Sunday, April 1, 2012

Where to Start-Alabama

ALABAMA EARLY INTERVENTION PROGRAM

A division of the Alabama Department of Rehabilitation Services, Early Intervention provides supports and services for infants and toddlers birth though age 2 (0 to 36 months of age) who have a medical diagnosis that can delay normal development or who have a developmental delay causing the child to not meet developmental milestones. Early intervention supports and services focus on teaching the parents and other caregivers ways to help the child learn and participate in everyday activities.
If you are concerned about your child's development, call the statewide, toll-free Early Intervention Child Find number, 1-800-543-3098 (or TTY 800-499-1816). Spanish-speaking families may call 1-866-450-2838.

http://www.rehab.state.al.us/individuals-and-families/early-intervention

EASTER SEALS:

Easter Seals provides exceptional services to ensure that all people with disabilities have equal opportunities to live, learn, work and play.

5960 East Shirley Lane
Montgomery, AL 36117
334.395.4489 Phone
334.395.4492 Fax
800.388.7325 Toll Free

http://alabama.easterseals.com/site/PageServer?pagename=ALDR_homepage


MEDICAID WAIVER PROGRAM:

This program offers certain home and community based services. These services are available for a limited number of eligible individuals with developmental disabilities. It can take years after you apply to obtain this service. You must qualify and be placed on a waiting list for a slot to open. These services include: case management, crisis abatement, residential habilitation, consultation services, specialized medical supplies (not paid for by insurance), physical adaption services, and extended prescription services. It is recommended you begin this application process early to be placed on a waiting list after eligibility is determined. 
http://www.medicaid.state.al.us/programs/long_term_care/ltc_waiver_services.aspx


ALABAMA MEDICAID AGENCY
The Alabama Medicaid Agency (AMA) is a state/federal program that pays for medical and long-term care services for low-income pregnant women, children, certain people on Medicare, disabled individuals and nursing home residents. The individuals must meet certain income and other requirements.
http://www.qualishealth.org/patients-families/alabama-medicaid


TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

ALABAMA DEPARTMENT OF GENETICS:

Research programs focus on the mechanisms, diagnosis, and treatment of both rare and common genetic disorders as well as bioinformatics and systems biology.

Clinical/Patient Care:Phone: 205.934.4983 (To reach the clinic or make an appointment)TOLL FREE: 1.866.UAB.4DNA (1.866.822.4362)
Fax: 205.975.6389

http://medicine.uab.edu/genetics/

http://www.rehab.state.al.us/docs/crs/geneticsclinic.pdf?sfvrsn=0
ALABAMA DOWN SYNDROME ASSOCIATIONS

1919 Oxmoor Road No. 416
Birmingham, Alabama 35209
Phone: 205-988-0810
http://www.downsyndromealabama.org/


NORTH ALABAMA DOWN SYNDROME SOCIETY
Athens, AL
Phone 256-771-1547
DOWN SYNDROME SOCIETY OF MOBILE COUNTY
10 Westminster Way
Mobile, AL 36608-2821
Phone: 251-342-3122
Fax: 251-344-6322Monday - Friday:
8:00 am - 5:00 pm CST
http://www.dssmc.com/


MONTGOMERY AREA DOWN SYNDROME OUTREACH GROUP
PO Box 681474
Prattville AL 681474
Voice Mail (334) 356-9048
B.U.D.S. (BRINGING UP DOWN SYNDROME)
B.U.D.S. is a non-profit organization that was started in 2003 that benefits anyone in North Alabama that is impacted by Down syndrome.

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