SOUTH DAKOTA EARLY INTERVENTION PROGRAM
Bright Start (for South Dakota's Children) http://www.sdbrightstart.com
Children's Special Health Services http://www.state.sd.us/doh/Famhlth/child.htm
DAKOTALINK (South Dakota's Assistive Technology Project) http://dakotalink.tie.net
Department of Education (DOE) http://doe.sd.gov/
DOE/Special Education Programs http://doe.sd.gov/oess/specialed/index.asp
Easter Seals - www.easterseals.com
Parent Resource Network http://www.bhssc.org/sdprn/
South Dakota Advocacy Services www.sdadvocacy.com
South Dakota Coalition for Children http://www.sdcchildren.org/
South Dakota Literacy Resource Center http://literacy.kent.edu/~sdakota/
South Dakota Parent Connection www.sdparent.org
State of South Dakota Homepage www.state.sd.us/
Technology & Innovations in Education (TIE) http://www.tie.net
Transition Services Liaison Project http://www.tslp.org/
Transition Tackle box http://www.tslp.org/Tacklebox.htm
USD Center for Disabilities www.usd.edu/cd/
2008 Youth Leadership Forum - link to video http://www.tslp.org/YLF.htm
EASTER SEALS
Currently Easter Seals South Dakota serves in excess of 10,000 children and adults each year, with the number served climbing each year. Children and adults with disabilities and special needs find highest-quality services designed to meet their individual needs when they come to Easter Seals. Whether through a birth condition, injury or illness, or because of functional limitations experienced in aging, Easter Seals South Dakota, services are the first step toward helping people with disabilities gain greater independence.
1351 North Harrison
Pierre, SD
57501
Tel: 605-224-5879
MEDICAID WAIVER PROGRAM:
SD Family Support
Provides case management, personal care, respite, supported employment, companion care, environmental accessibility adaptations, nutritional supplements, specialized medical adaptive equipment an supplies, vehicle mods for individuals w/DD and MR ages 0 - no max age
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/SD0338R0200.zip
SD CHOICES
Provides day hab, provocational, residential hab, service coordination, supported employment, medical equipment and drugs, nursing, other medically related services-speech, hearing & language for individuals w/DD, MR ages 0 - no max age
www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Waivers/Downloads/SD0044.zip
TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)
Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.
Please check with your state office to see if TEFRA is offered in your state.
Please check with your state office to see if TEFRA is offered in your state.
GENETICS/M.D. SUPPORT IN SOUTH DAKOTA
General Genetics – Geneticist on site
Clinic: Sanford Children’s Specialty Clinic
1305 West 18th St., Sioux Falls
Description: This Clinic provides comprehensive services in the areas of diagnosis, prevention and management of genetic disorders and birth defects. Care is provided for newborns, children, adolescents and adults with concerns about any form of hereditary disorder. The clinic is staffed by a board-certified geneticist, Dr. Laura Davis Keppen, a board-certified genetic counselor, a registered dietitian, and a registered nurse. The team provides genetic services including diagnosis, evaluation, counseling, and management of genetic and congenital conditions.
Contact: 1-800-850-0064
General Genetics Outreach Clinics
Clinic: Sanford Children’s Specialty Clinic
Sites:
Aberdeen
Contact a genetic counselor at 1-800-850-0064 to arrange an appointment
Pierre
Contact a genetic counselor at 1-800-850-0064 to arrange an appointment
Rapid City
Contact a genetic counselor at 1-800-850-0064 to arrange an appointment
Description of clinic: This Clinic provides comprehensive services in the areas of diagnosis, prevention and management of genetic disorders and birth defects. Care is provided for newborns, children, and adolescents. The clinic is staffed by a board-certified geneticist, a genetic counselor, a registered dietitian, a social worker, and a registered nurse. The team provides genetic services including diagnosis, evaluation, counseling, and management of genetic and congenital conditions.
NEW DIRECTION DOWN SYNDROME ASSOCIATION
New Direction's mission is to provide information about Down syndrome, direction to resources, and networking opportunities.
New Directions strives to enhance the lives of individuals with Down syndrome throughout their lifespan by providing support, information and education to those individuals, their families, and professionals.New Directions also seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding individuals with Down syndrome.
P.O. Box 90712,
Sioux Falls, SD 57109
605-610-8026
UPS AND DOWNS FAMILY SUPPORT GROUP
P.O. Box 9005,
Rapid City, SD 57709
605-341-0151
GRANT COUNTY ARC
310 W 6th Ave
Milbank, SD 57252-2311
OAHE ARC
OAHE ARC
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