OREGON INTERVENTION PROGRAM
The Oregon Department of Education contracts with local agencies to provide a statewide system of free services for young children with developmental delays and disabilities and their families, including:
- Early Intervention (EI)--Individually designed services for children birth to three and support for parents to enhance children's physical, cognitive, communication, social or emotional and/or adaptive development;
- Early Childhood Special Education (ECSE)--Specially designed instruction for children ages 3 to the age of public school eligibility including physical, speech/language, mobility, social or emotional, and others.
http://www.ode.state.or.us/gradelevel/pre_k/eiecse/dyhcfinalenglish.pdf
Oregon Department of Education
255 Capitol Street NE Salem, OR 97310-0203
University of Oregon Early Intervention Program
http://eip.uoregon.edu/
EASTER SEALS
Easter Seals Oregon provides exceptional services to ensure that children and adults with autism and other disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities.
503-228-5108 (voice)
503-228-1352 (fax)
800-556-6020 (toll-free)
5757 SW Macadam Ave
Portland OR 97239
MEDICAID WAIVER PROGRAM:
OR ICF/MR Comprehensive Residential
Provides day hab-prevocational-supported employment, group care homes for adults, group care homes for children, respite, OT, PT, speech/hearing/language, comprehensive in-home support, crisis/diversion, environmental accessibility adaptations, family training, Hab-adult foster care, hab-children's DD foster care, Hab-supported living, non-medical transportation, specialized medical equipment and supplies for individuals w/DD, MR ages 0 - no max age
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/OR0117R0400.zip
OR Medically Fragile (Hospital) Model
Provides homemaker/chore, respite, PT/OT/speech and language, behavioral consultant, environmental accessibility adaptations, family training, non-medical transportation, special diets, specialized medical equipment and supplies, translation for medically fragile individuals ages 0-17
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/OR40193R0200.zip
OR Behavioral (ICF/MR) Model
Provides homemaker/chore, respite, PT/OT/speech and language, behavioral consultant, environmental accessibility adaptations, family training, non-medical transportation, special diets, specialized medical equipment and supplies, translation for individuals w/MR/DD ages 0-17
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/OR40194R0200.zip
TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)
Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.
Please check with your state office to see if TEFRA is offered in your state.
Please check with your state office to see if TEFRA is offered in your state.
GENETICS/M.D. SUPPORT IN OREGON
Down Syndrome Program
The Child Development and Rehabilitation Center
Doernbecher Children's Hospital
700 S.W. Campus Drive, 7th floor
Portland, OR
Phone: 503-346-0640 or 877-346-0640
CENTRAL OREGON DS NETWORK
Their mission is to promote a positive understanding of disability and community inclusion, as well as be a source of support, information, and education for families and professionals.
CODSN will accomplish this mission by empowering and supporting families and individuals who have been touched by disability. We will work to increase education, promote public understanding and acceptance, and encourage full inclusion of individuals with differences in our community.
6390 Southwest Nighthawk Avenue,
Redmond, OR 97756
541-548-8559
codsn1@yahoo.com
http://www.codsn.org/
DS ASSOCIATION OF SOUTHER OREGON
In 1979 a group of parents whose children had Down syndrome formed an organization called the Down Syndrome Parent Association which, in 1993, became the Down Syndrome Association of Southern Oregon. The vision of the founding parents was to provide networking and resources for families and promote positive awareness in our communities. DSASO remains steadfastly committed to enhancing and expanding the lives of individuals with Down syndrome and plays a vital role in providing education, outreach and support to families throughout the entire Southern Oregon region.
The Goals of DSASO are to:P.O. Box 5404,
Central Point, OR 97502
541-776-9805
mail@dsaso.org
http://www.dsaso.org/
DOWN SYNDROME NETWORK OREGON
Down Syndrome Network Oregon is a faith-based support group that provides comfort and acceptance for families, friends and individuals with Down syndrome. It is our goal to use community outreach events to create a vision of hope and awareness to demonstrate that every life brings value to the world.
P.O. Box 248,
Marylhurst, OR 97036
503-636-4860
imailto:info@dsnor.org
Paula@dsnor.org
http://www.dsnor.org/
NORTH COAST DOWN SYNDROME NETWORK
Provide support and resources
Encourage active participation in the community
Foster positive attitudes
Help individuals with Down syndrome reach their full potential
The Goals of DSASO are to:P.O. Box 5404,
Central Point, OR 97502
541-776-9805
mail@dsaso.org
http://www.dsaso.org/
DOWN SYNDROME NETWORK OREGON
Down Syndrome Network Oregon is a faith-based support group that provides comfort and acceptance for families, friends and individuals with Down syndrome. It is our goal to use community outreach events to create a vision of hope and awareness to demonstrate that every life brings value to the world.
P.O. Box 248,
Marylhurst, OR 97036
503-636-4860
imailto:info@dsnor.org
Paula@dsnor.org
http://www.dsnor.org/
NORTH COAST DOWN SYNDROME NETWORK
Provide support and resources
Encourage active participation in the community
Foster positive attitudes
Help individuals with Down syndrome reach their full potential
“The mission of the North Coast Down Syndrome Network
503-368-6892
northcoastdsn@nehalemtel.net
http://www.northcoastdsn.org/
NORTHWEST DOWN SYNDROME ASSOCIATION
Mission
Create and nurture a loving and inclusive community celebrating every person with Down syndrome.
The NWDSA will accomplish this mission by empowering and supporting families and individuals who have been touched by Down syndrome. They will work to increase education, promote public understanding and acceptance, work toward full inclusion, and defend the civil rights of individuals with Down syndrome. Their vision also embraces professionals and the cross disability community. Their statement of values is the core of their organization and the basis for how they make decisions to support their mission.
They believe that relationships are the cornerstones of their organization and that they should be both honored and nurtured.
P.O. Box 9127,
Portland, OR 97207
503-238-0522
503-238-0522
sholl2000@aol.com
ww.nwdsa.org
WILLAMETTE VALLEY DS ASSOCIATION
P.O. Box 8098,
Salem, OR 97303
503-769-7403 (Patie)
wvdsa.ptaylor@gmail.com
keriprince@gmail.com
OREGON COUNCIL OF DEVELOPEMENT DISABILITIES
Throughout the year, the Oregon Council on Developmental Disabilities listens to people like yourself who have a strong interest in the welfare of Oregonians with developmental disabilities and their families. They hear from you at forums, conferences and town hall meetings...in the media, on the Internet, through Oregon Perspectives and a host of other ways. They hear from:
is to promote community awareness and to build a supportive network
to empower all families and individuals with special needs.”
P.O. Box 456, Nehalem, OR 97131to empower all families and individuals with special needs.”
503-368-6892
northcoastdsn@nehalemtel.net
http://www.northcoastdsn.org/
NORTHWEST DOWN SYNDROME ASSOCIATION
Mission
Create and nurture a loving and inclusive community celebrating every person with Down syndrome.
The NWDSA will accomplish this mission by empowering and supporting families and individuals who have been touched by Down syndrome. They will work to increase education, promote public understanding and acceptance, work toward full inclusion, and defend the civil rights of individuals with Down syndrome. Their vision also embraces professionals and the cross disability community. Their statement of values is the core of their organization and the basis for how they make decisions to support their mission.
They believe that relationships are the cornerstones of their organization and that they should be both honored and nurtured.
P.O. Box 9127,
Portland, OR 97207
503-238-0522
503-238-0522
sholl2000@aol.com
ww.nwdsa.org
WILLAMETTE VALLEY DS ASSOCIATION
P.O. Box 8098,
Salem, OR 97303
503-769-7403 (Patie)
wvdsa.ptaylor@gmail.com
keriprince@gmail.com
OREGON COUNCIL OF DEVELOPEMENT DISABILITIES
Throughout the year, the Oregon Council on Developmental Disabilities listens to people like yourself who have a strong interest in the welfare of Oregonians with developmental disabilities and their families. They hear from you at forums, conferences and town hall meetings...in the media, on the Internet, through Oregon Perspectives and a host of other ways. They hear from:
- Self Advocates frustrated by the lack of rural and intercity accessible transportation.
- Direct Care Providers who receive poor pay for demanding jobs.
- Case Workers swamped with paperwork and heavy case loads.
- Families and Individuals who feel policy making does not reflect their needs.
- And many others with individual concerns and issues.
540 24th Place NE
Salem, OR 97301-4517
Email: ocdd@ocdd.org
Calling from Salem:
(503) 945-9941
Calling from elsewhere in Oregon:
(800) 292-4154 (Oregon)
Calling from Outside Oregon:
(503) 945-9941
FAX: (503) 945-9947
Facebook: http://www.facebook.com/OregonCouncilDD
http://ocdd.org/index.php/ocdd/
THE ARC OF OREGON
The Arc of Oregon, together with its network of members and affiliated chapters, advocates for the rights and full community participation of all children and adults with intellectual and developmental disabilities.
Salem, OR 97301-4517
Email: ocdd@ocdd.org
Calling from Salem:
(503) 945-9941
Calling from elsewhere in Oregon:
(800) 292-4154 (Oregon)
Calling from Outside Oregon:
(503) 945-9941
FAX: (503) 945-9947
Facebook: http://www.facebook.com/OregonCouncilDD
http://ocdd.org/index.php/ocdd/
THE ARC OF OREGON
The Arc of Oregon, together with its network of members and affiliated chapters, advocates for the rights and full community participation of all children and adults with intellectual and developmental disabilities.
Marcie Ingledue, Executive Director
Email: Marcie.Ingledue@arcoregon.org
Email: Marcie.Ingledue@arcoregon.org
Rose Rowe , Program Assistant
Email: Rose.Rowe@arcoregon.org
Email: Rose.Rowe@arcoregon.org
Elaine Friesen-Strang, Program Director
Guardianship, Advocacy & Planning Services (GAPS)
Email: Elaine.Strang@arcoregon.org
Guardianship, Advocacy & Planning Services (GAPS)
Email: Elaine.Strang@arcoregon.org
Lisa Hawke, Bingo Manager
The Arc of Oregon Facility - Eugene
Email: Lisa.Hawke@arcoregon.org
The Arc of Oregon Facility - Eugene
Email: Lisa.Hawke@arcoregon.org
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