Where to Start-Nevada

NEVADA EARLY INTERVENTION PROGRAM

The mission of Nevada’s Early Intervention Services is to identify infants and toddlers who are at-risk for, or who have developmental delays; provide services and supports to families to meet the individualized developmental needs of their child; and facilitate the child’s learning and participation in family and community life through the partnerships of families, caregivers and service providers.

http://health.nv.gov/beis.htm

EASTER SEALS:

Easter Seals Nevada provides exceptional services to help all people with disabilities or special needs and their families become self-sufficient through direct services, education and community partnerships.

6200 West Oakey Blvd.

Las Vegas, NV 89146

Main: (702)870-7050

Fax: (702)870-7616

 

4336 Losee Road, Bldg. B, Ste. 1&2

North Las Vegas, NV 89030

Main: (702)870-7050

Fax: (702)870-7616

 

412 E. Musser Street, Suite 2

Carson City, NV 89701

Main: (775) 434-0488

Fax: (775) 434-0489

 

http://sn.easterseals.com/site/PageServer?pagename=NVCL_early_intervention

MEDICAID WAIVER PROGRAM:

NV HCBW for Persons w/MR and Related Conditions (0125.R05.00)
Provides day hab, direct services & support, prevocational, supported employment, behavioral consultation-training & intervention, community integration, counseling, direct support management, non-medical transportation, nursing, nutrition counseling for individuals w/MR ages 0 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/NV0125R0500.zip

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

GENETICS-UNIV. OF NEVADA SCHOOL OF MEDICINE

2040 W. Charleston Blvd.
Suite 401
Las Vegas, Nevada 89102
(702) 671-2200

http://www.medicine.nevada.edu/dept/Genetics/Genetics.html

DS NETWORK OF NORTHERN NEVADA


The Down Syndrome Network of Northern Nevada (DSNNN)
is a network of individuals with Down syndrome, their parents, families and friends. The mission of the DSNNN is to create a positive understanding of Down syndrome. We provide events, information, education, and awareness as we advocate for full community inclusion of people with Down syndrome and their families.

Down syndrome is the most commonly occurring genetic condition. One in every 733 births is a baby with Down syndrome. There are over 350,000 people with Down syndrome in the United States alone, accounting for 5,000 to 6,000 births a year.

316 California Avenue,
#436, Reno, NV 89509
775-828-5159
contact@dsnnn.org
dsnnninfo@gmail.com
www.dsnnn.org
http://www.facebook.com/DSNNN



DS ORGANIZATION OF SOUTHERN NEVADA


5300 Vegas Drive,
Las Vegas, NV 89108
702-648-1990
info@dsosn.org
dcline@dsosn.org
www.dsosn.org



PAHRUMP DISABILITY OUTREACH PROGRAM

PDOP was founded by two parents who have disabled children. It wasn't long after their children were diagnosed with a disability that these two parents found out that there was no local support for them here in Pahrump. There were no groups for parents or family members. There was limited information in the community regarding the disabilities.

P.O. Box 2418,
Pahrump, NV 89041
702-516-0847
staff@pdop.info
www.pdop.info

THE LILI CLAIRE FOUNDATION


The greatest wish of every expectant parent is to bring a healthy child into the world. Recent studies indicate, however, that every year, 6% of children are born with a neurogenetic condition such as Williams Syndrome, Down Syndrome, or Autism.

As a legacy to Lili, The Lili Claire Foundation helps to ease the challenges these families face by providing a unique and comprehensive blend of support services through our Lili Claire Family Resource Centers, operated in partnership with the finest university hospitals across the country.

 
The Lili Claire Foundation
3540 West Sahara Ave., #182
Las Vegas, NV 89102
Call: (702) 862-8141
Fax: (702) 862-4845



THE ARC OF NEVADA

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

3983 S. McCarran Blvd., #311
Reno, NV 89502
Website: http://www.thearcnevada.org
Phone: (800) 433-5255 Ext 3260
Email: schomberg.nicole@gmail.com