Sunday, June 3, 2012

Where to Start-Pennsylvania



PENNSYLVANIA EARLY INTERVENTION PROGRAM

Early Intervention supports and services are designed to meet the developmental needs of children with a disability as well as the needs of the family related to enhancing the child's development in one or more of the following areas:

  • Physical development, including vision and hearing
  • Cognitive development
  • Communication development
  • Social or emotional development
  • Adaptive development

Pennsylvania Department of Education
333 Market Street
Harrisburg, PA 17126 (Map)

Main Information Number: 717-783-6788 


EASTER SEALS

Easter Seals Southeastern Pennsylvania


215-879-1000 (voice)
215-879-8424 (fax)
Or, via regular mail at:
3975 Conshohocken Avenue
Philadelphia, PA 19131

Easter Seals Central Pennsylvania

Easter Seals provides exceptional services to ensure that all people with disabilities have equal opportunity to live, learn, work and play.

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map of locations

Central Region 1. Altoona, PA
North Central Region
2. State College, PA
South Central Region
3. Chambersburg, PA
4. Mechanicsburg, PA
5. Waynesboro, PA
6. York, PA
For mailing addresses, see our Locations page. For more information, please contact us.




http://centralpa.easterseals.com


Easter Seals Eastern Pennsylvania


1501 Lehigh Street, Suite 201
Allentown, Pennsylvania 18103
Phone: 610.289.0114
Fax: 610.289.4282
For service site contact information, click here.

http://esep.easterseals.com


Easter Seals Western Pennsylvania

To create solutions that change lives of children and adults with disabilities and other special needs.

412-281-7244 (voice)
412-281-9333 (fax)
800-587-3257 (toll-free)
Or, via regular mail at:
2525 Railroad Street
Pittsburgh, PA 15222-4608

 
MEDICAID WAIVER PROGRAM:

PA Consolidated Waiver (0147.R04.00)

Provides education support, home and community hab, homemaker/chore, licensed day hab, prevocational, residential hab, respite, supported employment-job finding/support, supports coordination, nursing, therapy services, supports broker services, assistive technology, behavioral support, companion, home accessibility adaptations, home finding, specialized supplies, transitional work, transportation, vehicle accessibility adaptations for individuals w/MR ages 3-no max age

http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Waivers/Downloads/PA0147.zip


PA Person/Family Directed Support (0354.R02.00)

Provides education support services, home and community hab, homemaker/chore, licensed day hab, prevocational, respite, supported employment, supports coordination, unlicensed residential hab, nursing services, therapy services, supports broker, assistive technology, behavioral support, companion, home accessibility adaptations, home finding, specialized supplies, transitional work, transportation, vehicle accessibility adaptations for persons w/MR ages 3-no max

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/PA0354R0200.zip

 
TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

GENETICS/M.D. SUPPORT IN MNEW HAMPSHIRE

Down Syndrome Center
Children's Hospital of Pittsburgh
Children's Hospital Drive
45th St. & Penn Ave.
Pittsburgh, PA
Phone: 412-692-7963

Trisomy 21 Program
Children's Hospital of Philadelphia
34th Street and Civic Center Boulevard
Philadelphia, PA
Phone: 267-426-5283

Eastern Penn. Down Syndrome Center
PO Box 60
6900 Hamilton Blvd.
Trexlertown, PA
Phone: 610-402-0184

Dr. Gertrude A. Barber Center
136 East Avenue
Erie, PA
Phone: 814-453-7661



ABILITIES

700 Maple Grove Drive,
Moscow, PA 18444
Telephone: 570-840-6961 (Kimberly)

abilities21@yahoo.com


BUCKS COUNTY DS INTEREST GROUP

Kintnersville, PA 18930
215-766-0890

dgsantoro@gmail.com
mdrenth@drenth.com
www.bcdsig.org



CENTRAL PA DOWN SYNDROME AWARENESS GROUP

Central PA Down Syndrome Awareness Group is committed to the success of individuals with Down Syndrome. By promoting acceptance and awareness in our community we can empower individuals with Down syndrome to meet and exceed their dreams.

175 Briarwood Lane,
Carlisle, PA 17015
717-218-0242

www.cpadsag.org
cpadsag@comcast.net
cpadsag.org


CENTRE COUNTY DOWN SYNDROME SOCIETY

Welcome to the web site of the Centre County Down Syndrome Society (CCDSS), an affiliate of the National Down Syndrome Society and the National Down Syndrome Congress. The CCDSS was organized by a group of families in the Centre County PA region who recognized a need for, and wanted to provide, a local informational and support resource network. This site has been designed as a resource for families who have received either a prenatal (during pregnancy),postnatal (after birth) diagnosis of Down Syndrome, adopted a child with Down syndrome as well as for healthcare professionals seeking to provide their patients with more informed, comprehensive service.

P.O. Box 825,
State College, PA 16804

ccdssociety@gmail.com
www.centrecountydownsyndrome.org



CHESTER COUNTY DS INTEREST GROUP

The Chester County Down syndrome Interest Group (CCDSIG) is a nonprofit organization that began in 1998 with a group of parents who wanted to meet for social contact and support. They are students, they are lawyers, the are teachers, they are scientists, they are tradesmen, they are bankers, they are homemakers, they are doctors; they are all people whose lives have been touched by Down syndrome. Their goals have now expanded to include reaching out to new families, providing educational and social opportunities for existing members, and educating the community in order to promote awareness and inclusion of persons with Down syndrome.

P.O. Box 258,
Exton, PA 19341
610-889-0291

board@ccdsig.org
www.ccdsig.org


DOWN SYNDROME ASSOCIATION OF PITTSBURGH

The Down Syndrome Association of Pittsburgh is a group of parents and professionals dedicated to enriching the lives of people with Down syndrome. The mission of the DSAP is simple. We are here to support families by providing: New Parent Packets to families beginning their journey; financial support to the Down Syndrome Center at Children’s Hospital of Pittsburgh of UPMC for both the pediatric and adult clinics, two clinics established due to the generosity of DSAP members; and contributions to the community resources and national endeavors that focus on improving the well-being of people with Down syndrome. 

5513 William Flynn Highway,
400, PMB 283,
Gibsonia, PA 15044

www.dsapgh.org



DOWN SYNDROME GROUP OF ERIE COUNTY

P.O. Box 9426,
Erie, PA 16505
814-833-2143

lupo12345@aol.com


DS INTEREST GROUP OF DELEWARE COUNTY

Mission Statement
  • To Reach out to expectant and new parents of a child with Down Syndrome in the manner of Parent to Parent.
  • To be supportive of and provide social interaction for people with Down Syndrome, their families, friends and acquaintances.
  • To aid and challenge each family to constantly evaluate and re-think how new ideas, information and technology may help or affect their child with Down Syndrome.
  • To educate the general public by assisting members of our community in learning to see people with disabilities as people, not as their disability.
  • As a group, we respect individual choices regarding the education, living arrangements and employment choices made by the individual members of the group. We recognize that each family is doing their best to provide for their child and that no one knows their child better that they do themselves.

P.O. Box 5367,
Springfield, PA 19064
610-544-4025

welcome@delcodsig.org
michael.evenosky@delcodsig.org
www.delcodsig.org


DS INTEREST GROUP OF MONTGOMERY COUNTY

Montgomery County Down Syndrome Interest Group (MCDSIG) is a nonprofit group without member dues.
We exist to support individuals with Down syndrome and their families and friends through mutual support and guidance, and to assist in increasing the overall social understanding and acceptance of Trisomy 21.

608 Ederer Lane,
Ambler, PA 19002
610-754-1483

RoseHTownsend@yahoo.com
www.mcdsig.org


DS RESEARCH ONLINE ADVOCACY GROUP

The Down Syndrome Research Online Advocacy Group is a non- profit scientific and educational effort aimed at increasing public understanding and support for clinical and biomedical research into Down syndrome.


The DSResearch Online Advocacy Group is an affiliate member of the National Down Syndrome Society.
811 William Thomas Drive,
Kennett Square, PA 19348
610-347-1874

bobs1012@aol.com
ds_info@dsresearch.org
www.downsyndromeresearch.org


DOWN SYNDROME SOCIETY OF CENTRAL PENNSYLANIA

P.O. Box 1017,
Carlisle, PA 17013


DS SUPPORT GROUP OF LANCASTER COUNTY

117 Pearl Street,
Lancaster, PA 17603
717-393-4455

ldyjayne66@msn.com



EASTER PENNSYLVANIA DOWN SYNDROME CENTER

6900 Hamilton Boulevard,
P.O. Box 60,
Trexlertown, PA 18087
610-402-0184

theepdsc@gmail.com
http://epdsc.org


FRIENDS AND FAMILY OF DOWN SYNDROME

c/o ARC of Blair County,
431 Jackson Avenue,
Altoona, PA 16602
814-946-1011

AngelaBucher92@gmail.com


FRIENDS OF TRISOMY 21 CENTER

408 Midland Avenue,
Wayne, PA 19087
610-989-0961

davisphily@comcast.net


HOPES AND DREAMS FOUNDATION

517 Cedarbrook Road,
Southampton, PA 18966
215-264-2859

info@hopesanddreamsfoundation.org
www.hopesanddreamsfoundation.org



LUZERNE COUNTY DOWN SYNDROME NETWORK

The Luzerne County Down Syndrome Network came together in 2005 with the goal of organizing Luzerne County's first annual Buddy Walk. Through events such as the National Down Syndrome Society’s Buddy Walk, LCDSN’s mission is to advance acceptance and inclusion of people with Down Syndrome while raising funds for qualified local and national non-profit education, research and support programs. The LCDSN hopes to serve as an advocate for those individuals while promoting awareness throughout our communities. The network welcomes not only parents who have children with Down Syndrome, but also relatives, friends and any members of the community who want to be involved. 

18 W. Linden Street,
Wilkes Barre, PA 18702
570-287-0854

all@luzernecountydownsyndromenetwork.org
www.downsyndromenetwork.org



PARENTS OF DS OF NORTHEASTER PENNSYLVANIA

The Arc of NEPA, PODS of NEPA,
115 Meadow Avenue,
Scranton, PA 18505
570-346-4010
570-585-2962

finnertyk@comcast.net
www.thearcnepa.org/pods.html


POCONO PARENTS OF DOWN SYNDROME (PPODS)
The Pocono Parents Of Down Syndrome, (PPODS), is a northeastern Pennsylvania non-profit family and community based organization.  Their purpose is to help parents, families, friends, professionals, and persons with Down Syndrome by providing current resources for medical information, family support services, community based services and educational services. Public awareness, education and advocacy are strengthened through our association and commitments to the N.D.S.S. and Buddy Walk organizations.

Their goals are to develop and implement programs that will further enhance the lives of individuals with Down Syndrome by helping them to reach their fullest potential. These are achieved through family support, community awareness, social integration and educational enrichment.

12612 Big Bear Drive,
East Stroudsburg, PA 18302
570-476-1269

mabett0717@yahoo.com.mx
www.theppods.org


T21 CLUB OF THE DELAWARE VALLEY

Vision
The diversity of individuals in our society enriches the lives of the people in every community. We can demonstrate this on a large scale by engaging communities in events and activities that expose them to human diversity in ways that are both fun and fulfilling. Ultimately, we will foster communities of acceptance, equality, and compassion.

1118 Grant Avenue,
Philadelphia, PA 19115
215-990-8730

t21club@comcast.net
www.t21clubofthedelawarevalley.org


UPS & DOWN & ALL AROUND

2800 Nestling Road,
Philadelphia, PA 19154
215-990-8730

jh5366@comcast.net
www.freewebs.com/upsanddownsandallaround


YORK AREA DOWN SYNDROME ASSOCIATION

PO Box 7153
York, PA  27404

yadsagroup@gmail.com

www.yadsa.org
Robin Tolliver at
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