TEXAS EARLY INTERVENTION PROGRAM
ECI is a statewide program for families with children, birth to three, with disabilities and developmental delays. ECI supports families to help their children reach their potential through developmental services. Services are provided by a variety of local agencies and organizations across Texas.
Department of Assistive and Rehabilitative Services
4800 N. Lamar Blvd.
Austin, Texas 78756
DARS Disability Determination Services
P.O. Box 149198
Austin, TX 78714-9198
DARS.Inquiries@dars.state.tx.us
For information on
- Early childhood intervention services
- Rehabilitation services
- Services for people who are deaf or hard of hearing
- Services for people who are blind or visually impaired
- Disability determination services
1-800-628-5115 or TTY 1-866-581-9328
http://www.dars.state.tx.us/ecis/
EASTER SEALS
Easter Seals Central Texas
Easter Seals Central Texas provides exceptional services so people with disabilities and their families can fully participate in their communities.
512-478-2581 Phone
512-476-1638 Fax
Or, via regular mail:
Easter Seals Central Texas
1611 Headway Circle - Building 2
Austin, TX 78754
Easter Seals North Texas
Creating opportunities that advance the independence of individuals with disabilities and other special needs.
Fort Worth Center
817-332-7171 (voice)
817-332-7601 (fax)
888-617-7171 (toll-free)
Carrollton Center
972-394-8900 (voice)
972-394-6266 (fax)
888-617-7171 (toll-free)
Or, via regular mail at:
1424 Hemphill Street
Fort Worth Texas 76104
Easter Seals East Texas
Easter Seals East Texas Inc.’s mission is to provide exceptional services to ensure that all people with disabilities, special needs or functional limitations have equal opportunities to live, learn, work and play in their communities.
979-776-2872 (Bryan voice)
903-794-2705 (Texarkana voice)
979-776-1456 (Bryan fax)
903-793-1203 (Texarkana fax)
903-793-0086 (Texarkana tdd)
Or, via regular mail at:
Brazos Valley Rehabilitation Center,
1318 Memorial Drive, Bryan, TX 77802
Temple Memorial Rehabilitation Center,
1315 Walnut Street, Texarkana, TX 75501
MEDICAID WAIVER PROGRAM:
TX Medically Dependent Children Program (0181.R04.00)
Provides respite, adaptive aids, adjunct support, FMS, minor home mods, transition assistance for medically fragile individuals ages 0 - 20
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TX0181R0400.zip
TX Youth Empowerment Services (YES) (0657.R00.00)
Provides respite, adaptive aids and supports, community living supports, family supports, minor home mods, non-medical transportation, paraprofessional services, professional services, specialized psychiatric observations, supportive family-based alternatives, transitional services for individuals w/SED ages 3-18
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TX0657R0000.zip
TX HCBS Program (0110.R05.00)
Provides case management, day hab, respite, supported employment, prescription, FMS, support consultation, adaptive aids, dental treatment, minor home mods, residential assistance (foster/companion care, supervised living, residential support), skilled nursing, specialized therapies (speech and language pathology, audiology, OT, PT, dietary, behavioral supports, social work), supported home living for individuals w/MR/DD ages 0 - no max age
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TX0110R0500.zip
TX Community Living Assistance & Support Services (0221.R04.00)
Provides adult day health, case management, prevocational, residential hab, respite, supported employment, adaptive aids/medical supplies, dental, OT, PT, prescriptions, skilled nursing, speech/hearing/language, FMS, support consultation, behavioral support, continued family services, minor home mods, specialized therapies, support family services, transition assistance for individuals with DD ages 0 - no max age
https://www.cms.gov/MedicaidStWaivProgDemoPGI/downloads/TX0221R0400.zip
TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)
Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.
When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.
Please check with your state office to see if TEFRA is offered in your state.
GENETICS/M.D. SUPPORT IN TEXAS
Santa Rosa Health Care Birth Defects ClinicChildren's Hospital 519 W. Houston Street San Antonio, TX Phone: 210-704-2387 | Down Syndrome Clinic Children's Medical Center of Dallas, 4th Floor 1935 Motor Street Dallas, TX Phone: 214-648-8996 |
Cook Children's Hospital 1300 W. Lancaster Ft. Worth, TX Phone: 817-335-3207 or 800-266-5514 | Down Syndrome Clinic of Houston Texas Children's Hospital, Clinical Care Center 6621 Fannin, Suite CCC 1530 Houston, TX Phone: 832-822-3478 |
Children's Hospital of Austin Specialty Clinics, One Children's Place 1400 IH 35 Austin, TX Phone: 512-324-8838 | Adolescent and Young Adult DS ClinicTransitional Medicine Clinic Baylor Clinic 6620 Main St., Suite 1250 Houston, TX Phone: 713-798-0216 |
BUDS (BETTER UNDERSTANDING OF DOWN SYNDROME)
BUDS purpose is
to:
Educate, inform and support families who have loved ones with
Down syndrome.
Provide support and encouragement to new parents of babies with
Down syndrome.
Organize educational and social opportunities for individuals
with Down syndrome and their families that help encourage social and physical
development.
Give important, current information and support to our families
through our quarterly newsletter, website, and e-mail updates.
Promote literacy and lifelong learning opportunities for
individuals with Down syndrome of all ages.
5618 84th,
Lubbock, TX 79424
806-794-1366
buds@budsonline.net
llowe@budsonline.net
www.budsonline.net
DOWN BY THE BORDER
The mission of Down by the Border is to enhance the quality of life and provide support to persons with Down syndrome and their families through promotion of public awareness, advocacy and information sharing with a distinct goal in mind to help individuals with Down syndrome fulfull their dreams and life aspirations.
15 West Madison, Suite A,
Brownsville, TX 78520
956-541-2085
zariahzarate@yahoo.com
www.downbytheborder.org
DOWN SYNDROME ASSOCIATION OF BRAZOS VALLEY
2910 Horseback Court,
College Station, TX 77845
979-778-7010
dsabv@yahoo.com
www.downsyndromeofbcs.com
DOWN SYNDROME ASSOCIATION OF CENTRAL TX
Mission is to provide education, support, and resources to individuals with Down syndrome, their families and professionals and the community while building public awareness and acceptance of the abilities of individuals with Down Syndrome.
3710 Cedar Street, Box 3,
Austin, TX 78705
512-451-3110
info@dsact.com
www.dsact.com
DOWN SYNDROME ASSOCIATION OF EL PASO
The Down Syndrome Association of El Paso was established in 2007. The primary purpose of our organization is to provide support and education to families who have children with Down Syndrome. Down Syndrome is a chromosomal abnormality which affects people of all ages, races and economic levels.
3124 Tierra Agave,
El Paso, TX 79938
915-269-5552
dsaofelpaso@yahoo.com
http://dsaep.org
DOWN SYNDROME ASSOCIATION OF HOUSTON
The Down Syndrome Association of Houston (DSAH) has been an important part of the Greater Houston community for almost 40 years. What started out as a small group that met in the basement of Texas Children’s Hospital has grown into a thriving, multi-faceted program with our office located at 7015 W. Tidwell, Bldg. G, Suite 108, in Houston and more than 1,500 members from all over the Houston area. DSAH has branched out into community groups in Baytown, Katy, North Side, Pearland, Spring, and The Woodlands, and others are forming.
7015 West Tidwell, Building G, Suite 108,
Houston, TX 77092
713-682-7237
info@dsah.org
president@dsah.org
www.dsah.org
DOWN SYNDROME ASSOCIATION OF SAN ANTONIO
Down Syndrome Association of San Antonio's mission is to provide services and support for children and adults with Down syndrome and their families in San Antonio and the surrounding areas.
Through partnerships with other agencies, medical professionals, educators, and parents, the DSASTX gathers and shares resources and information for those with Down syndrome and their families.
The DSASTX provides opportunities for families to foster friendships and offer mutual support through Parent Support Group meetings, community-based social activities, special events, and educational programs.
4702 West Avenue, Suite 6,
San Antonio, TX 78213
210-349-4372
downsynassc@dsasa.org
tmauldin@dsasa.org
www.dsasa.org
DOWN SYNDROME FOUNDTION OF SOUTH TEXAS
744 CR 245,
Hallettsville, TX 77964
361-772-6053
downsyndromefoundation@yahoo.com
DOWN SYNDROME GUILD OF DALLAS
What is the Mission of the Down Syndrome Guild (DSG)? To provide accurate and current information, resources and support for people with Down syndrome, their families and the community.
1702 North Collins Boulevard, Suite 170,
Richardson, TX 75080
214-267-1374
dsged@sbcglobal.net
www.downsyndromedallas.org
DOWN SYNDROME LEAGUE OF VICTORIA
P.O. Box 4002,
Victoria, TX 77903
http://www.facebook.com/pages/Down-Syndrome-League-of-Victoria/136629947106
DOWN SYNDROME PARTNERSHIP OF TARRANT COUNTY
The Down Syndrome Partnership of Tarrant County benefits the lives of people with Down syndrome and their families by providing information, social and educational activities and support designed to help achieve the universally desired goals of self-fulfillment, pride in one’s achievements and acceptance and inclusion in the community.
1300 West Lancaster Avenue, Suite 227,
Fort Worth, TX 76102
817-390-2970
info@dsptc.org
www.dsptc.org
EAST TEXAS DOWN SYNDOME GROUP
The East Texas Down Syndrome Group provides information, education, and moral
support to families in East Texas. Our biggest activity of the year is a “Buddy
Walk” affiliated with the National Down Syndrome Society. This is a fundraiser
for our group. The purpose of the walk is to get our families and the community
involved to promote acceptance and inclusion of people with Down syndrome. There
are many activities throughout the year that allow our families to get together
and share our experiences with each other and build friendships. There are
bi-monthly meetings to discuss ideas for fellowship, education opportunities for
our members, guest speakers or training opportunities, a Spring Fling Family
Picnic, a New Member Coffee, and play-dates for toddlers, youth and teen
outings, & special gatherings for our adults.
P.O. Box 6604,
Longview, TX 75608
903-757-3516
info@etdsg.org
lmack@etdsg.org
www.etdsg.org
GREATER CLEAR LAKE FAMLIES EXPLORING DOWN SYNDROME
The mission of GCLFEDS is to provide support and
resources to individuals with Down syndrome and their families and to promote
awareness, understanding and inclusion in their communities.
4202 Cedar Ridge Trail,
Houston, TX 77059
832-457-2775
gclfeds@clearlakeds.org
www.clearlakeds.org
HEART OF TEXAS NETWORK FOR DOWN SYNDROME
Heart of Texas Down syndrome Network is a nonprofit organization committed to supporting the community and help them better understand individuals that are diagnosed as having Down syndrome in Central Texas. The group first started in late 2010. It is the vision of the parents of a son born with Down syndrome that wanted to share their experiences with other families of special needs children.
9915 Burgundy Lane,
Waywood, TX 76712
254-230-9782 (Alice)
support@hotnds.org
www.hotnds.org
INTERNATIONAL MOSIAC DOWN SYNDRIOME ASSC.
"IMDSA is designed to support any family or individual
whose life has been affected by Mosaic Down syndrome by continuously pursuing
research opportunities and increasing awareness in the medical, educational and
public communities throughout the world."
P.O. Box 354,
Franklin, TX 77856
imdsapresident@imdsa.com
www.imdsa.org
PANHANDLE DOWN SYNDROME GUILD
The Panhandle Down syndrome Guild was founded in 2002 to promote a
greater understanding of the medical and developmental aspects of Down syndrome.
Along with the National Down syndrome Society (NDSS), which is the largest
non-governmental supporter of research and advocacy, and the National Down
syndrome Congress, PDSG strives to improve the lives of those persons in the
Panhandle whose lives are affected by Down Syndrome. The Panhandle Down syndrome
Guild increases public awareness about Down syndrome, to assist families in
addressing the needs of children born with this genetic condition, and to
sponsor community events. They work with the NDSS to dispel the myths associated
with Down syndrome, while helping people with Down syndrome achieve their full
potential in community life. PDSG develops and disseminated current information
materials, as well as, plans activities to increase an acceptance of people with
Down syndrome.
P.O. Box 20783,
Amarillo, TX 79114
806-670-1568 (Vicki)
806-382-2326 (Jeff)
panhandledsg@yahoo.com
www.panhandledsg.net
PARENTS OF SPECIAL KIDS SUPPORT GROUP
Steps 2 Strides Therapy Center,
2300 West Morton Street,
Denison, TX 75020
903-462-4085
marybeth.edgette@steps2strides.com
stacy.gudgel@steps2strides.com
RED RIVER VALLEY DOWN SYNDROME SOCIETY
The mission of the Red River Valley Down Syndrome Society
is to improve the lives of individuals with Down syndrome and other
disabilities through support, education, awareness and
advocacy.
P.O. Box 6455,
Paris, TX 75461
877-273-4045
903-783-1922
info@rrvdss.org
tphillips@rrvdss.org
www.redriverdss.org
RGV DISCOVER LIFE
RGV Discover Life Inc. is created to inform and educate new and expecting parents about Down syndrome. We are a new organization in the Rio Grande Valley determined to help and inform parents and families about the special needs and potentials of babies with Down Syndrome.
3100 South 2nd, #21,
McAllen, TX 78503
956-907-3851
956-907-3851
down.org@gmail.com
http://rgvdiscoverlife.110mb.com
THE ARC OF TEXAS
Since our founding in 1950 by a group of parents of children with intellectual and developmental disabilities, The Arc at the local, state and national level has been instrumental in the creation of virtually every program, service, right, and benefit that is now available to more than half a million Texans with intellectual and developmental disabilities. Today, The Arc continues to advocate for including people with intellectual and developmental disabilities in all aspects of society.
8001 Centre Park Drive
Austin, Texas 78754
Directions to office.
http://www.thearcoftexas.org