Medicaid Waiver

Forty-four (44) states and the District of Columbia have received waivers to provide home- and community-based services to people with developmental disabilities (DD). Depending on each state's DD definition, these waivers may cover services to people with autism.

Colorado, Indiana, Maryland, and Wisconsin have waivers specifically addressing autism. They all limit waiver services to children. The first three states' waivers are only for children with autism. Wisconsin provides intensive in-home autism treatment under two broader waivers, one for children with DD and the other for children with social and emotional disorders. In Indiana and Wisconsin, children eligible for autism-specific services are also eligible for services under other Medicaid waivers.

All 50 States where interviewed about their programs for persons with developmental disabilities and asked the same 10 questions:                             

1. What Programs Are Available To Assist People With Disabilities in your state?
2. What number do you call to start getting services?
3. Who Qualifies For Assistance? (disability, age, and financial requirements)
4. How many people are currently waiting for services, and how many years should they expect to wait?
5. How many people are currently receiving services?
6. What assistance is available while you wait?
7. Does the state offer group homes and supported living?
8. Are there still state owned institutions? How many people are living in institutions
9. Do you have choice in providers?
10. What is the process to become a provider?

You can see the answers to these questions by clicking on the state you have questions about.

http://medicaidwaiver.org/index.html

Where to Start-Conneticut

CONNECTICUT EARLY INTERVENTION PROGRAM


The mission of the Birth to Three System is to strengthen the capacity of families to meet the developmental and health-related needs of their infants and toddlers who have delays or disabilities.

The Lead Agency for Part C of the IDEA in Connecticut is
The Department of Developmental Services with offices at
460 Capitol Ave., Hartford, CT 06106-1308
Fax: 860-418-6003 unless otherwise noted

Part C Director: Linda.Goodman@ct.gov 860-418-6147

Assistant Director: Lynn.S.Johnson@ct.gov 860-418-6141

Administrative Assistant: Karyn.Pitt@ct.gov 860-418-6155

Family Liaison: Aileen.McKenna@ct.gov 860-418-6136
                      or toll free at 866-888-4188

Personnel and Practice: Deb.Resnick@ct.gov 860-418-6151

Fiscal Unit: Peggy.Boyajian@ct.gov 860-418-8714
                    Kathy.Granata@ct.gov 860-418-6146
                    mailto:Ilke.Torres@ct.gov 860-418-6185

Child Find/Public Awareness: Eileen.Mcmurrer@ct.gov 860-418-6134

Data System Support: Norman Booth via dds.helpdesk@ct.gov

Accountability and Monitoring: Alice.Ridgway@ct.gov
860-496-3073
195 Alvord Park Road, Torrington 06790
                                                

http://www.birth23.org/




THERACARE (EARLY INTERVENTION)


TheraCare provides a full array of services to the birth through three year old population

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Bridgeport Danbury Darien Easton Fairfield Greenwich

Milford Monroe New Canaan New Haven Newtown

Norwalk Redding Ridgefield Stamford Stratford

Trumbull West Haven Weston Westport Wilton

To refer your child to Connecticut's Birth to Three Program, call Connecticut's Child Development Infoline at (800) 505-7000.

EASTER SEALS:


Easter Seals Coastal Fairfield County

Easter Seals Coastal Fairfield County, Connecticut provides exceptional services to ensure that all people with disabilities or special needs and their families have equal opportunities to live, learn, work and play in their communities.

For questions or concerns regarding Easter Seals Coastal Fairfield County, Connecticut services please contact us at the following locations:

Administrative & Development Offices
733 Summer Street, Suite 104, Stamford, CT 06901
(203) 388-2192 - Phone

(203) 388-2196 - Fax

 

 Autism & Developmental Disabilities Center
733 Summer Street, Stamford, CT 06901
(203) 388-2192 - Phone

(203) 388-2196 - Fax

 

Camp Hemlocks
85 Jones St., P.O. Box 198, Hebron, CT  06248-0198
(860)-377-9982


http://ct.easterseals.com/site/PageServer?pagename=CTDR_homepage


Easter Seals Capital Region & Eastern Connecticut


100 Deerfield Road
Windsor, CT 06095Phone: (860) 552-2002
Fax: (860) 552-2003


http://hartford.easterseals.com/site/PageServer?pagename=CTHA_homepage


Easter Seals Waterbury, Connecticut

You can also reach Easter Seals at:

203-754-5141 (voice)
203-754-5141 (tty)
203-757-1198 (fax)

Or, via regular mail at:

22 Tompkins Street
Waterbury, CT 06708

http://waterburyct.easterseals.com/site/PageServer?pagename=CTWA_homepage

MEDICAID WAIVER PROGRAM (KATIE BECKETT WAIVER):


The Katie Beckett Waiver enables severely disabled individuals to be cared for at home and be eligible for Medicaid based on the individual’s income and assets. Without this waiver, the income and assets of legally liable relatives (parent or spouse) are counted when the disabled person is cared for at home. There is a long waiting list for this program; however, families of severely disabled individuals who want to care for their child or spouse at home are encouraged to add their name to the waiting list.

For more information on the Katie Beckett Waiver, call Alternate Care Unit at the Department of Social Services Central Office at (800) 445-5394.


http://www.ct.gov/longtermcare/cwp/view.asp?a=1398&q=299542#Katie

TEFRA: (Tax, Equity and Fiscal Responsibility Act of 1982)

Under the Tax Equity and Fiscal Responsibility Act of 1982 (TEFRA), states may provide Medicaid coverage to children with severe disabilities, disregarding their family income, if these children require care at an institutional (hospital, nursing home or intermediate care facility) level.

When a child receives extended care in an institutional setting, family income is disregarded as a qualification for Medicaid. The TEFRA State Plan Option makes it possible to do the same for a family whose child requires care at the level provided in an institution, but who choose to care for their child at home. Currently, 18 states and the District of Columbia have chosen to implement the TEFRA State Plan Option. Because states vary widely in the availability of institutional care for children and the clinical criteria for admitting children to these institutions, the numbers of children and youth with special health care needs (CYSHCN) who receive Medicaid benefits under this option also varies widely from state to state.

Please check with your state office to see if TEFRA is offered in your state.

 

GENETICS TESTING & COUNSELING AT YALE SCHOOLF MEDICINE
http://medicine.yale.edu/genetics/genetics/appointments.aspx

CONNECTICUT CHILDREN'S HOSPITAL

Connecticut Children's Medical Center is dedicated to improving the physical and emotional health of children through family-centered care, research, education and advocacy. We embrace discovery, teamwork, integrity and excellence in all that we do.


Connecticut Children's Medical Center
282 Washington Street
Hartford, CT   06106
(860) 545-9000


CONNECTICUT DOWN SYNDROME CONGRESS

http://www.ctdownsyndrome.org/

21 STRONG

A group of families located in Fairfield County, Connecticut, who came together because our lives have been enriched by Down syndrome.  We are always looking for new additions to our group. If you love someone with Down syndrome, or you would like to learn more, we'd love for you to join 21 Strong.

 21strong2010@gmail.com

http://www.21strong.org/

LIGHTHOUSE VOC-ED CENTER

The Lighthouse Voc-Ed Center is a State of Connecticut approved special education program for students ages 7-21. The program provides comprehensive educational services for students with moderate to severe disabilities including students with autism. Our primary goals are to improve social communication skills and provide community based learning opportunities to foster independence. 

Central Office Address:
744 Long Hill Road
Groton, CT 06340
One Phone Number For
All Sites: 860-445-7626
centraloffice@lvecenter.com

http://lvecenter.com/