Tuesday, May 15, 2012

Where to Start-Rhode Island



RHODE ISLAND EARLY INTERVENTION PROGRAM


RI's Early Intervention Program promotes the growth and development of infants and toddlers who have a developmental disability or delay in one or more areas. Developmental disabilities or delays can affect a child’s speech, physical ability, or social skills. Children referred to the Early Intervention Program receive a comprehensive developmental evaluation to determine if they are eligible.

One of the goals of Early Intervention is to provide support to families so their children can develop to their fullest potential. Services are provided in places where children usually play or take part in daily activities.


http://www.dhs.ri.gov/ChildrenwithSpecialNeeds/EarlyInterventionProgram/tabid/839/Default.aspx




Family Service of RI

This team of educators, health care professionals and social workers provides services in the home and community for babies and toddlers with, or at risk of, physical, social/emotional, or language delays.

P.O. Box 6688
Providence, RI 02940-6688
(401) 331-1350 or (401) 294-6138. 
HR@familyserviceri.org
http://www.familyserviceri.org/serv_early_intervention.asp




Meeting Street

Meeting Street Compassionately and innovatively empowers children and their families to thrive by fostering the development of the whole child.

1000 Eddy Street
Providence, RI 02905
Telephone: (401) 533-9100
Fax: (401) 533-9101
Email:
info@meetingstreet.org




EASTER SEALS

Easter Seals provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities.

Easter Seals Rhode Island
213 Robinson Street
Wakefield, RI 02879


http://ri.easterseals.com/site/PageServer?pagename=RIDR_contactus







MEDICAID WAIVER PROGRAM:

Rhode Island Global Consumer Choice Compact

According to information provided by the State, Rhode Island operates its entire Medicaid program under a single section 1115 demonstration. This demonstration includes the following programs: RIte Care, RIte Share, Extended Family Planning, Rhody Health Partners, Connect Care Choice, Home and Community-Based Services (HCBS), and RIte Smiles, all of which were previously operated under distinct demonstrations. All Medicaid-funded services on the continuum of care � from preventative care in the home and community to care in high-intensity hospital settings to long-term and end-of life-care � are organized, financed, and delivered through the Demonstration. Rhode Island uses the additional flexibility afforded by the waiver to redesign the State�s Medicaid program to provide cost-effective services that will ensure beneficiaries receive the appropriate services in the least restrictive and most appropriate setting. Under this demonstration, Rhode Island can submit three different types of change requests, each of which utilizes a different type of review process.

/Medicaid-CHIP-Program-Information/By-Topics/Waivers/1115/downloads/ri/ri-global-consumer-choice-compact-fs.pdf

/Medicaid-CHIP-Program-Information/By-State/rhode-island.html



TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)


Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.







GENETICS/M.D. SUPPORT IN RHODE ISLAND

Children's Neurodevelopment Center
Hasbro Children's Hospital
593 Eddy Street
Providence, RI
Phone: 401-444-4000




Hasbro Children's Hospital
593 Eddy Street
Providence, RI 02903
401-444-4000

http://www.hasbrochildrenshospital.org/






DOWN SYNDROME SOCIETY OF RHODE ISLAND


Parent support organization dedicated to promoting the rights, dignity and potential of all individuals with Down syndrome through advocacy, education, public awareness and support.


99 Bald Hill Road,
Cranston, RI 02920-2648
401-463-5751
www.dssri.org





DOWN SYNDROME SUPPORT SE MA AND RI

This group was created for the families of children with down syndrome in Southeastern MA and Rhode Island. This is a place to post questions, offer support, and post reminders for events.

http://health.groups.yahoo.com/group/Downsyndromesupport/



PAL

A statewide, non-profit organization that was built on the need to support and empower families and people with disabilities as they advocate for themselves. PAL’s mission statement reads, "PAL is committed to supporting families, individuals with disabilities and their network of friends in their effort to achieve their own personal dreams and to assume a social role of respect and dignity as a valued member of their community.

96 Rolf Street
Cranston, RI 02910
Doreen McConaghy, Executive Director
Phone: 401-785-2100
Email:
dmcconaghy@pal-ri.org




ADVOCATES IN ACTION

Rhode Island’s statewide self-advocacy organization for people with developmental disabilities.

96 Rolf Street
Cranston, RI 02920
Deb Kney, Coordinator
Phone: 401-785-2028
Email:
aina@aina-ri.org




THE ARC OF RHODE ISLAND

Advocates for the rights and full participation of all children and adults with intellectual and developmental disabilities. Together with a network of members and affiliated chapters, the Arc seeks to improve systems of supports and services; connect families; inspire communities and influence public policy.

99 Bald Hill
Cranston, RI 02910
Mary Lou McCaffery, Executive Director
Phone: 401-463-9191
Email:
Rhodeislandarc@cs.com

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