Where to Start-New Jersey

NEW JERSEY EARLY INTERVENTION PROGRAM


Mission is to enhance the capacity of families to meet the developmental and health related needs of children birth to age three who have delays or disabilities by providing quality
services and support to families and their children.

Families from diverse racial, cultural, and socio-economic backgrounds will be involved in decision making at every level of the design, implementation, and evaluation of
the Early Intervention System.
http://www.njeis.org/


The New Jersey Early Intervention System (NJEIS), under the Division of Family Health Services, implements New Jersey's statewide system of services for infants and toddlers, birth to age three, with developmental delays or disabilities, and their families. The Department of Health and Senior Services is appointed by the Governor as the state lead agency for the Early Intervention System.
369 South Warren Street
Trenton, NJ 08608-2308
609-292-4087
http://www.nj.gov/health/fhs/eis/


The mission of the New Jersey Early Intervention System is to enhance the capacity of families to meet the developmental and health-related needs of children birth to age three who have delays or disabilities by providing quality services and support to families and their children. Families from diverse racial, cultural and socio-economic backgrounds will be involved in decision-making at every level of the design, implementation and evaluation of the Early Intervention System.

1044 South Route 73, Suite A, Berlin, NJ 08009 ~ Phone: 856-768-6747
http://www.snjreic.org/

EASTER SEALS:

Enabling individuals with disabilities or special needs and their families to live, learn, work and play in their communities with equality, dignity and independence.

25 Kennedy Blvd. Suite 600
East Brunswick, New Jersey 08816
732.257.6662
http://nj.easterseals.com/site/PageServer?pagename=NJDR_homepage


MEDICAID WAIVER PROGRAM:

New Jersey Care 2000+
Managed care program that provides comprehensive medical and social services to children with special healthcare needs.


New Jersey Family Care Waiver NJ-03.R04
The State of New Jersey operates this managed care program which continues to outreach and provide education about Medicaid managed care to all 21 counties throughout the State. It is designed to improve access and availability of health care services for individuals who historically have experienced difficulty in finding care. Populations included under this waiver consist of children with special needs such as blindness or disability, and children in foster care.

NJ Renewal Waiver (0031.R01.00)
Provides case management, day hab, individual supports, respite, supported employment, community transition, support coordination, assistive technology devices, environmental and vehicle adaptations, PERS, transportation for individuals w/MR, DD, autism ages 0 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/NJ0031R0100.zip

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

GENETICS/M.D. SUPPORT IN NEW JERSEY

 

Developmental Disabilities Clinic Goryeb Children's Hospital
100 Madison Avenue
Morristown, NJ
Phone: 973-971-5227

 

Child DevelopmentK. Hovnanian Children's Hospital
1944 Rte. 33 Suite 101-A
Neptune, NJ
Phone: 732-776-4178

 

The Judy Center for Down Syndrome
Hackensack University Medical Center
30 Prospect Ave
Hackensack, NJ
Phone: 201-996-JUDY

 

Developmental Disabilities Health Alliance
1285 Broad Street
Bloomfield, NJ
Phone: 973-338-4200

 

21 DOWN

Mission is to create awareness and acceptance of people with developmental disabilities while providing information, support and community events for their families.

P.O. Box 205,

Northfield, NJ 08225
609-390-5645
info@21down.org
www.21down.org

ANNA FOUNDATION FOR INCLUSION EDUCATION

P.O. Box 1212,

Medford, NJ 08055
609-458-1439
lrubright@affie.org
Natasha@affie.org
www.affie.org

BILLY'S BUDDIES

Our mission at the Wyckoff Family YMCA is to reach out to the residents of northern Bergen County and provide services and activities which help people regardless of age, sex, race or religion to develop in spirit, mind, and body.

Wyckoff Family YMCA,

691 Wyckoff Avenue,

Wyckoff, NJ 07481

201-891-2081
jenk@wyckoffymca.org
kathye@wykoffymca.org
www.wyckoffymca.org

Buddy Walk® OF SOUTH PLAINFIELD

The Buddy Walk^® was established in 1995 by the National Down Syndrome Society to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclusion of people with Down syndrome. Today, the Buddy Walk program is supported nationally by NDSS and organized at the local level by parent support groups, schools and other organizations and individuals.

133 Oakmanor Parkway,

South Plainfield, NJ 07080
908-222-9083

micheleboth@hotmail.com
www.buddywalkofsouthplainfield.com

BUDS (BRINGING UP DOWN SYNDROME)

The purpose of BUDS, is to help families of children with Down syndrome address issues associated with raising a child with Down syndrome.

1115 Yardley Road,

Cherry Hill, NJ 08034
856-985-5885
information@bringingupdownsyndrome.org
www.bringingupdownsyndrome.org

CENTRAL NJ DS PARENT ADVOCACY GROUP
 
563 Greenbrook Road,

North Plainfield, NJ 07063
908-756-6774
908-222-1281
sjdodd@aol.com
janetcostello@verizon.net
http://dsparentgroup.com/NJEarlyIntervention.aspx

DS ASSOCIATION OF CENTRAL NJ

Down Syndrome Association of Central New Jersey is a non-profit parent support group, established to assist families of children and adults with Down syndrome.

180 Ewingville Road,

Ewing, NJ 08638
866-369-6796
dsacnj@arcmercer.org
www.dsacnj.org

DOWN SYNDROMNE CONGRESS OF NORTHERN NJ

18 Daniel Drive,

East Hanover, NJ 07936
973-386-9458
janvitiello@aol.com

DOWN SYNDROME GROUP OF NORTHWEST NJ

DS Group of Northwest NJ is to enhance the quality of life for all individuals with Down syndrome by providing resources and support to those individuals, their families, professionals and the community.

P.O. Box 212,

Washington, NJ 07882
908-689-7525 ext.320
melissae5@hotmail.com
www.dsgnwnj.org
http://www.facebook.com/dsgnwnj

FAMILY RESOURCE ASSOCIATES

Family Resource Associates (FRA) is a New Jersey non-profit agency located in Shrewsbury, helping children, adolescents and people of all ages with disAbilities to reach their fullest potential. FRA connects individuals to independence through modern therapies and advanced technology. Acknowledging the powerful influence of the family, we remain committed to them by offering both support and education.

35 Haddon Avenue,

Shrewsbury, NJ 07702-4007
732-747-5310
info@frainc.org
www.frainc.org

KIIDS (KNOWLEDGE AND INFORMATION ABOUT INDIVIDUALS WITH DOWN SYNDROME

KIIDS is a non-profit organization based in Southern New Jersey. It was founded in 2003 by several mothers of young children with Down syndrome who met at a monthly playgroup.

Their purpose in forming KIIDS was to help support new parents of babies with Down syndrome since they all had such positive experiences in sharing their stories with one another. Their mission at KIIDS is to provide new parents of children with Down syndrome with the information and the necessary resources to help their child reach their full potential and to spread knowledge and information to medical professionals, educational professionals, and the public about Down syndrome.

Throughout the year, they have family get-togethers, host educational presentations and provide various opportunities for sharing information and support.

P.O. Box 1546,

Bellmawr, NJ 08099
terri@kiids.info
angela@kiids.info
www.kiids.info

NETWORK 21

2 Graham Avenue,

Metuchen, NJ
732-549-8468 (Rebecca)
rlboucher@hotmail.com

OUR LITTLE HERO C.O.P. ORGANIZATION

The members of the Our Little Hero, are committed to promoting acceptance, awareness, and inclusion of people with Down syndrome in our community. We recognize our responsibility to support local and national education, research, and advocacy programs. Our objective is to enhance the position of the Down syndrome community, enabling us to positively influence local and national policy and practice.

P.O. Box 441,

Mount Holly, NJ 08060
609-668-1780 (Christine)
ourlittleherocop@verizon.net
www.ourlittlehero.org

ROXBURY PARENTS FOR EXCEPTIONAL CHILDREN

P.O. Box 128,

Succasunna, NJ 07876
973-598-8400
cullens@optonline.net

BUDDY WALK OF BERGEN COUNTY

Buddy Walk of Bergen County
c/o Northern NJ Down Syndrome Alliance
PO Box 453
Wyckoff, NJ 07481

http://bergenbuddywalk.com/

THE ARC OF NEW JERSEY

985 Livingston Avenue North Brunswick, NJ 08902
Phone:: 732.246.2525 Fax:: 732.214.1834info@arcnj.org
http://www.arcnj.org/