Monday, May 28, 2012

Where to Start-South Carolina




SOUTH CAROLINA EARLY INTERVENTION

Early Intervention is a family-focused, in-home service for children from birth to age 6 years of age. An Early Interventionist helps families understand their child’s development and gives specific training to assist the family in addressing these areas of delay. Family Training and Service Coordination are provided in accordance with an Individualized Family Service Plan (IFSP) for children birth to 3 or a Family Service Plan (FSP) for children 3 to 6 years of age. Click here for Developmental Screening Information.

The Official Web Site of the State of South Carolina
1301 Gervais Street, Suite 710
Columbia, SC29201-3326

Work1.866.340.7105
Work 1.803.771.0131







EASTER SEALS


Providing exceptional services to ensure children with disabilities or special needs have equal opportunities to live, learn, work and play in their communities since 1934.

803-256-0735 (voice)
803-356-6902 (fax)

Or, via regular mail at:
PO Box 5715
Columbia, SC 29250







MEDICAID WAIVER PROGRAM:


SC Medically Complex Children

Provides care coordination, in-home skilled respite, children's medical day care, incontinence supplies for medically fragile and technology dependent individuals ages 0-18

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/SC0675R0000.zip


SC Community Supports

Provides adult day health care, personal care, respite care, adult day health care-nursing, adult day health care-transportation, behavior support, career preparation, community services, day activity, employment services, environmental mods, in-home support, private vehicle mods, psychological services, specialized medical supplies/ equipment/assistive technology and appliances, support center services for individuals w/MR ages 0 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/SC0676R0000.zip


SC Pervasive Developmental Disorder (0456.R01.00)

Provides service coordination, early intensive behavioral intervention for children w/autism ages 3 - 10

/Medicaid-CHIP-Program-Information/By-Topics/Waivers/Downloads/SC0456.zip


SC MR and Related Disabilities (0237.R04.00)


Provides adult day health care/adult day health care services, personal care 2/personal care 1, residential hab, respite care, adult dental, adult vision, audiology services, prescribed drugs, adult attendant care, adult companion, adult day health care nursing, adult day health care transportation, behavior support, career preparation, community services, day activity, employment services, environmental mods, nursing, PERS, private vehicle mods, psychological services, specialized medical equipment/supplies and assistive technology, support center services for individuals w/MR ages 0 - no max age

http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Waivers/Downloads/SC0237.zip


 



TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.







GENETICS/M.D. SUPPORT IN MNEW HAMPSHIRE

Greenwood Genetic Center
1 Gregor Mendel Circle
Greenwood, SC
Phone: 864-941-8100 or
888-GGC-GENE (Toll Free)


Medical University of So. Carolina Children's Hospital

Down Syndrome Center
135 Rutledge Avenue
Charleston, SC
Phone: 843-876-1524







DOWN SYNDROME ASSOCIATION OF THE LOWCOUNTRY

The purpose of Down Syndrome Association of the Lowcountry (DSAL) is to promote an enviroment which fosters the growth and developement of people with Down syndrome to enable them to achieve their full potential.  Down Syndrome Association of the Lowcountry offers programs such as Moms' Night Out and Youth Group, as well as social events, resources, and educational opportunities.



P.O. Box 2275,
Mount Pleasant, SC 29465
843-553-DSAL (3725)

DSALowcountry@gmail.com
www.dsalowcountry.org






DOWN SYNDROME FAMILY ALLIANCE OF GREENVILLE

The Down Syndrome Family Alliance of Greenville is a non-profit organization whose mission is to enrich the lives of people affected by Down Syndrome by providing support and education through the sharing of ideas and resources and promoting awareness and community involvement.


29 North Academy Street,
Greenville, SC 29601
864-282-0167

support@dsfagreenville.org
mosleyad@aol.com
www.dsfagreenville.org




FAMILY CONNECTION OF SOUTH CAROLINA

The mission of Family Connection of South Carolina is to strengthen and encourage families of children with special healthcare needs through parent support.
In 1989 a group of South Carolina parents who have children with disabilities and special needs founded the community based, family-focused organization, Family Connection of South Carolina, Inc (FCSC). Those families realized the source of their families' hope and strength for the future of their children came from other parents who had already successfully navigated life's similar challenges. Therefore, all of our programs and services are centered on the concept of parent-to-parent support or the fact that families with shared experiences are uniquely qualified to help each other.

2712 Middleburg Drive, Suite 103-B,
Columbia, SC 29204
803-252-0914
803-799-8017

info@familyconnectionsc.org
jackierichards@familyconnectionssc.org
www.familyconnectionsc.org




UP WITH DOWNS

111 Sugarpine Place,
Summerville, SC 29483
843-695-8381
843-693-5525

upwithdowns@ymail.com
shione964@aol.com
upwithdownssc@groups.facebook.com 




THE ARC OF SOUTH CAROLINA

3214 Leaphart Road, Suite C, West Columbia, SC 29169

Phone # (803) 748-5020
Fax # (803) 750-8121

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