Sunday, May 6, 2012

Where to Start-Nebraska


Early intervention can help you and your family support and promote your child’s development, within your family activities and community life. Nebraska’s Early Development Network supports children birth through three years of age who have special developmental needs. The Nebraska Early Development Network program “connects” families with early intervention services, such as occupational, speech or physical therapy, to help infants and toddlers grow and develop and help their families in this process. It is a voluntary program and does not discriminate based on race, culture, religion, income level, or disability.

The term “early” intervention is important because research shows that the first three years are the most important time for learning in a child's life. Providing developmental supports and services early improves a child's ability to develop and learn. Also, it may prevent or decrease the need for special help later. The goal of early intervention in Nebraska is to “open a window of opportunity” for families to help their children with special needs develop to their full potential.    

There are 29 Early Childhood Planning Region Teams in the state. Each one is an interagency coordinating council made up of local schools, health and human service agencies, Head Start, families, and others. There are almost 1,000 children in Nebraska from birth to age three, being served through the Early Development Network. Yet, some eligible children still have not been identified. You can be part of a "grass roots" effort to locate children and to make parents and the public aware of the assistance available through the Early Development Network.
Click on your region for contact information or view list of contacts:
Local Referral Contacts MapChadronScottsbluffSidneyAinsworthOgallalaOgallalaOgallalaOgallalaNorth PlatteMcCookSandhillsKearneyHoldregeNelighNelighColumbusWakefieldRural FremontGrand IslandHastingsMildfordMilfordMilfordBeatriceLincolnRural OmahaAuburnNorfolk
Douglas/SarpyLocal Contacts MapOmahaWestsideMillardRalstonPapillionBellevue


Easter Seals Nebraska provides exceptional services to help ensure all people with disabilities have an equal opportunity to live, learn, work and play.

Easter Seals Nebraska
638 North 109th Plaza
Omaha, NE 68154-1722

402-345-2200 (voice)
402-345-2500 (fax)
800-650-9880 (toll-free)



NE HCBS Waiver for Children w/DD and their Families (4154.R04.00)
Provides homemaker, residential hab, respite, specialized disability related child care, habilitative child care, home mods, team behavioral consultation for individuals w/MR DD ages 0 - 21

NE Autism (40660.R00.00)
Provides early intensive behavioral intervention to children w/autism ages 0 - 17

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

The department of Genetic Medicine provides comprehensive services for a variety of patients and their families with genetic and metabolic disorders. MMI prides itself on the ability to diagnose anomalies using genetic testing. In 80 percent of cases, families change the management of the disorder following a genetic diagnosis.

Phone: (402) 559-6418
Toll Free: (800) 656-3937 ext. 96418
Fax: (402) 559-5737


The DSA is an alliance of families, educators & medical professionals throughout Eastern Nebraska & Western Iowa.

6805 Grover Street,

Omaha, NE 68106


The Down Syndrome Association for Families (DSAF) formed in 1995 as a way for parents to network and share the accomplishments and challenges of our children. Many families who have or are expecting a child with Down syndrome don’t always have great support or know much information about Down syndrome. The DSAF can give them a view of what a blessing their child will be in their lives.

P.O. Box 57362,
Lincoln, NE 68505


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