Help Getting Labs YOU Want?

 

 

 

 

Getting labs drawn is priority number 1 around here.  We are very fortunate to have the support that we need and are able to get the necessary labs drawn for Emmalin and Presley.  If you are unable to get labs drawn that you feel are necessary you do have other options.

 

 

DirectLabs is the leader in direct access laboratory testing. They offer a wide variety of important health and wellness blood chemistry tests directly to you online at extremely discounted prices. Confidential results are available online in as little as 24 hours for most tests.

 

DirectLabs offers their customers private and secure online accounts called "MyDLS" where you will access your orders, print your lab requisition, and retrieve your results.

 

https://www.directlabs.com/Home/tabid/36/language/en-US/Default.aspx

 

One Way to Get Supplement In

Emma's Morning Milk

Over the next few months I will be posting on this blog some of what I believe are the most important things that I add to Emma's daily diet.  From the very beginning we had to deal with reflux issues with Emma so there were some supplements that seemed to cause spit up for her.  One supplement that we continually had digestive issues with was Nutrivene D.  I attempted dosing every way possible but Emma just could not handle it.  I knew the importance of the Nutrivene so I began to look for ways to get other vitamins and minerals she needed through her food diet.  I will reintroduce Emma to Nutrivene later when I feel she may be able to handle it, but for now this is some of what we do:

First things first-we only use raw goat milk when available, if not we use store bought with Emma.  The proteins in cows milk are just too much for the belly and the dairy attributes to so many congestion problems.  You will not find a lot of medical people that will agree that milk = congestion, nor will you find studies that support it but I am here to tell you...when your child is miserable you will try anything and when we keep dairy out of Emma's diet, congestion and reflux are not an issue.  Our genetic doctors at Arkansas Children's Hospital also agree that eliminating dairy when congestion is an issue is the first step.  Not to mention the health benefits of goat milk greatly out weigh those of cow's milk. 


Learn more: http://www.naturalnews.com/031586_raw_goats_milk_health.html#ixzz2K9nsdv00

Keeping Emma's nose clear of congestion has created a child that breaths through her nose and not her mouth.  There are so many pieces to our puzzle, some small and some big...this is a big part of our equation to success.

 

 

Next is flax seed oil for a variety of reasons.  First, flax is a great source of fiber. Most Americans do not get enough fiber in their diet. Each tablespoon of flax contains about 8 grams of fiber. This helps keep the bowels regular.

Second, flax is a plant source of omega-3. Once again, most Americans are short on their omega-3 fatty acids. These essential fatty acids ("essential" meaning they must be consumed because our bodies don’t make them) play an important role in the anti-inflammatory system of our body. Flax contains the shorter chain omega-3 called ALA (alpha-linolenic acid). Thus, it is not a replacement for fish or fish oil supplements that contain DHA (docosahexaenoic acid) and EPA (ecosapentaenoic acid.)

Make sure that it has the "press date" shown to insure freshness.

Bernard Jensen's Rice Bran Complex is next on the list.   Rice bran complex is a concentrated combination of B-Vitamins which is easily absorbed into the body. These B-Vitamins work together to create a synergy to aid the conversion of food into energy, as well as help the nervous system recover from the effects of physical stress.  Each serving (15 ml) has 3 mg of Thiamin (B1), 187 mcg of Riboflavin (B-2), 53 mg of Niacin (B-3) and 50 mcg of Pryidoxine (B6).  I give Emma 5 ml with AM, Noon and PM cup of milk.



 

Then there is Bernard Jensen Black Cherry Concentrate Extra Quality.  It is thick, rich, and a good source of iron. It is made from the entire fruit including the skin and pit and it may be used as a sweetener. Although native to North America, wild cherry trees now grow in many other countries. The bark of the wild cherry tree is used for medicinal preparations. Wild cherry syrup has been used traditionally by herbalists to treat coughs and other lung problems. It has also been used to treat diarrhea and to relieve pain. Wild cherry tincture or syrup is sometimes recommended for coughs.

		Then there is Liquid Vitamin C.  The whole family gets extra Vitamin C every day and Emma is no exception. Vitamin C is one of the safest and most effective nutrients, experts say. It may not be the cure for the common cold (though it's thought to help prevent more serious complications). But the benefits of vitamin C may include protection against immune system deficiencies, cardiovascular disease, prenatal health problems, eye disease, and even skin wrinkling.       A recent study published in Seminars in Preventive and Alternative Medicine that looked at over 100 studies over 10 years revealed a growing list of benefits of vitamin C.    "Vitamin C has received a great deal of attention, and with good reason. Higher blood levels of vitamin C may be the ideal nutrition marker for overall health," says study researcher Mark Moyad, MD, MPH, of the University of Michigan. "The more we study vitamin C, the better our understanding of how diverse it is in protecting our health, from cardiovascular, cancer, stroke, eye health [and] immunity to living longer." "But," Moyad notes, "the ideal dosage may be higher than the recommended dietary allowance." How Much Vitamin C Is Enough? Most of the studies Moyad and his colleagues examined used 500 daily milligrams of vitamin C to achieve health results. That's much higher than the RDA of 75-90 milligrams a day for adults. So unless you can eat plenty of fruits and vegetables, you may need to take a dietary supplement of vitamin C to gain all the benefits, Moyad says. He suggests taking 500 milligrams a day, in addition to eating five servings of fruits and vegetables. "It is just not practical for most people to consume the required servings of fruits and vegetables needed on a consistent basis, whereas taking a once-daily supplement is safe, effective, and easy to do," Moyad says. He also notes that only 10% to 20% of adults get the recommended nine servings of fruits and vegetables daily. Moyad says there is no real downside to taking a 500-milligram supplement, except that some types may irritate the stomach. That's why he recommends taking a non-acidic, buffered form of the vitamin. "The safe upper limit for vitamin C is 2,000 milligrams a day, and there is a great track record with strong evidence that taking 500 milligrams daily is safe," he says. http://www.webmd.com/diet/features/the-benefits-of-vitamin-c Then there is the wonderful Vitamin D supplement.  Again another one that everyone in the family supplements.  We also supplement it higher than the RDA recommendation.  Especially during the winter months. Vitamin D may actually be the more critical vitamin when it comes to fighting off colds. An important member of Dr. Oz's anti-aging checklist, vitamin D plays a number of roles in our bodies, including: Promoting absorption of calcium and bone health Boosting immune function Reducing inflammation Healthy neuro-muscular function Protecting against some forms of cancer For such an amazing nutrient, vitamin D doesn't always get the attention it deserves, perhaps because very few foods in nature contain vitamin D. The best sources are salmon, tuna and mackerel (especially the flesh) and fish liver oils. Beef liver, cheese and egg yolks also contain small amounts. If these foods don't sound very appealing to you, there is good news: you don't have to eat vitamin D to make sure you're getting your daily dose! Vitamin D is actually produced in your body when ultraviolet rays from sunlight strike your skin. The UV rays trigger synthesis of vitamin D, which then gets converted in your liver into its active form. This means one of the best ways to get vitamin D is to spend about 10-15 minutes a day outside in the sun. Keep in mind that wearing sunscreen will prevent you from getting adequate vitamin D outdoors. In the summertime, an easy solution is skipping sunscreen on your legs for the first 15 minutes in the sun. Just make sure you apply in time to prevent any burns or damage. If this sounds complicated (or it's cloudy!), there's an even easier way to get your vitamin D: many foods in the American diet are fortified with this essential nutrient. In fact, fortified foods provide the majority of vitamin D in our diets. Almost all of the US milk supply is fortified with 100 units per cup - that's about 25% - 50% of the recommended daily dose! This means milk packs a double punch for bone strength. Milk contains a good amount of calcium and the additional vitamin D to ensure that your body absorbs all that calcium. So exactly how much Vitamin D should you aim for each day? For all ages, Dr. Oz recommends a daily dose of 400 IU (and perhaps even as high as 1000 IU).  Chad and I take 2000 IU and the kids are closer to the 1000 IU mark. Sambucus Elderberry, Echinacea and Propolis for Kids is next. Elderberry is a plant. The berries are used to make medicine. Do not confuse elderberry with American Elder, Elderflower, or Dwarf Elder. Elderberry is used for “the flu” (influenza), H1N1 "swine" flu, HIV/AIDS, and boosting the immune system. It is also used for sinus pain, back and leg pain (sciatica), nerve pain (neuralgia), and chronic fatigue syndrome (CFS) . Some people use elderberry for hay fever (allergic rhinitis), cancer, as a laxative for constipation, to increase urine flow, and to cause sweating. Elderberry fruit is also used for making wine and as a food flavoring. How does it work? Elderberry might affect the immune system. Elderberry seems to have activity against viruses including the flu, and might reduce inflammation. Then of course we use Children's DHA. DHA is required in high levels by the brain and retina as an essential nutrient to provide for optimal neuronal functioning (learning ability, mental development) and visual acuity. Studies have been done on children with autism and with other developmental differences, and the results showed that after 3 months of taking DHA & EPA, there was a 6 month improvement in reading and spelling levels, as well as significant behavioral improvements. http://downsyndromenewmama.blogspot.com/2010/03/supplementsdha-epa.html DHA is another one the whole family supplements.  DHA is important for brain and eye development and function throughout the life stages, but is particularly important during the first two years of life and early childhood. Between birth and five years of age, the human brain increases approximately 3.5 times in mass. During this time it is important that children consume adequate amounts of DHA in their diet to support this period of rapid brain and eye growth and development. DHA provides a number of important health benefits to children, including: Supports normal cognitive function Supports brain and eye development and function Supports a healthy heart Recently published research suggests that for children ages 7-9, who are under performing in reading showed improvement after adding DHA to their diet.  A healthy diet that achieves 600 mg of DHA daily may support improvements in reading, memory and behavior. Why It's Important to Provide DHA for Your Children American children consume an average of only 30 to 50mg of DHA per day. It’s no surprise that children consume less than optimal levels of DHA. Foods that naturally contain DHA are limited to organ meats and fatty fish, which are not commonly consumed by young children. In addition, picky and unbalanced eating habits, food allergies and a recent FDA warning for young children to limit consumption of certain types of fish due to concerns over high levels of mercury, make it difficult for parents to ensure their children are obtaining optimal levels of DHA. Fortunately, as awareness of the importance of DHA continues to grow, more attention is being paid to the fact that young children may benefit from getting more DHA in their diets. A growing awareness of the dietary sources of DHA and the inclusion of DHA into follow-on formulas and certain fortified foods are making it easier for people of all ages, including young children, to obtain this important nutrient from their daily diets. http://www.lifesdha.com/dha-at-every-age/children.aspx A fairly new one on our list is Black Cumin Seed Oil.  Black cumin is a part of the buttercup family and the seeds are dark, thin, and crescent-shaped when whole. The seeds have been used for many centuries in the Middle East, the Mediterranean and India. Today, black cumin seeds are used as a seasoning spice in different cuisines across the world due to their nutty flavor. Besides their culinary uses, black cumin seeds also have a wealth of important health benefits and are one of the most cherished medicinal seeds in history. The seeds of the black cumin plant contain over 100 chemical compounds, including some yet to be identified. In addition to what is believed to be the primary active ingredient, crystalline nigellone, black cumin seeds contain: thymoquinone, beta sitosterol, myristic acid, palmitic acid, palmitoleic acid, stearic acid, oleic acid, linoleic acid, linolenic acid, arachidonic acid, protein, vitamin B1, vitamin B2, vitamin B3, folic acid, calcium, iron, copper, zinc, and phosphorous. Black cumin seeds have a particularly long and strong history of use in Egypt. When archaeologists found and examined the tomb of Egyptian boy-king Tutankhamen (King Tut), they found a bottle of black cumin oil, which suggested that it was believed to be needed in the afterlife. Physicians to the Egyptian pharaohs frequently used the seeds after extravagant feasts to calm upset stomachs. They also used the seeds to treat headaches, toothaches, colds, and infections. Queen Nefertiti, renowned for her stunning beauty, used black seed oil, likely due to its abilities to strengthen and bring luster to hair and nails. Hundreds of studies have been conducted on black cumin which have shown that compounds from the seeds help fight diseases by boosting the production of bone marrow, natural interferon, and immune cells. Several of the studies have shown that black cumin seed extract could assist individuals with autoimmune disorders and could possibly help to fight cancer. One recent study on black cumin seed oil demonstrated that it was effective against pancreatic cancer, one of the deadliest and most difficult to treat cancers. See: www.naturalnews.com/023348.html Learn more: http://www.naturalnews.com/030800_cumin_seeds_health.html#ixzz2KNR2KhbR I saved the best for last.  Some will disagree with this but it will continue to stay in Emma's daily diet for all of its benefits or until her doctors and nutritionist change their opinion of what is right for Emma.  Here is a good article regarding raw eggs: The Health Benefits of Raw Eggs By John Claydon D.Hom The process of cooking eggs destroy the very goodness that our bodies so desperately need as the nature of proteins and fats is altered when exposed to heat. When cooked, the egg protein changes its chemical shape; it is often this process that can be the cause of allergies. Generally when eating raw eggs, any incidence of egg allergy will disappear. Surprisingly, in spite of ‘bad press’ raw eggs, organic or at least from a known source of healthy free-range chickens, are an excellent health tonic. The regular consumption of raw eggs will do wonders for your overall health. Exceptionally easy to digest, raw eggs provide a wonderful boost to the immune system, and a completely balanced nutritional package. A good immune system is one of several things the body needs to overcome cancer. Many people’s diets are deficient in high quality proteins and fats, and eggs are one the very best sources of these. Raw eggs have many benefits, they contain essential nutrients for the brain, nerves, glands and hormones, they are nutritionally balanced, and we highly recommend the addition of raw eggs to your nutritional program. The sulphur amino acids help to keep you young, raw eggs also contain an abundance of other vital substances including protein, essential fatty acids along with niacin, riboflavin, biotin, choline, vitamins A, D and E, magnesium, potassium, phosphorous, manganese, iron, iodine, copper, zinc and sulphur. Egg yolks are one of the few foods that contain vitamin D. Poisoning from salmonella has been exaggerated in the past. A study by the U.S. Department of Agriculture in 2002 indicated that only 2.3 million, of the 69 billion eggs produced annually, are contaminated with salmonella. In other words 0.003% or 1 in every 30,000 eggs. The bulk of these come from battery chicken eggs and chickens kept in unhealthy conditions - only sick chickens lay salmonella contaminated eggs. If only healthy chicken eggs (organic and free range ideally) are consumed, then far less than one in 30,000 eggs are contaminated. Salmonella is a common micro-organism found almost everywhere, and is just as likely, or more likely, to proliferate on cooked food kept in the fridge. Infection is normally mild gastric symptoms, but in rare cases where the immune system is very low such in the elderly who have had much anti-biotic use, and the source is greatly contaminated, death can result. But such a person is highly likely to contract one of many common micro-organisms and die from that. To give some perspective, in the highly unusual situation of contracting Salmonella, in a healthy person, an infection is nothing to worry about and is easily treated with high quality pro-biotics every half an hour until you feel better.
		Now I know that it seems overwhelming but it is not.  I mix it up the night before and put it in our magic  bullet (my favorite thing in our kitchen).

I keep a laminated index card that has the ingredients to different things that I make for the family.  I have Emma's milk, our smoothies and thermocereal.  Each night I make Emma's milk and our smoothies and put them in the refrigerator.  When we wake up in the morning all we have to do is blend and off we go.

Please know that this is what WE do.  There are some things that I do with Emma that Robin does not do with Presley and vice versa.  All of our children are individuals and need different things.  This, in my opinion, is what Emma needs.  I have discussed this with her doctors and nutritionist and they too agree with her diet-every part of it. They may not all promote this diet for everyone, but support this diet for what it is...Emma's diet.  Please research what is right for YOUR child. 

Below is a break down of the cost of each item. 

Bernard Jensen Rice Bran Syrup is around $13.00 for 16 oz.  (473 ml).  I give Emma 15 ml per day so it will last around 1 month.

Bernard Jensen Black Cherry Concentrate is around $16.00 for 16 oz. (473 ml). I give Emma 15 ml per day so it will last around 1 month.

Flax Seed Oil is around $17.00 for 16 oz.  I give Emma 5 ml per day so it will last close to 3 months. 

Liquid C is $5.00 for 8 oz. (237 ml) and I give Emma 5 ml per day so it will last around 1 1/2 month.

Vitamin D is around $9.00 for .34 oz.  Emma gets 4 drops in her milk each day so it too will last me 3 months.

The Organic Valley Eggs run around $3.50 for a dozen so that breaks out to about $.29 per egg which equals $8.50 per month.

The Sambucus is between $10.00-$15.00 depending on where you get it.  I will split the difference to be fair so we will say $12.50 for 8 oz.  Emma gets 5 ml per day so it to will last about 1 1/2 month.

Black Seed Oil is $18.00 for 8 oz. but I only put a squirt of it in.  I am on my first bottle but it will probably last well into 6 months.

Children's DHA is $35.00 for 16 oz. and Emma gets about 5 ml of it every day so it will last a little over 3 months.

That puts our average monthly cost for this item at $53.00 plus the cost of the milk.  The milk would be an expense regardless.  I only took 1/3 of the cost of the Bernard Jensen products for sake of figuring the cost of this particular serving of milk.  Emmalin has 3 items in her diet that our essential and this is one of them.

But like I said before...this is what works for us.  Emma is currently 19 months old, 25 lbs and a little over 31 inches long.  She had her heart surgery at 3 1/2 months and we have battled thyroid problems since before her surgery.  Our little Down syndrome darlings tend to be so small and sickly.  Emma's success with her growth and her continued days of being healthy I attribute to her overall diet.  I have only taken Emma to the doctor two times for what I considered a "sickness" and it turned out to be the common cold.  There was not a fever associated with either time, I am just overly cautious this year with everything that is going around.  Also, please remember that I have been giving Emma some crazy mixtures all along so she does not mind all of this mixed together.  When she starts turning her nose up I will have to readjust, but it works for now.

I really want to take the time to thank some people that have greatly influenced me and who continue to guide me down a road that many physicians refuse to travel.  Dr. Julian Neil, Dr. Jane Miers, Dr. Steven Kahler and Robin Tolliver are incredibly kind souls who continually help me to do what is best for Emma.  They listen to my concerns and suggestions and I listen to their guidance.  They help me monitor her lab work and we adjust her diet accordingly.  Emma's diet will be changed over the course of time depending on what her body needs and I am confident in knowing that she is in great hands.  My daughter will be all that she can be with people like this in our lives.

 

Dr. Julian Neil

http://drjulianneil.com/about

 

 

 

Dr. Steven Kahler, Medical Genetics

 

 

Dr. Jane Miers

 

 

Nurse Crystal (we lover her)

Thank you Jesus for guiding all of us through our journey.

Building a Healthy Immune System

Most parents say “I would do anything for my child”, sometimes this requires stepping beyond your comfort zone and trying things you never would have tried or believed in before.  As a medic, LPN, RN, then Physician Assistant, I have been in the medical arena for over 20 years.  I have had lots of experience handing out antibiotics to all ages.  However, when Presley was born with Down Syndrome, I began looking into ways to prevent illness more than ever.  Most children with DS begin life with a weaker immune system, which can lead to more frequent infections which can also end up more severe.  As a infant/toddler, their tendency to have very small ear canals set them up for repetitive ear infections and potentially surgery for tube placement.   Ear infections can lead to permanent hearing loss (very common with DS), which directly affects their ability to learn.  So, I wanted to influence and strengthen her immune system to help avoid all of this if possible.  Below is the list of things I do, I believe that each activity helps a little.  so cumulatively, they could help a lot.  I hope this will give you some ideas to discuss with your child's primary care physician and areas to research for yourself.

1.   Healthy diet:  I highly recommend the previously posted recipes recommended by our nutritionist that are full of incredible nutrition.  Please see    http://www.3of21.com/2012/12/give-your-child-healthy-advantage-with.html .   One recipe called Thermos Cereal contains grains, nuts, seeds, while the other is a Potato Peel broth made from fresh vegetables.  We do choose organic when possible.   We avoid sugars, processed foods, and “junk food” in general.  We are gluten free and very light on dairy (occasional cheese).  You greatly influence your ability to fight off infections by the foods you choose.    We choose lots of fresh fruits and vegetables.  Presley starts off each morning with a green smoothie with strawberries (vit C), bananas, apples, elderberry, and probiotics each morning.  See here more information about our smoothies and breakfast routine.   Our second smoothie for the day can be made with the potato peeling broth and frozen fruits for additional nutrition.

2.  Targeted Nutritional Intervention:  A typical child’s diet can be lacking in all the proper nutrients or with the numerous gut issues, there can be a nutrient absorption issue.  Children with DS require specific additional nutrients and extra antioxidants to keep their body functioning at their best.  There are several vitamin supplements designed for DS, such as Nutrivene or MSB.  We do specific lab testing each year to assess and give more individual supplements based on her nutritional needs.  

3.  Vitamin D:  Additional Vitamin D is helpful during the winter months since the days are shorter, and the cooler weather keeps children indoors more.  We use a liquid supplement daily of 2000mg orally, but you should test your child's blood level to see what their baseline is initially.  I try to take the girls outside to play for a minimum of 30 minutes each day.  They love being outside, nature therapy is always the best.

4.  Sambucus :  this is a children’s syrup containing Elderberry, Echinacea, and Propolis.  It can be given once or twice a day during an acute illness to strengthen the immune system or daily prophylactically.  My girls like the taste of plain elderberry that we make.  Here is Tricia's recipe for it, easy and cheaper to make yourself.  I put it in in Presley's smoothie each morning.  Here is a link to it on amazon.

5.  Humidifier:  During the winter months, we have humidifiers going in the house almost at all times, but especially at night where the children sleep.  Heated air within a home can be very dry.  Humidifiers keep the nasal passages moist, and therefore less likely to let infectious invaders through the mucus membrane barrier.  Also, it thins any mucus present during a respiratory infection, thus making it easier to clear.  Humidifiers decrease the dry skin effect of winter, therefore protecting the first line of defense.

 6.  Handwashing:  we do a lot of handwashing.  Most of us wipe the shopping cart down before we go into the grocery store now, but what about after you touch everything in the store?  I use a homemade hand santitizer as soon as we get to the car, followed up by a soap and water handwash when we get home.  Infectious germs can remain alive on inanimate surfaces for several hours, so when you touch the surface then rub your eye, nose, or child’s face, then you just contaminated yourself.  Teach good hygiene.

7.  Avoid crowds: We avoid highly populated areas during the flu season or choose to do these activities during the week when other children are in school or first thing in the morning after the germs have died off during the night.  Shopping with the new "click list" at places like Kroger could be helpful to limit additional exposures.

8.  Chemical free cleaning:  We avoid using a lot of chemicals in our household.  Children’s immune system work over time if they attend day care or school, so it is best to avoid unnecessary exposures when possible.  Just one thing less their immune system has to tackle.  We have used environment friendly (“green”) laundry detergents and now make our own, dish soap, and household cleaners (bakin soda and vinegar can be used on almost anything).  No dyes, no fake scents.   It is also recommended to air out your home every so often.  During the winter months, you can close the door to one room and open the windows and rotate them a couple of times a week.

9.  Probiotics:  a healthy gut is a must.  Probiotics keep healthy normal flora within the digestive tract.  It is stated that 70-80% of the immune system is located within the gut.  I give goat milk almond milk, or coconut milk yogurt daily.  Dairy is notorious for increasing mucus during an illness, so we avoid or minimize it.   We have tried a variety of different probiotics, so I will not list each of them, because the probiotic that works for one child may not be the best for another.   We also alternate probiotic kinds to keep a variety within the digestive tract.   We have also tested her gut bacteria using websites like Viome to see what her baseline is and ensure she has a adequate population of good bacteria.   Some people have had success using protocols like Nemecheck to help restore proper gut function.   Please discuss with your doctor.

10.  Vitamin C:  We give powdered vitamin C to both of our girls each morning in their green smoothie or applesauce.    It was also recommended by our specialist to try a vitamin C flush.  See here to learn more and discuss with your physician.

11.  Chiropractor:  we are fortunate to have a pediatric chiropractor in Little Rock.  Muscles can tighten during illnesses, stress or from everyday occurrences.  This can pull the spine out of line.  Please visit Dr John Vincent’s webpage and watch his informative video about how chiropractic care can help with respiratory illness, ear infections, and the immune system.  I was skeptical initially, but I took Presley when she had a fever over 102 for two days, and I was amazed when it completely resolved within two hours of an adjustment.  Video explaining chiropractic care: http://www.chenalchiropractic.com/doctor/chiropractor/184S/chiropractic-Little%20Rock/orientation-video.htm and for ear infections:  http://www.chenalchiropractic.com/doctor/chiropractor/306S/chiropractic-Little%20Rock/ear-infections.htm

12.  Garlic:  I cook with garlic almost daily.  Garlic has antimicrobial properties.  I also use turmeric in most meals, as it is an anti-inflammatory and is the precursor to circumin, which is very popular for DS.  I also give the girls 1/4 tsp liquid garlic daily in their smoothie and 1/2 raw clove in my smoothie each morning.

13. Massage:  this relaxes the muscles and calms the body.  I attempt to rub the girls down with coconut oil once or twice a day.  Coconut oil is another great topic for DS, especially concerning Alzheimer’s disease.

14. Exercise:  this is good for everyone.  Active children are more likely to be healthier than sedentary children indoors playing video games.  Go for a walk.   Fresh air is great for you. 

Be sure to hydrate, hydrate, hydrate!

15.  Laughter:  we have all heard the saying “laughter is the best medicine”.   Dad takes care of the “tickle-fests” each day.   It warms my heart to hear them laughing.  Make sure you take the time to hear your child laugh each day by spending individual time with them.

16.  Aromatherapy:  After reading how some DS moms put oils in humidifiers when their children were sick,  I purchased the book “The Complete Book of Essential Oils and Aromatherapy ” by Valerie Ann Worwood.  It only costs about $7 on Amazon.  It opened a whole new world of being able to treat our children without medicine.  For example, if the girls have a runny nose, I may mix rosemary, lavender, and eucalyptus oils in a carrier oil base like sweet almond.  Have you ever read the ingredients in vick’s baby rub?  This is exactly what they use, except in a petroleum base.  I can add other things if I believe they have an infection, like tea tree oil.  Tea tree oil has been documented effective against MRSA, a nasty bug resistant to most medications.  I also infuse a mixture called “Plague defense” (aka thieves oil) or “Respiratory relief” after potential exposures or at the first sign of illness.  I can also add a few drops of lavender and eucalyptus to their baths.  It doesn’t take much.  I put a few drops of recommended oils in their humidifiers each night too.  I have moistened a Q-tip with Myrtle and put into each nostril, as was recommended for a persistent runny nose.  All congestion stopped within minutes and lasted 3-4 hours.  The oils are reasonably priced and last a long time.   To learn more, please see my previous post concerning Aromatherapy.

17.  Detox:    Children with DS have lower levels of natural glutathione, the body's super antioxidant as a side effect of the extra chromosome. So, we attempt to limit harmful exposures as we can through our diet and our environment to avoid overburdening the body.  We have done heavy metal testing through our physician and took appropriately lab monitored measures to counteract what we found to help the body function more optimally.   Some other ideas to help the body do its job is adding cilantro to food/smoothies, ionic footbaths, Epsom salt baths, filtered water, filtered shower head for baths, decreased screen/EMF exposures, infared sauna, and reflex integration using a low level laser.   Some other items to look into and discuss with your doctor include AMLA (highest antioxidant value of anything), black seed oil, oregano, aloe, moringa, turmeric or curcumin,  and green tea.

As always, I am not attempting to diagnose, treat, or cure any disease or medical condition.  Use this information as a launching point to discuss with your physician. 


Blessings,
Robin