Where to Start-Maryland

MARYLAND EARLY INTERVENTION PROGRAM


The ECIE Branch includes the Maryland Infants and Toddlers Program and Preschool Special Education Services for children with disabilities age birth through five and their families. On behalf of the Division of Special Education/Early Intervention Services, we invite parents, service providers, administrators, advocates and other stakeholders to join us in sharing resources and information to support young children with disabilities and their families.

http://www.marylandpublicschools.org/MSDE/divisions/earlyinterv/infant_toddlers


EARLY CHILDHOOD GATEWAY

This resource is developed and maintained through a partnership between the Maryland State Department of Education, Division of Special Education/Early Intervention Services and the Johns Hopkins University Center for Technology in Education, and supports the work of the Maryland Infants and Toddlers Program/Preschool Services Branch.
Through the Gateway you are able to access sections with resources dedicated to improving services for families with young children with disabilities.

http://www.mdecgateway.org/home


FAMILY NETWORKS

Maryland's comprehensive online resource for disability-related information and supports. Search for resources, information, and ideas on issues ranging from early intervention and education to employment and aging services.

http://www.family-networks.org/Home.shtml

EASTER SEALS:

Easter Seals Delaware and Maryland's Eastern Shore provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities.


SALISBURY, MD
Get Directions1336 Belmont Ave, Suite 502
Salisbury, MD 21804-4500
410-546-2894 phone
410-546-4913 fax
http://de.easterseals.com/site/PageServer?pagename=DMDR_homepage

MEDICAID WAIVER PROGRAM:

Autism Waiver

240-777-1216 (V) 240-777-1217 (TTY) 1-866-417-3480 (Registry)

The Maryland State Department of Education administers the Autism Waiver, targeted to children ages 1 through the end of the semester that the child turns 21. As a part of determining eligibility, a child must be diagnosed with Autism Spectrum Disorder, meet an Intermediate Care Facility for the Mental Retarded Level of Care, not be enrolled in any other waiver, and have an Individualized Educational Program (IEP) or Individualized Family Service Plan (IFSP) and receive at least 15 hours of special education and related services per week. The services provided under the Autism Waiver are respite care, family training, environmental accessibility adaptations, supported employment, day habilitation, residential habilitation, and targeted case management.

Community Pathways / New Directions Waiver

410-767-5636 (V) 301-362-5100 (V)

Community Pathways continues to cover services such as residential, community supported living arrangement (CSLA), and day and supported employment services. Additionally, it covers Family and Individuals Support Services for eligible individuals. New Directions is for people living in their own homes or with their families. It will be available to people in all parts of the State. Everyone in New Directions will have an Individual Budget. With assistance from a Fiscal Management Service (FMS) and a person called a Support Broker, the individual will manage their budget, hire and supervise their own staff and make decisions about how their services are provided. The FMS will pay bills, take care of tax paperwork, and provide monthly budget statements. The Support Broker will be someone the person trusts to help them navigate the system, help them with staff and act as an advocate. The Maryland Medicaid Home and Community-Based Service (HCBS) Waiver is a way for the Developmental Disabilities Administration (DDA) to receive matching federal dollars for funds spent by the DDA on community services provided to Medicaid-eligible individuals without that person having to enter an institution. The waiver for individuals with developmental disabilities supports the development of home and community-based alternatives to placing individuals in institutions operated by the DDA or in out-of-state institutions. Additionally, it makes home and community-based services available to individuals who would otherwise qualify for Medicaid only if they were in an institutional setting.

Living at Home Waiver for Persons with a Physical Disability
E-mail: brosencrantz@coordinatingcenter.org	410-767-7639 (V) 1-800-332-6327 (Toll Free) 1-800-925-4434 (TTY)
The Maryland Department of Health and Mental Hygiene administers the Maryland Community Choice or Living at Home Waiver that provides services for those eligible individuals that meet a nursing home level of care and are between the ages of 21 and 65 years of age. This waiver is designed to provide consumer-directed personal assistance services for adults with physical disabilities in their own home. Waiver services include attendant care, administrative case management, family and/or consumer training, skilled nursing supervision, personal emergency response systems, environmental accessibility adaptations, and occupational and speech/language therapies. Persons receiving Medicaid and living for at least 30 days in a long term care facility are automatically eligible for the Living at Home Waiver. If the person receives both Medicaid and Medicare the wait is at least 60 days before being able to apply for waiver services.

Model Waiver for Disabled Children
E-mail: bbernstein@coordinatingcenter.org	410-987-1048 (V) 301-621-7830 (V)
This waiver targets medically fragile individuals including technology dependent individuals who, before the age of 22, would otherwise be hospitalized and are certified as needing hospital or nursing home level of care. Through the waiver, services are provided to enable medically fragile children to live and be cared for at home rather than in a hospital. Model Waiver services include case management, private duty nursing, shift home health aide assistance, physician participation in the Plan of Care development and durable medical equipment and supplies. Individuals that would like to apply for Model Waiver Services must contact the Coordinating Center for Home and Community Care, Inc., a case management organization.

http://www.montgomerycountymd.gov/hhstmpl.asp?url=/content/hhs/ads/DisabilityNetworkDirectory/M/medicaidwaivers.asp

 

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

GENETICS TESTING & COUNSELING AT UNIVERSITY OF MARYLAND CHILDREN'S HOSPITAL

The Division of Human Genetics provides comprehensive inpatient, outpatient and laboratory genetic services to patients of all ages, including a network of state-wide outreach clinics.
Services consist of:

• Evaluation, counseling and ongoing care for patients with genetic diseases, birth defects and multiple malformation syndromes
• State-of-the-art cytogenetic, biochemical and DNA testing

University of Maryland Medical Center
22. S. Greene St.
Baltimore, MD 21201-1595
800-492-5538
http://www.umm.edu/pediatrics/gen_phys.htm

 

DOWN SYNDROME NETWORK OF MONTGOMERY COUNTY

The mission of the Down Syndrome Network of Montgomery County is to empower and support individuals with Down syndrome, their families and the community through education, information, public awareness and advocacy.

 

PO Box 10416

Rockville, Maryland 20849

(301) 979-1112
info@dsnmc.org
www.dsnmc.org

http://www.dsnmc.org/

 

F.R.I.E.N.D.S.

F.R.I.E.N.D.S., or Family Resource, Information & Education Network for Down Syndrome is a non-profit group of parents re-formed in 1999 in Frederick County, Maryland to:

• Be a support and resource group for expectant parents, new parents and extended families of babies born with Down Syndrome;

• Provide age-appropriate activities for our children and their friends;

• Advocate for community awareness and acceptance;

• Have quarterly meetings with professional speakers experienced in issues relative to Down Syndrome;

• Meet informally to share the joys and challenges of parenting.

http://friendsoffredco.org/

 

CHESAPEAKE DOWN SYNDROME PARENT GROUP

The purpose of the Chesapeake Down Syndrome Parent Group, Inc. is to serve families of and persons with Down syndrome by providing information and support.

P.O. Box 20127 Baltimore, MD 21284-0127

Telephone: 410.321.5434 - E-Mail: info@cdspg.org

http://www.cdspg.info/cdspg/index.php?option=com_content&view=featured&Itemid=102

 

PARENTS OF CHILDREN WITH DOWN SYNDROME (PODS) OF PRINCE GEORGE'S COUNTY

PODS Phone: 301-925-7050, Ext. 653

PODS Email: parentcoordinator@podsofpgc.org

ANGELS FOREVER UP

Angels Forever Up! represents a group of parents and professionals in
Southern Maryland who share a vision for persons with Down syndrome.
PO Box 868 | Waldorf Md 20604
(240) 412-1922

Charles County
Infants and toddlers program
June Castro. (301) 609-6808Calvert County
Infants and toddlers program.
Mon-Fri 8.00am - 3.30pm (410) 414-7034St. Marys County
Infants and toddlers program
(301) 475-4393

http://angelsforeverup.org/index.shtml

THE ARC OF MARYLAND

The Arc of Maryland is changing minds and changing lives for individuals and families living with developmental disability. We welcome you to read our stories, learn about our programs, find a chapter near you and get involved in making Maryland a better place to live for all.

Local Chapters

The Arc of Maryland 49 Old Solomons Island Road, Ste 205 Annapolis, Maryland 21401 410-571-9320 (Annapolis) 410-974-6139 (Baltimore) 410-974-6021 Fax www.thearcmd.org The Arc of Central Chesapeake Region 931 Spa Road Annapolis, MD 21401 410-269-1883 443-557-0194 (Glen Burnie Office) 410-269-0091 Fax Website: www.thearcccr.org The Arc of Baltimore 7215 York Road Baltimore, MD 21212 410-296-2272 410-296-2394 Fax Website: www.arcofbaltimore.org The Arc of Carroll County 180 Kriders Church Road Westminster, MD 21158 410-848-4124 or 876-2422 (Balt) 410-876-5317 Fax Website: www.arccarroll.com The Arc of Frederick County 620-A Research Drive Frederick, MD 21703 301-663-0909 301-695-6454 Fax Website: www.arcfc.org The Arc Northern Chesapeake Region 4513 Old Philadelphia Road Aberdeen, MD 21001 410-836-7177 or 879-6785 410-893-3909 Fax Website: www.arcncr.org

The Arc of Howard County 11735 Homewood Road Ellicott City, MD 21042 410-730-0638 410-730-1436 Fax Website: www.archoward.org The Arc of Montgomery County 11600 Nebel Street Rockville, MD 20852 301-984-5777 301-816-2429 Fax Website: www.arcmontmd.org The Arc of Prince George's County 1401 McCormick Drive Largo, MD 20774 301-925-7050 301-925-4387 Fax Website: www.thearcofpgc.org The Arc of Southern Maryland Post Office Box 1860 Prince Frederick, MD 20678 410-535-2413 410-535-1314 Fax Website: www.arcsomd.org The Arc of Washington County 820 Florida Avenue Hagerstown, MD 21740 301-733-3550 301-745-5573 Fax Website: www.arcwc-md.org The Arc of Maryland, Easton Office 8626 Brooks Drive, Suite 305 Easton, MD 21601 410-770-9897 410-820-9106 Fax Website: www.thearcmd.org