Where to Start-Utah

UTAH EARLY INTERVENTION


The program provides early identification and developmental services for families of infants and toddlers, ages birth to three.
Some of the services offered include:

• A full assessment of a child's current health and development status.
• Service coordination among providers, programs and agencies.
• Strategies to build on family concerns, priorities, & resources (CPR).
• Developmental services: occupational therapy, physical therapy, speech language therapy, etc.

These services are provided through the coordinated effort of parents, community agencies, and a variety of professionals. Places where services are provided include Baby Watch centers, home, and community settings such as child care.

Phone:
Toll-Free: 1-800-961-4226
Local: 1-801-584-8226
Mailing Address:
Baby Watch Early Intervention
PO Box 144720
Salt Lake City, UT 84114-4720

http://www.utahbabywatch.org/




EASTER SEALS

Easter Seals provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

http://www.easterseals.com/site/PageServer?pagename=ntl_job_training_scsep_ut



MEDICAID WAIVER PROGRAM:

UT Waiver for Technology Dependent, Medically Fragile Individuals (40183.R03.00)
Provides home health aide, skilled nursing respite care, extended private duty nursing, family directed support, FMS, family support services, in-home feeding therapy for medically fragile and technology dependent individuals ages 0 - 20

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/UT40183R0300.zip


UT Community Supports Waiver for Individuals w/ID and Other Related Conditions (0158.R05.00)
Provides day supports, homemaker, personal care, residential hab, respite care-intensive, supported employment, waiver support coordination, financial management services, behavior consultation I, behavior consultation II, behavior consultation III, chore, companion services, environmental adaptations, extended living supports, family and individual training and preparation services, family training and preparation services, living start-up costs, massage therapy, personal budget assistance, PERS, professional medication monitoring, respite care-routine group, respite care-routine, respite care-weekly, specialized medical equipment/supplies/assistive technology-monthly, specialized medical equipment/supplies/assistive technology-purchase, supported living, transportation (non-medical) for individuals w/autism, MR, DD ages 0 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/UT0158R0500.zip

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

GENETICS/M.D. SUPPORT IN UTAH

Down Syndrome ClincPrimary Children's Medical Center
100 North Mario Capecchi Drive
Salt Lake City, UT
Phone: 801-662-1600




SOUTHERN UTAH DOWN SYNDROME ASSOCIATION 

1055 West Red Cliffs Drive, Suite C, #526
Washington, UT 84780
435-632-7719
james.mcfadden@sudsa.org
www.sudsa.org




UTAH ANGELS FOUNDATION

United Angels Foundation is a non-profit, parent-to-parent support group that focuses on helping parents and families adjust to the birth of a child with special needs or disabilities. As our name indicates, we view these children as Angels; and, as we support the parents and families of all children that have special needs or disabilities, we are the United Angels Foundation.

2335 South State Street, Suite 150,
Provo, UT 84606
801-319-7664
info@unitedangelsfoundation.org
www.unitedangelsfoundation.org




UTAH DOWN SYNDROME FOUNDATION

A non-profit organization established in 1977, the UTAH DOWN SYNDROME FOUNDATION provides outreach, training, support, education, information, and activities for individuals with Down syndrome, their parents and families, and the community. With chapters throughout the state, this volunteer organization has grown to become Utah’s largest support provider for the Down syndrome community.
The UDSF strives to bring families together to share experiences, challenges, goals, and dreams and to educate parents and society in understanding and appreciating the needs of individuals with Down syndrome. As parents gain knowledge, they are empowered to become better advocates for their children, thus providing them with increased opportunities to reach their highest potential.

P.O. Box 675,
Salt Lake City, UT 84110
877-499-8373
801-446-1994
info@udsf.org
www.udsf.org



THE ARC OF UTAH

(801) 364-5060

155 S 300 W Ste 201
Salt Lake City,UT84101