Where to Start-New York

NEW YORK EARLY INTERVENTION PROGRAM


The New York State Early Intervention Program (EIP) is part of the national Early Intervention Program for infants and toddlers with disabilities and their families. First created by Congress in 1986 under the Individuals with Disabilities Education Act (IDEA), the EIP is administered by the New York State Department of Health through the Bureau of Early Intervention. In New York State, the Early Intervention Program is established in Article 25 of the Public Health Law and has been in effect since July 1, 1993.
To be eligible for services, children must be under 3 years of age and have a confirmed disability or established developmental delay, as defined by the State, in one or more of the following areas of development: physical, cognitive, communication, social-emotional, and/or adaptive.

 

New York State Department of Health
Corning Tower
Empire State Plaza,
Albany, NY 12237

1-866-881-2809

http://www.health.ny.gov/publications/0532/

 

THERAPY CENTER FOR CHILDREN LLC

 

Founded by Christina Bellini-Zaher, MS, OTR/L, The Therapy Center for Children is a "placement agency" composed of licensed and experienced pediatric physical therapists, occupational therapists, speech therapists and special educators. Our number one priority is to match your family with a compatible therapist.

156 North Ocean Avenue
Patchogue, New York 11772

Phone: 631.207.1053
Fax: 631.337.4190

http://www.therapycenterforchildren.com/about-therapy-center.html

 

THE ABC'S OF EI FOR PEDIATRICIANS

Over 30,000 children from birth to three years are receiving Early Intervention (EI) services in New York State. We hope this handout will help pediatricians to integrate the EI process and the resulting services that their patients and their families receive into their medical practices. We hope to make it easier for the primary care practitioner (PCP) to refer patients with suspected or confirmed developmental delay to EI, as well as to follow up in their care throughout the course of the intervention.

http://www.ny2aap.org/nyabcei.html

EASTER SEALS:

Easter Seals provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

https://secure2.convio.net/es/site/Donation2?df_id=11362&11362.donation=form1&gclid=CJXvy4yh6a8CFQu4tgodrRk21g

MEDICAID WAIVER PROGRAM:


Waivers are vehicles states can use to test new or existing ways to deliver and pay for health care services in Medicaid and the Children’s Health Insurance Program (CHIP). There are four primary types of waivers and demonstration projects:


Below is the link to available waivers available in New York.

http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Waivers/Waivers.html

 

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

GENETICS SUPPORT IN NEW YORK

Robert Warner, M.D.
Center for Children with Special Needs

Women & Children's Hospital of Buffalo
219 Bryant Street
Buffalo, NY
Phone: 716-878-1260

ALEXANDER'S ANGELS The long term goal of Alexander's Angels is to raise awareness outside the Down syndrome community by continuing working with local colleges and with Down syndrome organizations in a collaborative effort to promote a better understanding of people with Down syndrome.  Alexander's Angels aims at presenting the person with Down syndrome for what he/she is, a person with feeling and abilities much like anyone else.  To that end Alexander's Angels aims to organize events that showcase to the community-at-large special talents within the Down syndrome community. P.O. Box 486, Jericho, NY 11753 516-361-7263 alexandersangels@gmail.com www.alexandersangels.org ASSOCIATION OF CHILDREN WITH DS ACDS is dedicated to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities and their families. 4 Fern Place, Plainview, NY 11803 516-933-4700 information@acds.org msmith@acds.org www.acds.org BRONX AND MANHATTAN PARENTS OF DS 1045 Hall Place, #3, Bronx, NY 10459 917-834-0713 (Margie) CHAUTAUQUA DAISY (DS YOUTH) GROUP 214 Arlington Avenue, Jamestown, NY 14701 716-483-6687 chautauquadaisy@hotmail.com DOWN SYNDROME ADVOCACY FOUNDATION P.O. Box 12173, Hauppauge, NY 11788 516-983-7008 dsaf03@gmail.com www.dsafonline.org DS AIM HIGH RESOURCE CENTER The Down Syndrome Aim High Resource Center (DSAHRC) is located in Albany, NY. The DSAHRC provides parent-to-parent and professional services and support to individuals with Down syndrome, their families, and the professionals involved in their care. The DSAHRC serves the Greater Capital Region and the North-Eastern region of Upstate New York. 1 Marcus Boulevard, Suite 105, Albany, NY 12205 518-438-1113 info@dsahrc.org www.dsahrc.org DS ASSOCIATION OF CENTRAL NY The Down Syndrome Association of Central New York, Inc. is a group of parents, family, and friends of individuals with Down syndrome. We are located in and around Syracuse, New York which is part of Onondaga County. Our membership extends into the surrounding counties such as Madison, Cortland, Cayuga, Oswego and Oneida. Their purpose is to support one another in the challenges we face; to educate the community both in its knowledge and perception of Down syndrome; to advocate for their children and to be available to other parents. P.O. Box 5, Manlius, NY 13104 315-682-4289 dsaofcny@aol.com www.dsaofcny.org DS ASSOCIATION OF ST. LAWRENCE COUNTY P.O. Box 304, Canton, NY 13617 315-562-2118 dsaofslc@gmail.com http://www.facebook.com/pages/Down-Syndrome-Association-of-St-Lawrence-County/143672895664746 DS ASSOCIATION OF HUDSON VALLEY The Down Syndrome Association Hudson Valley, established by a group of parents in the 1980s, is a volunteer driven organization created for local families. We wish to see our children and adults with Down syndrome live fulfilling, empowered lives and strive to meet the individual needs of each family. P.O. Box 352, Gardiner, NY 12525 845-226-1630 info@dsahv.org www.dsahv.org DS ASSOCIATION OF WESTCHESTER The mission of the Down Syndrome Association of Westchester is to provide information, support and assistance to individuals with Down syndrome and their families. 85 Candlewood Road, Scarsdale, NY 10583 914-723-6568 ken@westchesterdsa.org info@westchesterdsa.org www.westchesterdsa.org DS CONNECTION OF LONG ISLAND DSCLI is a parent-run, volunteer organization made up of families and individuals touched by Down syndrome.  They are an affiliate of both the National Down Syndrome Society and the National Down Syndrome Congress. They are proud to be partners with Good Samaritan Medical Center. Together, we will be presenting a series of informative meetings. Good Samaritan’s Center for Pediatric Specialty Care is committed to providing the finest pediatric sub-specialty care to the Down syndrome community of Long Island. P.O. Box 2402, Halesite, NY 11743 631-721-3292 info@dscli.org vregan@dscli.org www.dscli.org DS INFORMATION NETWORK OF THE TWIN TIERS The mission of the Down Syndrome Information Network of the Twin Tiers is to provide support and information for parents, caregivers and self advocates. Also to promote awareness, acceptance and inclusion of our loved ones in the community. 215 Scott Lane, Horseheads, NY 14845 607-739-0272 (Michelle) hecklece@stny.rr.com dsintt@gmail.com www.downsyndromeintt.org DS PARENT GROUP OF WESTERN NEW YORK The Down Syndrome Parents Group of Western New York is a non-profit organization consisting of parents and families of children with Down syndrome. DSPG seeks to enhance the lives of people with Down syndrome and their families. The organization's informational and social events provide a broad range of opportunities for families to support and encourage each other. Buffalo, NY 14223 716-832-9334 dspgwny@hotmail.com dspgwny@hotmail.com www.dspgwny.org DS PARENT SUPPORT GROUP OF GENESEE COUNTY The Down Syndrome Parent Support Group is a nonprofit organization consisting of parents of children with Down Syndrome. Its purpose is to bring a greater acceptance and understanding-of Down Syndrome. The organization's mission is to make opportunities available for persons with Down Syndrome to engage productively in community life. 3770 Pike Road, Batavia, NY 14020 585-344-2092 kay@downsyndromegenesee.org downsyn@iinc.com http://www.downsnet.com/genesee/ DS SUPPORT GROUP OF TOMPKINS-CORTLAND AREA 16 Ferguson Road, Dryden, NY 13053 607-844-4050 downsyndrometca@gmail.com FAMILY AND FRIENDS DS ASSOCIATION OF NIAGARA Since 1997, The Family & Friends Down Syndrome Association of Niagara County, Inc. has organized The Buddy Walk of Buffalo Niagara as their yearly family fun raising and Down Syndrome awareness event in Lewiston , NY. Today, we continue our steps to promote positive public awareness, acceptance and inclusion for all families and their loved one's born with Down syndrome. The Buddy Walk was developed by the National Down Syndrome Society in 1995 to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclusion of people with Down syndrome. The Buddy Walk has grown from 17 walks in 1995 to over 250 walks planned for 2012 worldwide. In, 2011, more than $11.2 million dollars was raised nationwide to benefit local programs and services, as well as the national advocacy and public awareness initiatives of NDSS that benefit all individuals with Down syndrome.                              4661 Lower River Road, Lewiston, NY 14092 716-870-4904 Trisominds21@aol.com http://www.dsaniagara.org/ FLOWER CITY DOWN SYNDROME NETWORK The mission of the Flower City Down Syndrome Network is to provide education, support, and opportunities to people who have Down syndrome, and their families, in the Greater Rochester area. 2117 Buffalo Road, #132, Rochester, NY 14624 585-568-7421 saccapez@rochester.rr.com www.fcdsn.com FRANKLIN COUNTY DOWN SYNDROME SOCIETY The Franklin County Down Syndrome Society was established in support of individuals with Down syndrome and their families in Franklin County, New York. Our mission is to raise awareness of Down syndrome in our community, to support individuals with Down syndrome and their families in our community emotionally and financially, to increase the quality of life of individuals with Down syndrome in our community, to support research that strives to increase the quality of life of individuals with Down syndrome, and to promote a positive image of individuals with Down syndrome. 28 Third Street, Malone, NY 12953 516-521-3012 mmcardle001@twcny.rr.com www.fracodssociety.synthasite.com KENNEDY-WILLIS CENTER ON DOWN SYNDROME Pathfinder Village is a home where people who have Down syndrome and other disabilities discover their own value and talents, and share these gifts with others. It is a friendly, beautiful community where residents become involved and find opportunities. The Village opened in 1980 with seven homes and a school. Since then, the Village has added more homes and programs. Residents are valued for their abilities and contributions. They are encouraged to choose friends and develop goals. Pathfinder Village, 3 Chenango Road, Edmeston, NY 13335-2314 607-965-8377 Ext. 128 info@pathfinder.tzo.com www.pathfindervillage.org MANHATTAN DOWN SYNDROME SOCIETY 124 West 121 Street, New York, NY 10027 646-261-5334 manhattandowns@gmail.com MOHAWK VALLEY DS SUPPORT AND AWARENESS GROUP Upstate Cerebral Palsy, 258 Genesee Street, Utica, NY 13502 315-738-0794, ext. 304 cynthia.ackerman@upstatecp.org http://www.facebook.com/mohawkvalleydownsyndromegroup GIGI'S PLAYHOUSE:DOWN SYNDROME AWARENESS CENTER LOVE THIS! 106 W. 117th Street, New York, NY 10026 646-801-7529 nyc@gigisplayhouse.org www.newyork.gigisplayhouse.org NORTH COUNTRY DS ASSOCIATES, INC 64 Prospect Avenue, Plattsburgh, NY 12901 518-563-5553 rotzt@westelcom.com www.ncdsasite.org SOUTHERN TIER DS INFORMATION NETWORK The Down Syndrome Information Network is dedicated to increasing community awareness about the potential and needs of people with Down syndrome. P.O. Box 59, Endicott, NY 13760 607-729-3696 info@dsinstny.org kdevine@dsinstny.org www.dsinstny.org/index.html TRISOMY 21 FOUNDATION OF NORTHERN NEW YORK 130 West Street, Black River, NY 13612 315-788-0869 info@downsyndromesupportnny.org http://downsyndromesupportnny.org WESTCHESTER ARC PARENT ASSISTANCE COMMITTEE ON DS Mission is to empower children and adults with developmental disabilities to achieve their potential based on personal choices, abilities and interests. 26 Blackthorn Lane, White Plains, NY 10606 914-654-0238 ebean37@hotmail.com www.westchesterarc.org/about/family_resource_groups.html

THE ARC OF NEW YORK

393 Delaware Ave
Delmar, NY 12054-3094

Website: www.nysarc.org
Phone: (518) 439-8311
Email: info@nysarc.org