NORTH CAROLINA EARLY INTERVENTION PROGRAM
The North Carolina Early Intervention Branch (NCEI) is a part of the N.C. Division of Public Health. It is the lead agency for the N.C. Infant-Toddler Program (ITP). The Infant-Toddler Program provides supports and services for families and their children, birth to three who have special needs. Research shows that this time period is critical. It offers a window of opportunity to make a positive difference in how a child develops and learns. Eighteen Children's Developmental Services Agencies (CDSAs) across North Carolina work with local service providers to help families help their children succeed.
http://www.beearly.nc.gov/
Early Intervention Childhood Library
North Carolina’s Early Intervention-Early Childhood Library houses a large collection of print and video materials that focus on young children with special needs and those who are typically developing, their families, and recommended practices for serving them. There is also a special collection of children’s books! These materials are available for loan to professionals and parents in North Carolina.
The North Carolina Early Intervention-Early Childhood Library also houses the Partnerships for Inclusion collection of library materials that focus on quality childcare and the promotion of inclusive opportunities for young children with special needs.
http://www.ncei-eclibrary.org/aboutus_eil.cfm
Family Support Network of North Carolina
http://www.fsnnc.org/findlocal
EASTER SEALS:
Easter Seal's mission is to create opportunities, promote individual choice, and change the lives of children and adults with disabilities by maximizing their individual potential to live, learn and work in their communities. In pursuit of that mission, four core values guide their efforts: Integrity, Respect, Responsibility and Innovation. By utilizing these core values in all they do, they are assured that the personal outcomes of those they serve stay at the forefront of their daily activities.
For North Carolina inquries -- please email info@nc.eastersealsucp.com or call 1-800-662-7119; http://nc.eastersealsucp.com/
MEDICAID WAIVER PROGRAM:
NC Comprehensive Waiver (3.5) (0662.R00.00)
Provides adult day health, day supports, personal care, residential supports, respite, supported employment, agumentative communication devices, behavior consultant, crisis respite, crisis services, home and community supports, home mods, home supports, individual caregiver training and education, long term vocational supports, PERS, specialized consultative services, specialized equipment and supplies, transportation, vehicle adaptations for individuals w/autism, DD, MR ages 0 - no max age
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/NC0662R0000.zip
NC Supports Waiver (3.5) (0663.R00.00)
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/NC0663R0000.zip
NC Comprehensive Waiver (3.5) (0662.R00.00)
Provides adult day health, day supports, personal care, residential supports, respite, supported employment, agumentative communication devices, behavior consultant, crisis respite, crisis services, home and community supports, home mods, home supports, individual caregiver training and education, long term vocational supports, PERS, specialized consultative services, specialized equipment and supplies, transportation, vehicle adaptations for individuals w/autism, DD, MR ages 0 - no max age
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/NC0662R0000.zip
NC Supports Waiver (3.5) (0663.R00.00)
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/NC0663R0000.zip
TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)
Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.
Please check with your state office to see if TEFRA is offered in your state.
Please check with your state office to see if TEFRA is offered in your state.
GENETICS SUPPORT IN MONTANA
DOWN SYNDROME ASSOCIATION OF CHARLOTTE
The Down Syndrome Association of Charlotte (DSAC) is a non-profit, family support organization.The goal of the DSAC and it's families is to enable individuals with Down syndrome (Ds) to reach their full potential and become respected members of their community.
The mission of DS Association of Charlotte is to enhance the quality of life for all individuals with Ds by providing information and support to families, professionals and the community through educational and social activities.
P.O. Box 34787, Charlotte, NC 28234
704-281-4587
DS NETWORK OF GREATER GREENSBORO
The Down Syndrome Network of Greater Greensboro is a group of parents who are committed to supporting one another, sharing important information, and advocating for the very best in school and community services for children with Down syndrome.
801 Green Valley Road, Greensboro, NC 27408
336-832-6507
DS SUPPORT GROUP OF ROWAN COUNTRY
308 Dana Dr., Salisbury, NC 28147
704-639-1565
NETWORK OF DOWN SYNDROME SUPPORTERS
8812 McCartney Way, Suite 1108, Charlotte, NC 28216
704-392-9748
PIEDMONT DOWN SYNDROME SUPPORT NETWORK
The non-profit Piedmont Down Syndrome Support Group provides support and information to parents of children with Down syndrome in the Piedmont area. Their aim is to support each other and enrich the lives of our children so they may reach their fullest potential. The group meets periodically to encourage and strengthen each other, by striving to increase our knowledge, understanding and hope about Down syndrome. They host guest speakers and share new information, ideas and advice to become better advocates to our children.
4045 University Parkway, Winston Salem, NC 27106
4045 University Parkway, Winston Salem, NC 27106
336-714-9120
TRI COUNTY DOWN SYNDROME GROUP
P.O. Box 3396, Wilmington, NC 28406
910-262-8739
TRIANGLE DOWN SYNDROME NETWORK
Triangle Down Syndrome Network exists to support and connect families of children with Down syndrome by organizing and promoting activities. TDSN is striving to make a presence in the community. We want to ensure all people with Down syndrome have happy and productive lives. Located in central North Carolina, serving families in Wake, Durham and Orange and surrounding counties.
P.O. Box 37305, Raleigh, NC 27627
919-788-3646
WESTERN NORTH CAROLINA DS ALLIANCE
The mission of the Western North Carolina Down Syndrome Alliance is to help create a community that will be educated, supportive and inclusive of individuals with Down Syndrome.
P.O. Box 421, Weaverville, NC 28787
828-628-3138
ANNA'S ANGELS
On June 13, 2001, their daughter, Anna, was born with Down syndrome, a chromosomal abnormality which occurs once in approximately 733 live births. In November 2002, they received the devastating news that Anna had Acute Myeloid Leukemia (AML). They had known from her birth that she ran a higher risk to contract this type of cancer. Through the difficult time of chemotherapy and recovery we got to know how incredibly strong our little girl is and we also learned a lot about both Down syndrome and AML. They were amazed at how little is known about the two conditions and how they are related.
UNITED WAY 2-1-1 (INFORMATION AND REFERRAL SERVICES)
This service provides comprehensive data and referral assistance for nonprofit and government resources in the NC counties of Mecklenburg, Cabarrus, Union, and Anson counties and in or near the city of Mooresville, NC. If you are calling on a landline or residential phone in one of those counties, dial 2-1-1. If that fails, if you are calling on a cell phone, or if you are calling from anywhere else in NC, call 866/744-7778. For calls from out of NC, use their local number of 704/377-1100. Although they are open 24 hours a day, you may wish to call weekdays from 8 a.m. to 7 p.m. for non-emergency questions.
THE ARC OF NORTH CAROLINA
The Arc of North Carolina has been providing advocacy and services to people with intellectual and developmental disabilities since 1953. The Arc believes that all people with intellectual and developmental disabilities have strengths, abilities and inherent value, are equal before the law, and must be treated with dignity and respect.
http://www.arcnc.org/
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