Saturday, May 12, 2012

Where to Start-Virginia



VIRGINIA EARLY INTERVENTION PROGRAM

The Infant & Toddler Connection of Virginia provides early intervention supports and services to infants and toddlers from birth through age two who are not developing as expected or who have a medical condition that can delay normal development. Early intervention supports and services focus on increasing the child's participation in family and community activities that are important to the family. In addition, supports and services focus on helping parents and other caregivers know how to find ways to help the child learn during everyday activities. These supports and services are available for all eligible children and their families regardless of the family's ability to pay.

Virginia Department of Behavioral Health and Developmental Services
1220 Bank Street, 9th Floor
P.O. Box 1797
Richmond, Virginia 23219-1797

Main Office: (804) 786-3710

http://www.infantva.org/


The Virginia Early Intervention Professional Development Center was created as part of Virginia’s Comprehensive System of Personnel Development (CSPD) and is maintained by the Integrated Training Collaborative and the Partnership for People with Disabilities. 

http://www.eipd.vcu.edu/




EASTER SEALS

Their mission is to create opportunities, promote individual choice, and change the lives of children and adults with disabilities by maximizing their individual potential to live, learn and work in their communities. In pursuit of that mission, four core values guide their efforts: Integrity, Respect, Responsibility and Innovation. By utilizing these core values in all they do, they are assured that the personal outcomes of those they serve stay at the forefront of their daily activities.

 info@va.eastersealsucp.com or call 1-800-662-7119
http://nc.eastersealsucp.com/services/







MEDICAID WAIVER PROGRAM:


VA Technology Assisted (4149.R02.00)
Provides personal care, respite, assistive technology, environmental mods, PERS, private duty nursing, transition for aged individuals 65 yrs - no max age and disabled individuals 0 -64 yrs
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/VA4149R0200.zip

VA Individual & Family DD Support (0358.R02.00)
Provides day support, in-home residential, personal care, prevocational, respite care, supported employment - group/individual, services facilitation, adult companion, assistive technology, crisis stablization, crisis supervision, environmental mods, family/caregiver training, PERS, skilled/private duty nursing, therapeutic consultation, transition for individuals w/ MR/DD, autism and DD ages 6 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/VA0358R0200.zip

VA Intellectual Disability (0372.R02.00)
Provides day support, personal assistance, prevocational, residential support, respite, supported employment, consumer directed services facilitation, assistive technology, companion services, crisis stablization, crisis supervision, environmental mods, PERS, skilled nursing, therapeutic consultation, transition for individuals w/MR ages 0 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/VA0372R0200.zip






TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)



Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.









GENETICS/M.D. SUPPORT IN VIRGINA

Kluge Children's Rehab. Center
Univ. of Virginia Children's Hospital
2270 Ivy Road
Charlottesville VA
Phone: 804-924-5161

Developmental Pediatrics, Children's Hospital
of the Kings Daughter
Eastern Virginia Medical School
601 Children's Lane
Norfolk, VA
Phone: 757-668-7473






DOWN SYNDROME ASSOCIATION OF C VIRGINIA

3628 Ridgecroft Drive,
Lynchburg, VA 24503
434-401-0788



DOWN SYNDROME ASSOCIATION OF GREATER RICHMOND

The Down Syndrome Association of Greater Richmond is a 501(c)3 nonprofit organization that strives to improve the quality of life for individuals with Down syndrome and their families by providing access to current and accurate information on Down syndrome and by fostering programs that focus on education, community services, public awareness, medical issues, research, advocacy, legal issues and parenting.

P.O. Box 70789,
Richmond, VA 23255
804-796-5141
dsagrinfo@yahoo.com
www.dsagr.com




DOWN SYNDROME ASSOCIATION OF HAMPTON ROADS

The Down Syndrome Association of Hampton Roads is a non-profit charitable organization that supports the families and persons with Down syndrome. Our mission is to enhance the lives of individuals with Down syndrome, helping them reach their full potential by providing family support, education, and social opportunities in Southeast Virginia and Hampton Roads.  
The Endependence Center,
6300 East Virginia Beach Boulevard,
Norfolk, VA 23502
757-466-3696
dsahr@verizon.net
andreaanderson12@yahoo.com
www.dsahr.org



DOWN SYNDROME ASSOCIATION OF NORTH VIRGINIA

The mission of this organization shall be to ensure that all individuals with Down syndrome and their families receive the support necessary to participate in, contribute to and achieve fulfillment of life in their community.

2755 Hartland Road, Suite 200
Falls Church, VA 22043

703-621-7129

www.dsanv.org

Contact through website at http://www.dsanv.org/base.cgim?template=contact

DOWN SYNDROME ASSOCIATION OF ROANOKE

The Down Syndrome Association of Roanoke, VA is made up of families, friends, professionals, and individuals with Down syndrome in Southwestern Virginia.

P.O. Box 4683,
Roanoke, VA 24015
540-772-6460
info@dsagr.org
www.dsar.org



DOWN SYNDROME ASSOCIATION OF THE NEW RIVER VALLEY

P.O. Box 2333,
Christiansburg, VA 24068
540-651-6505
twilliams@swva.net




DOWN SYNDROME ASSOCIATION OF THE VIRGINIA PENINSULA


Our organization is a growing network of families and friends interested in sharing their successes and challenges. We offer New Parent Welcome Information, outreach to area hospitals, monthly meetings and social events.

Down Syndrome Association of Virginia Peninsula has also offered seminars and training sessions of newer approaches to speech and language success to the greater community of educators, therapists and families.

P.O. Box 1237,
Yorktown, VA 23607
757-890-3013
757-817-0654
dsavp21@yahoo.com
http://www.dsavp.org/





DOWN SYNDROME SUPPORT GROUP OF THE NORTH SHENANDOAH VALLEY

Burnt Factory United Methodist Church,
1943 Jordan Springs Road,
Stephenson, VA 22656
540-550-5269
amy_pt@comcast.net



HAIDEN HOUSE FOUNDATION



P.O. Box 1081,
Newport News, VA 23601
910-459-9439





UVA-DOWN SYNDROME ALLIANCE

Newcomb Hall,
P.O. Box 400715, S.A.C. Box 204,
Charlottesville, VA 22903
434-906-5547
msb7t@virginia.edu

2 comments:

  1. Please contact the Down Syndrome Association of Northern VA through their website. The information you have on this site for DSANV is wrong.

    ReplyDelete
  2. Information for Down Syndrome Association for Northern VA is updated. Thank you.

    ReplyDelete