Tuesday, June 12, 2012

Where to Start-Tennessee



TENNESSEE EARLY INTERVENTION PROGRAM


Tennessee's Early Intervention System is a voluntary educational program for families with children ages birth through two years of age with disabilities or developmental delays.
The principles of Early Intervention (EI) are:
  • The primary goal of EI is to support families in promoting their child’s optimal development and to facilitate the child’s participation in family and community activities.  The focus of EI is to encourage the active participation of families in the intervention by imbedding strategies into family routines.  It is the parents who provide the real early intervention by creatively adapting their child care methods to facilitate the development of their child, while balancing the needs of the rest of the family.
You may make a referral to TEIS by calling 1-800-852-7157, calling the office directly (TEIS SPOE Contact Information download pdf file) or by contacting Robin Crutcher at 615-253-2589 or by email.  If emailing, please write "referral" in the subject line.
Please provide your name, contact information, child's name, date of birth, county the child lives in, parent information (if someone other than the parent calls) and the developmental concern when making a referral.  A service coordinator will make several attempts to contact the parent within five days of the referral by phone and by mail.




EASTER SEALS

The mission of Easter Seals Tennessee is to provide exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their community.

3011 Armory Drive, Suite 100
Nashville, TN  37204

615-292-6640 (Phone)
615-251-0994 (Fax)
615-385-3485 (TDD)

http://tn.easterseals.com




MEDICAID WAIVER PROGRAM:

TN Self-Determination


Provides respite, nursing, nutrition, OT, PT, specialized medical equipment and supplies and assistive technology, speech/lanaguage/and hearing, adult dental, behavior services, behavioral respite, day services, emergency assistance, environmental accessibility mods, individual transportation, orientation and mobility services for impaired vision, personal assistance, PERS for individuals w/MR ages 0 - no max age and DD ages 0-5

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TN0427R0100.zip


TN HCBS Waiver for Persons w/MR


Provides residential hab, respite, support coordination, nursing services, nutrition services, OT, PT, specialized medical equipment and supplies and assistive technology, speech/language/and hearing services, behavior services, day services, dental services, environmental accessibility mods, family model residential support, individual transportation, medical residential services, orientation and mobility services for impaired vision, personal assistance, PERS, supported living, transitional case management, vision services for individuals w/MR ages 0 - no max age

https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TN0357R0200.zip




TN HCBS Waiver for MR/DD


Provides residential hab, respite, support coordination, nursing services, nutrition services, OT, PT, specialized medical equipment and supplies and assistive technology, speech/language/and hearing services, adult dental, behavior services, behavioral respite, day services, environmental accessibility mods, family model residential support, individual transportation, medical residential services, orientation and mobility services for impaired vision, personal assistance, PERS, supported living, transitional case management for individuals w/DD ages 0 - 5, and w/MR ages 0 - no max age


https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TN0128R0400.zip


TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.



GENETICS/M.D. SUPPORT IN MNEW HAMPSHIRE

Down Syndrome Clinic
Vanderbilt Children's Hospital Outpatient Center
5030 MCE
1215 21st Avenue
Nashville, TN
Phone: 615-343-3696



CHATTANOOGA DOWN SYNDROME SOCIETY

CHATTANOOGA DOWN SYNDROME SOCIETY is made up of people who have Down syndrome, their family members, and others who care about them in the Chattanooga region.
They were formerly known as UPPs (United Parents and Professionals) for DownS, although they changed their name a few years ago to become more easily accessible.
They offer periodic mini-conferences on issues pertaining to Down syndrome, send out a newsletter, and also sponsor social events for their membership.

5105 Tennessee Avenue,
Chattanooga, TN 37409
423-825-5450 (Cynthia)
423-618-9408 (Cynthia)
cynthia.young8@gmail.com
http://www.chattanoogadownsyndrome.org/




DS ASSOC. OF MEMPHIS AND THE MID-SOUTH

Began in 1973 as Down's Parents of Memphis. A small group of parents met while attending the first Early Intervention Program in Memphis at the Child Development Center. They began meeting to learn more about Down syndrome and to work to improve public awareness, while providing the most current care for their children. This group of parents went on to begin the early intervention program now known as Special Kids & Families. 
2893 South Mendenhall Road, Suite 3,
Memphis, TN 38115
901-547-7588
director@dsamemphis.org
dsam1@bellsouth.net
http://www.dsamemphis.org/



DOWN SYNDROME ASSOC. OF MIDDLE TENNESSEE

Down Syndrome Association of Middle Tennessee (DSAMT) is the definitive resource in Middle Tennessee for accurate andup-to-date information on Down syndrome and a community resource for self-advocates and their families, educators anddisability professionals.

111 North Wilson Boulevard,
Nashville, TN 37205
615-386-9002
dsamt@bellsouth.net
www.dsamt.org


DOWN SYNDROME ASSOC. OF WEST TENNESSEE

1804 Highway 45 Bypass, Box 110,
Jackson, TN 38308
660-2000
dsawt@att.net
bigutfan69@bellsouth.net
http://www.dsamt.org/


DS AWARENESS GROUP OF EAST TENNESSEE

The Down Syndrome Awareness Group of East Tennessee (DSAG), a volunteer-led 501(c)(3) organization, is a parent-initiated organization developed to provide information and support to families of individuals with Down syndrome (DS) and to raise awareness within the community about the abilities of individuals with DS and the benefits of their inclusion into society.

P.O. Box 53575,
Knoxville, TN 37950
865-202-8867
865-905-2968
dsagtn@hotmail.com
info@dsagtn.org
http://www.dsagtn.org/


FRIENDS (FRIENDS REACHING INSPIRING EDUCATING NEIGHBORS ABOUT DOWN SYNDROME

Our vision is to enhance the quality of life for people with Down syndrome and to increase knowledge and acceptance in the community.
P.O. Box 5677,
Johnson City, TN 37605
276-698-4861 (Sherry)
admin@dsfriends.net
http://www.dsfriends.net/


INTERNATIONAL DS COALITION FOR LIFE

IDSC for Life is dedicated to serving individuals with Down syndrome from conception throughout their lives. We will achieve this by supporting families who have been given a prenatal diagnosis of Down syndrome.  We direct families to accurate and up-to-date information about Down syndrome.   We extend our heartfelt compassion, and hope and healing to parents who who were pressured to terminate, and ended their pregnancy because of a Down syndrome diagnosis and later regret that decision.

Cordova, TN 38018
901-413-2047
idscforlife@gmail.com
http://www.idscforlife.org/


THE ARC OF TENNESSEE

The Arc Tennessee advocates for the rights and full participation of all people with intellectual and/or developmental disabilities. Through our family-based network of members and chapters, we support and empower individuals and families; connect and inform individuals and families; improve support and service systems; influence public policy; increase public awareness; and inspire inclusive communities.

151 Athens Way, Suite 100
Nashville, TN 37228
Phone: (615) 248-5878
Toll Free: (800) 835-7077
Fax: (615) 248-5879

No comments:

Post a Comment