:00am-5:00pm on Friday, and by appointment.


MISSION is to enhance the quality of life for individuals with Down syndrome and their families by providing support, information, education, resources, networking, and activities, while advocating in the community and state.

PO Box 1611
Bowling Green, KY 42101

GRADSA’s mission is to enable families enriched with the Down syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down syndrome. They are located in Owensboro, Kentucky, and serve the counties of Daviess, Hancock, Henderson, McLean, Ohio, Union, and Webster.
P.O. Box 2031
Owensboro, KY 42302 

At Stewart Home School, our student-athletes can participate in a variety of sports, including basketball, bowling, golf, cheerleading, equestrian, skiing, snowshoeing, soccer, softball, swimming, track & field and weightlifting. Playing a sport at Stewart Home School is a great way to have fun, make friends and stay healthy!
For general information:
For admissions information email Sandra Bell:
To make travel arrangements for your Stewart Home School student:

4200 Lawrenceburg Rd.
Frankfort, KY 40601

Ups N Downs of Western Kentucky mission is to promote public awareness and acceptance of individuals with Down syndrome by providing information, resources and support in our community.
801 N. 29th St.
Paducah, KY 42001

ph: 270-444-9687
alt: 270-564-0949


The Arc of Kentucky holds a Vision of a positive future for individuals with intellectual and developmental disabilities , a future of communities with services and supports that will promote lives of value for Kentuckians with intellectual and developmental disabilities. The Arc of Kentucky believes that individuals with intellectual and developmental disabilities are contributing members of schools, work places, churches, synagogues, neighborhoods, and their communities. The Arc values services and supports that enhance the quality of life through interdependence, friendship, choice, and respect for individuals with intellectual and developmental disabilities.


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