Where to Start-Washington

WASHINGTON EARLY INTERVENTION PROGRAM

Early intervention services during the first years can make a big difference in a child’s life. Early Support for Infants and Toddlers provides services to children birth to 3 who have disabilities and/or developmental delays. Eligible infants and toddlers and their families are entitled to individualized, quality early intervention services in accordance with the federal Individuals with Disabilities Education Act (IDEA), Part C.


1110 Jefferson St. S.E.
Olympia, WA 98501.
360.725.4665 (phone)
360.725.4925 (fax: first floor)
360.413.3482 (fax: second floor)
Toll-free: 1.866.482.4325
http://del.wa.gov/development/esit/Default.aspx








EASTER SEALS

Easter Seals Washington provides exceptional services to ensure that people with disabilities and families in need have equal opportunities to live, learn, work and play.

220 W. Mercer St., Ste. 120-W
Seattle, WA 98119-4347

206-281-5700 (voice)
206-281-5700 (tty)
206-284-0938 (fax)

http://wa.easterseals.com/site/PageServer?pagename=WADR_homepage

MEDICAID WAIVER PROGRAM:


WA Children's Intensive In-Home Behavioral Support (40669.R00.00)
Provides personal care, respite, OT, PT, speech/hearing/language, assistive technology, behavior management/consultation, environmental accessibility adaptations, nurse delegation, sexual deviancy evaluation, specialized clothing, specialized medical equipment and supplies, specialized nutrition, specialized psychiatric services, staff/family consultation/training, therapeutic equipment and supplies, transportation, vehicle mods for individuals w/DD ages 8-20


https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/WA40669R0000.zip


http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Waivers/Waivers.html

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

GENETICS/M.D. SUPPORT IN WASHINGTON

Provides diagnoses, evaluation and long-term management plans for children with metabolic disorders. Prenatal diagnosis is offered to families at risk for having children with inborn metabolic problems. Genetic counselors on staff provide genetic counseling and information about the inheritability of particular disorders. The clinic hosts support activities for families whose children have similar rare disorders.

University of Washington

Center on Human Development & Disability (CHDD)
Box 357920, Seattle, WA 98195-7920
Phone: (206) 685-3015
E-mail: chdd@u.washington.edu
http://www.arcofkingcounty.org/resource-guide/age-birth-to-three/biochemical-genetics-clinic-uw-pku-clinic






DOWN SYNDROME COMMUNITY


The Down Syndrome Community is a registered 501(c)(3) organization whose mission is to improve the lives of individuals with Down syndrome and their families by focusing on education, communication, and advocacy. Our service area includes the entire Puget Sound region and Western Washington. Our members include a wide cross section of families and professionals across the United States


14509 201st Avenue SE,
Renton, WA 98059
360-668-7377
DSC_Relations@comcast.net
contact@downsyndromecommunity.org
www.downsyndromecommunity.org




HEARTS OF GOLD-DOWN SYNDROME SUPPORT


23235 East Jones Road,
Sedro Woolley, WA 98284
360-333-3533
just-as-i-am@live.com






SOUTH PUGET SOUND UP WITH DOWN SYNDROME


5101 Brenner Road NW,
Olympia, WA 98502
360-915-6276
beccabrandt@msn.com
http://www.facebook.com/pages/South-Puget-Sound-Up-With-Down-Syndrome-Support-Group/184355860890

THE ARC OF WASHINGTON STATE

2638 State Avenue NE
Olympia, WA 98506

360-357-5596

http://www.arcwa.org/