Saturday, May 12, 2012

Where to Start-West Virginia



WEST VIRGINIA EARLY INTERVENTION PROGRAM


The first few years of life are extremely important to the future growth and development of your child. You, as parents, are most responsible for guiding your child through these years. These are wonderful times to laugh, play, and learn from and with your child.
By learning what your child will be doing at different stages, you will become a better informed parent, able to take pleasure in your child's growth, yet alert to any possible problems in development. Trust your instincts and feelings as you watch your child grow. Don't ever be afraid to ask questions. Your doctor can answer any questions you may have about your child's growth, and WV Birth to Three is available if you have concerns about your child's development.

Telephone: (304) 558-5388
Fax: (304) 558-2183
Toll Free in WV: (800) 642-9704

http://www.wvdhhr.org/birth23/Default.asp



EASTER SEALS



304-242-1390 (voice)
304-242-1390 (tty/tdd)
304-243-5880 (fax)
1-800-677-1390 (toll-free)
1305 National Road
Wheeling, WV 26003

MEDICAID WAIVER PROGRAM:

WV MR/DD (0133.R05.00)
Provides facility based day hab, participant-centered support, respite, service coordination, supported employment, FMS-participant-directed, crisis services, dietary therapy, electronic monitoring/surveillance system and on-site response, environmental accessibility adaptations-home, environmental accessibility adaptations-vehicle, goods and services-participant-directed, OT, PT, positive behavioral support professional, skilled nursing-nursing services by a LPN, skilled nursing-nursing services by a LRN, speech therapy, therapeutic consultant, transportation for individuals w/MR/DD ages 0 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/WV0133R0500.zip





TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)



Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.


 





GENETICS/M.D. SUPPORT IN WEST VIRGINIA

The WVU Genetics and Counseling Center provides genetic services to the people of West Virginia and surrounding areas and acts as a resource agency for health professionals.

304- 598-4000

http://www.wvukids.com/healthcare-services/medical-genetics.html




DOWN SYNDROME FAMILY SUPPORT GROUP OF RALEIGH GROUP

P.O. Box 568,
Beckley, WV 25801
304-731-3727 (Lola)
lolarizer@gmail.com




DOWN SYNDROME NETWORK OF WEST VIRGINIA

The mission of the DSNWV is to enhance the lives of individuals with Down Syndrome by providing information, resources and support to families and professionals and by promoting awareness and acceptance of individuals with Down Syndrome.
P.O. Box 7102,
Cross Lanes, WV 25356
304-342-3358
annbc67@msn.com
www.DSNWV.org




HARRISON COUNTY DOWN SYNDROME CONNECTION

Clarksburg, WV 26301
717-387-5352
hcdsc@live.com



UP WITH DOWNS OF HARRISON COUNTY

124 Oakwood Circle, P.O. Box 301,
Bridgeport, WV 26330
hecross@fedins.com


THE ARC OF WEST VIRGINIA

The Arc of Harrison County
P.O. Box 764
Clarksburg, WV 26301
(304) 624-3641

www.thearcwv.org/archc/
SERVES:
Harrison & Randolph Co.




The Arc of the Mid Ohio Valley
912 Market Street
Parkersburg, WV 26101
(304) 422-3151 Ext 106

info@arcwd.org
www.arcwd.org

SERVES:
Wood, Pleasants, Ritchie, Wirt, Roane, Doddridge, Calhoun, Jackson, Gilmer, Harrison (Birth to Three only)


The Arc of Ohio County
439 Warwood Avenue
Wheeling, WV 26003
(304) 277-1466
SERVES:
Ohio County



The Arc of Three Rivers
1021 Quarrier Street, Suite 200
Charleston, WV 25301
(304) 344-3403

arc3@arcthreerivers.org
www.arcthreerivers.org
SERVES:
Kanawha, Clay, Boone & Putnam Co.

No comments:

Post a Comment