Where to Start-North Dakota

NORTH DAKOTA EARLY INTERVENTION PROGRAM


Early intervention means early assistance. This program is designed to identify children at risk in the earliest stages, when the right help can make all the difference. If you know a child who may benefit from this program, please contact the Department of Human Services.
To find services near you, click here. There are also helpful links listed on the left side of this page.

http://www.nd.gov/dhs/services/disabilities/earlyintervention/

NORTH DAKOTA K.I.D.S. INFANT DEVELOPEMENT PROGRAM

The KIDS program of North Dakota is an early intervention service providing home-based, family focused services. We help identify learning opportunities and provide support, instruction, information, and resources so parents and caregivers can help the child learn and develop to their full potential.

218 NW 4th Street

Devils Lake, ND 58301

701-662-6324

http://www.kidsprogramnd.com/

EASTER SEALS:

Easter Seals Goodwill of North Dakota, Inc. is a leading organization in supporting children, adults, and families to have equal opportunities to live, learn, work, and play in their communities.

Bismarck-Mandan
211 Collins Ave
P.O. Box 1206
Mandan ND 59554-7206
Office Hours
Monday - Friday 8:00 am - 4:30 pm
Office: 701-663-6828 ext. 0
Fax: 701-663-6859
Nationwide: 800-247-0698
http://esgwnd.easterseals.com



 

MEDICAID WAIVER PROGRAM:

ND DD Self-Directed Supports (0421.R01.00)
Provides extended services, behavioral consultation, environmental supports/mods, equipment and supplies, in home supports, transportation costs for financially responsible caregiver for individuals with MR, DD ages 3 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/ND0421R0100.zip


ND Traditional MR DD HCBS (0037.R06.00)
Provides adult day health, day hab, extended services, homemaker, residential hab, extended home health care, adult family foster care, behavioral consultation, environmental supports/mods, equipment and supplies, in home supports, infant development, parenting support, transportation costs for financially responsible caregiver for individual w/MR DD ages 0 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/ND0037R0600.zip

ND Medicaid Waiver for Medically Fragile Children (0568.R01.00)
Provides institutional respite, program management or case management, dietary supplements, environmental mods, equipment and supplies, in-home supports, individual and family counseling, transportation for medically fragile individuals ages 3-17

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/ND0568R0100.zip

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

GENETICS SUPPORT IN MONTANA

The mission of the Division of Medical Genetics is to offer information, diagnostic services, education, and support about current and future genetic health concerns for North Dakota patients and families. Our comprehensive statewide clinical genetics/birth defects program provides and utilizes an extensive network of services both locally and nationally. The Division of Medical Genetics educates undergraduates, graduates, and practicing professionals in the areas of medical science and the health and human services. It also presents educational programs throughout the surrounding communities. The Division advances biomedical knowledge through clinical research and publications.

http://www.med.und.edu/pediatrics/medical-genetics/

DESIGNER GENES OF NORTH DAKOTA


Designer Genes strives to provide support, information, education and advocacy to families and persons with Down syndrome, as well as those supporting them, their friends and professionals.

P.O. Box 515, Bismarck, ND 58502
701-258-7421
info@designergenesnd.com
www.designergenesnd.com



UP WITH DOWNS


366 Edgewater Drive, West Fargo, ND 58078
701-446-8056 (Kara)
701-261-6804 (Kristin)
karaljones@gmail.com



THE ARC OF NORTH DAKOTA

P.O. Box 12420
Grand Forks, ND 58208-2420

Website:
Phone: (701) 772-6191
Email: dsheppard@arcuv.com
http://www.thearc.org/page.aspx?pid=323