Where to Start-Texas

TEXAS EARLY INTERVENTION PROGRAM


ECI is a statewide program for families with children, birth to three, with disabilities and developmental delays. ECI supports families to help their children reach their potential through developmental services. Services are provided by a variety of local agencies and organizations across Texas.

Department of Assistive and Rehabilitative Services
4800 N. Lamar Blvd.
Austin, Texas 78756

DARS Disability Determination Services
P.O. Box 149198
Austin, TX 78714-9198

DARS.Inquiries@dars.state.tx.us

For information on

• Early childhood intervention services
• Rehabilitation services
• Services for people who are deaf or hard of hearing
• Services for people who are blind or visually impaired
• Disability determination services

1-800-628-5115 or TTY 1-866-581-9328


http://www.dars.state.tx.us/ecis/






EASTER SEALS


Easter Seals Central Texas

Easter Seals Central Texas provides exceptional services so people with disabilities and their families can fully participate in their communities.

512-478-2581 Phone
512-476-1638 Fax

Or, via regular mail:

Easter Seals Central Texas
1611 Headway Circle - Building 2
Austin, TX 78754

http://centraltx.easterseals.com

Easter Seals North Texas

Creating opportunities that advance the independence of individuals with disabilities and other special needs.

Fort Worth Center

817-332-7171 (voice)
817-332-7601 (fax)
888-617-7171 (toll-free)

Carrollton Center

972-394-8900 (voice)
972-394-6266 (fax)
888-617-7171 (toll-free)

Or, via regular mail at:

1424 Hemphill Street
Fort Worth Texas 76104

Easter Seals East Texas

Easter Seals East Texas Inc.’s mission is to provide exceptional services to ensure that all people with disabilities, special needs or functional limitations have equal opportunities to live, learn, work and play in their communities.

979-776-2872 (Bryan voice)
903-794-2705 (Texarkana voice)
979-776-1456 (Bryan fax)
903-793-1203 (Texarkana fax)
903-793-0086 (Texarkana tdd)

Or, via regular mail at:

Brazos Valley Rehabilitation Center,

1318 Memorial Drive, Bryan, TX 77802

Temple Memorial Rehabilitation Center,

1315 Walnut Street, Texarkana, TX 75501

MEDICAID WAIVER PROGRAM:

TX Medically Dependent Children Program (0181.R04.00)

Provides respite, adaptive aids, adjunct support, FMS, minor home mods, transition assistance for medically fragile individuals ages 0 - 20

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TX0181R0400.zip


TX Youth Empowerment Services (YES) (0657.R00.00)

Provides respite, adaptive aids and supports, community living supports, family supports, minor home mods, non-medical transportation, paraprofessional services, professional services, specialized psychiatric observations, supportive family-based alternatives, transitional services for individuals w/SED ages 3-18

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TX0657R0000.zip


TX HCBS Program (0110.R05.00)

Provides case management, day hab, respite, supported employment, prescription, FMS, support consultation, adaptive aids, dental treatment, minor home mods, residential assistance (foster/companion care, supervised living, residential support), skilled nursing, specialized therapies (speech and language pathology, audiology, OT, PT, dietary, behavioral supports, social work), supported home living for individuals w/MR/DD ages 0 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TX0110R0500.zip


TX Community Living Assistance & Support Services (0221.R04.00)

Provides adult day health, case management, prevocational, residential hab, respite, supported employment, adaptive aids/medical supplies, dental, OT, PT, prescriptions, skilled nursing, speech/hearing/language, FMS, support consultation, behavioral support, continued family services, minor home mods, specialized therapies, support family services, transition assistance for individuals with DD ages 0 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TX0221R0400.zip

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.


Please check with your state office to see if TEFRA is offered in your state.

GENETICS/M.D. SUPPORT IN TEXAS

 

Santa Rosa Health Care Birth Defects ClinicChildren's Hospital 519 W. Houston Street San Antonio, TX Phone: 210-704-2387	Down Syndrome Clinic Children's Medical Center of Dallas, 4th Floor 1935 Motor Street Dallas, TX Phone: 214-648-8996
Cook Children's Hospital 1300 W. Lancaster Ft. Worth, TX Phone: 817-335-3207 or 800-266-5514	Down Syndrome Clinic of Houston Texas Children's Hospital, Clinical Care Center 6621 Fannin, Suite CCC 1530 Houston, TX Phone: 832-822-3478
Children's Hospital of Austin Specialty Clinics, One Children's Place 1400 IH 35 Austin, TX Phone: 512-324-8838	Adolescent and Young Adult DS ClinicTransitional Medicine Clinic Baylor Clinic 6620 Main St., Suite 1250 Houston, TX Phone: 713-798-0216

BUDS (BETTER UNDERSTANDING OF DOWN SYNDROME)

BUDS purpose is to:

Educate, inform and support families who have loved ones with Down syndrome.

Provide support and encouragement to new parents of babies with Down syndrome.

Organize educational and social opportunities for individuals with Down syndrome and their families that help encourage social and physical development.

Give important, current information and support to our families through our quarterly newsletter, website, and e-mail updates.

Promote literacy and lifelong learning opportunities for individuals with Down syndrome of all ages.

5618 84th,
Lubbock, TX 79424
806-794-1366

buds@budsonline.net
llowe@budsonline.net
www.budsonline.net



DOWN BY THE BORDER

The mission of Down by the Border is to enhance the quality of life and provide support to persons with Down syndrome and their families through promotion of public awareness, advocacy and information sharing with a distinct goal in mind to help individuals with Down syndrome fulfull their dreams and life aspirations.

15 West Madison, Suite A,
Brownsville, TX 78520
956-541-2085

zariahzarate@yahoo.com
www.downbytheborder.org




DOWN SYNDROME ASSOCIATION OF BRAZOS VALLEY
2910 Horseback Court,
College Station, TX  77845
979-778-7010

dsabv@yahoo.com
www.downsyndromeofbcs.com



DOWN SYNDROME ASSOCIATION OF CENTRAL TX


Mission is to provide education, support, and resources to individuals with Down syndrome, their families and professionals and the community while building public awareness and acceptance of the abilities of individuals with Down Syndrome.

3710 Cedar Street, Box 3,
Austin, TX 78705
512-451-3110

info@dsact.com
www.dsact.com



DOWN SYNDROME ASSOCIATION OF EL PASO

The Down Syndrome Association of El Paso was established in 2007. The primary purpose of our organization is to provide support and education to families who have children with Down Syndrome. Down Syndrome is a chromosomal abnormality which affects people of all ages, races and economic levels.

3124 Tierra Agave,
El Paso, TX 79938
915-269-5552

dsaofelpaso@yahoo.com
http://dsaep.org



DOWN SYNDROME ASSOCIATION OF HOUSTON


The Down Syndrome Association of Houston (DSAH) has been an important part of the Greater Houston community for almost 40 years. What started out as a small group that met in the basement of Texas Children’s Hospital has grown into a thriving, multi-faceted program with our office located at 7015 W. Tidwell, Bldg. G, Suite 108, in Houston and more than 1,500 members from all over the Houston area. DSAH has branched out into community groups in Baytown, Katy, North Side, Pearland, Spring, and The Woodlands, and others are forming.

7015 West Tidwell, Building G, Suite 108,
Houston, TX 77092
713-682-7237

info@dsah.org
president@dsah.org
www.dsah.org



DOWN SYNDROME ASSOCIATION OF SAN ANTONIO

Down Syndrome Association of San Antonio's mission is to provide services and support for children and adults with Down syndrome and their families in San Antonio and the surrounding areas.
Through partnerships with other agencies, medical professionals, educators, and parents, the DSASTX gathers and shares resources and information for those with Down syndrome and their families.
The DSASTX provides opportunities for families to foster friendships and offer mutual support through Parent Support Group meetings, community-based social activities, special events, and educational programs.

4702 West Avenue, Suite 6,
San Antonio, TX 78213
210-349-4372

downsynassc@dsasa.org
tmauldin@dsasa.org
www.dsasa.org




DOWN SYNDROME FOUNDTION OF SOUTH TEXAS

744 CR 245,
Hallettsville, TX 77964
361-772-6053

downsyndromefoundation@yahoo.com




DOWN SYNDROME GUILD OF DALLAS

What is the Mission of the Down Syndrome Guild (DSG)? To provide accurate and current information, resources and support for people with Down syndrome, their families and the community.               

1702 North Collins Boulevard, Suite 170,
Richardson, TX 75080
214-267-1374

dsged@sbcglobal.net
www.downsyndromedallas.org





DOWN SYNDROME LEAGUE OF VICTORIA

P.O. Box 4002,
Victoria, TX 77903

http://www.facebook.com/pages/Down-Syndrome-League-of-Victoria/136629947106




DOWN SYNDROME PARTNERSHIP OF TARRANT COUNTY

The Down Syndrome Partnership of Tarrant County benefits the lives of people with Down syndrome and their families by providing information, social and educational activities and support designed to help achieve the universally desired goals of self-fulfillment, pride in one’s achievements and acceptance and inclusion in the community.

1300 West Lancaster Avenue, Suite 227,
Fort Worth, TX 76102
817-390-2970

info@dsptc.org
www.dsptc.org




EAST TEXAS DOWN SYNDOME GROUP

The East Texas Down Syndrome Group provides information, education, and moral support to families in East Texas. Our biggest activity of the year is a “Buddy Walk” affiliated with the National Down Syndrome Society. This is a fundraiser for our group. The purpose of the walk is to get our families and the community involved to promote acceptance and inclusion of people with Down syndrome. There are many activities throughout the year that allow our families to get together and share our experiences with each other and build friendships. There are bi-monthly meetings to discuss ideas for fellowship, education opportunities for our members, guest speakers or training opportunities, a Spring Fling Family Picnic, a New Member Coffee, and play-dates for toddlers, youth and teen outings, & special gatherings for our adults.
P.O. Box 6604,
Longview, TX 75608
903-757-3516

info@etdsg.org
lmack@etdsg.org
www.etdsg.org




GREATER CLEAR LAKE FAMLIES EXPLORING DOWN SYNDROME

The mission of GCLFEDS is to provide support and resources to individuals with Down syndrome and their families and to promote awareness, understanding and inclusion in their communities.
4202 Cedar Ridge Trail,
Houston, TX 77059
832-457-2775

gclfeds@clearlakeds.org
www.clearlakeds.org




HEART OF TEXAS NETWORK FOR DOWN SYNDROME

Heart of Texas Down syndrome Network is a nonprofit organization committed to supporting the community and help them better understand individuals that are diagnosed as having Down syndrome in Central Texas. The group first started in late 2010. It is the vision of the parents of a son born with Down syndrome that wanted to share their experiences with other families of special needs children.

9915 Burgundy Lane,
Waywood, TX 76712
254-230-9782 (Alice)

support@hotnds.org
www.hotnds.org




INTERNATIONAL MOSIAC DOWN SYNDRIOME ASSC.

"IMDSA is designed to support any family or individual whose life has been affected by Mosaic Down syndrome by continuously pursuing research opportunities and increasing awareness in the medical, educational and public communities throughout the world."

P.O. Box 354,
Franklin, TX 77856

imdsapresident@imdsa.com
www.imdsa.org



PANHANDLE DOWN SYNDROME GUILD

The Panhandle Down syndrome Guild was founded in 2002 to promote a greater understanding of the medical and developmental aspects of Down syndrome. Along with the National Down syndrome Society (NDSS), which is the largest non-governmental supporter of research and advocacy, and the National Down syndrome Congress, PDSG strives to improve the lives of those persons in the Panhandle whose lives are affected by Down Syndrome. The Panhandle Down syndrome Guild increases public awareness about Down syndrome, to assist families in addressing the needs of children born with this genetic condition, and to sponsor community events. They work with the NDSS to dispel the myths associated with Down syndrome, while helping people with Down syndrome achieve their full potential in community life. PDSG develops and disseminated current information materials, as well as, plans activities to increase an acceptance of people with Down syndrome.

P.O. Box 20783,
Amarillo, TX 79114
806-670-1568 (Vicki)
806-382-2326 (Jeff)

panhandledsg@yahoo.com
www.panhandledsg.net




PARENTS OF SPECIAL KIDS SUPPORT GROUP

Steps 2 Strides Therapy Center,
2300 West Morton Street,
Denison, TX 75020
903-462-4085

marybeth.edgette@steps2strides.com
stacy.gudgel@steps2strides.com




RED RIVER VALLEY DOWN SYNDROME SOCIETY

The mission of the Red River Valley Down Syndrome Society is to improve the lives of individuals with Down syndrome and other disabilities through support, education, awareness and advocacy.

P.O. Box 6455,
Paris, TX 75461
877-273-4045
903-783-1922

info@rrvdss.org
tphillips@rrvdss.org
www.redriverdss.org



RGV DISCOVER LIFE


RGV Discover Life Inc. is created to inform and educate new and expecting parents about Down syndrome. We are a new organization in the Rio Grande Valley determined to help and inform parents and families about the special needs and potentials of babies with Down Syndrome.

3100 South 2nd, #21,
McAllen, TX 78503
956-907-3851
956-907-3851

down.org@gmail.com
http://rgvdiscoverlife.110mb.com




THE ARC OF TEXAS

Since our founding in 1950 by a group of parents of children with intellectual and developmental disabilities, The Arc at the local, state and national level has been instrumental in the creation of virtually every program, service, right, and benefit that is now available to more than half a million Texans with intellectual and developmental disabilities. Today, The Arc continues to advocate for including people with intellectual and developmental disabilities in all aspects of society.

8001 Centre Park Drive
Austin, Texas 78754
Directions to office.

http://www.thearcoftexas.org