Phone: (407)650-7245
Doctors: Wheeler, Patricia G. MD
The Nemours Children’s Clinic, Orlando, provides comprehensive evaluation and
treatment for children with genetic disorders.
Learn more about Nemours Children's Clinic, Orlando.
DOWN SYNDROME ASSOCIATION OF CENTRAL FLORIDA
The Down Syndrome Association of Central Florida is a not-for-profit association, founded in 1991, by parents of children with Down syndrome. It has grown from a few families to over 9,000 individuals, families and supporters. We are governed by a volunteer board of directors (more than 50% have a family member with Down syndrome.) We serve more than 850 families in the 7-county area in and around Orlando.
DSACF is the leading voice for individuals with Down syndrome and their families. We offer hope, encouragement and acceptance through advocacy, education and awareness so that each may realize their potential as members of our community.
Down Syndrome Association of Central Florida
204 N. Wymore Rd.
Winter Park, FL 32789
407-478-5621
407-478-5698 (FAX)
DADS Voicemail: 407-504-1747
DOWN SYNDROME ASSOCIATION OF JACKSONVILLE
The Down Syndrome Association of Jacksonville (DSAJ) is a non-profit organization committed to helping people with Down syndrome achieve their full potential and to helping create a community that is educated, supportive, and inclusive of individuals with Down syndrome.
1050 North Davis Street
Jacksonville, Fl. 32209
904-353-6300
DOWN SYNDROME ASSOCIATION OF MIAMI
In 2001, two parents of children
with Down syndrome, Frances Capo and Lilianne Rossel, met through their genetic
specialist with the idea of starting an organization for other parents to meet,
share experiences, and get information about Down syndrome in Miami-Dade County.
They both shared the mindset that individuals with Down syndrome are just
that—individuals—people with personalities, ideas, and tremendous spirit.Their
idea began with small fundraisers and their first event, a family picnic at a
local park now hosted annually. That original idea, with the help of other
like-minded parents, became what is known today as the Down Syndrome Association
of Miami (DSAOM), incorporated as a 501(c)(3) non-profit organization in
September 2005.
(305) 218-8233
PO Box 43-0895
South Miami, FL 33243
DOWN SYNDROME ASSOCIATION OF TALLAHASSEE
The mission of DSAT is to provide education, support, and resources to individuals with Down syndrome, their families, professionals, and the community while building public awareness and acceptance of the abilities of individuals with Down syndrome.
2910 Kerry Forest Parkway D4-212
Tallahassee, FL 32309
Amy Toman, President:
Ryan Tyson, Vice President:
GOLD COAST DOWN SYNDROME ORGANIZATION
Gold Coast Down Syndrome Organization, a 501(c)(3) non-profit family support and resource organization serving 350 families and dedicated to making the future brighter for individuals with Down syndrome and other disabilities in Palm Beach County, Florida.
561-912-1231
DOWN SYNDROME ASSOCIATION OF NORTHWEST FLORIDA
Bagdad FL
850-501-8366
F.R.I.E.N.D.S. SUPPORT
FRIENDS is a Down syndrome family support group serving the Tampa/Brandon area. FRIENDS was formed out of a need for families to connect and lend support while networking and educating each other about Down syndrome. They are a non-profit organization that relies on donations and fundraisers to continue our work in the community.
Their goals are:
1) Provide support and information from the best resource; other parents. Families who have children with Down syndrome will help others look beyond their child’s diagnosis and delight in the joys of parenthood.
2) Help families understand the new terminology, services, and supports that will help their child develop successfully.
3) Provide free information on all aspects of Down syndrome in person, by phone, by internet, and by referencing nationally recognized resources.
Brandon FL
813-654-6693
http://www.friendssupport.org/
FUN COAST DOWN SYNDROME ASSOCIATION
The Fun Coast Down Syndrome Association was started in October of 2002 by Paula Wilburn in an effort to provide services and support to families in Flagler and Volusia counties. Most of us are parents, but we are also grandparents, friends, and professionals. We encourage and support families by offering services and advocating for people with Down syndrome.
The mission of this organization shall be to provide support, education and resources to individuals with Down syndrome, their families, and community, in order to foster an environment in which individuals with Down syndrome are included and valued as contributing members of our society.
(386) 447-8034
(386) 283-2787
3601 E Moody Blvd
Bunnell, FL 32110
http://www.funcoastdownsyndrome.com
SOUTHWEST FLORIDA PODS ANGELS FAMILY SUPPORT GROUP
PODS Angels is a
non-profit support group organization for parents of Down syndrome. PODS Angels
began in 1998 almost 10 years ago after the birth of their beautiful daughter
Mariah, she has Down syndrome. PODS Angels Support has been helping families
get connected to one other for friendships, support and encouragement. Helping
families go thru the maze of Early Intervention services and therapies that are
available today has been rewarding and motivating. They continue reaching out on
the internet and to the local hospitals and other resources that will continue
to keep us connected to the
newest parents that need that positive support at the very beginning of their
journey to Holland, (a poem) what is often times an uncertain time,
especially in the early days. Being a positive support person to families is
what drives us! Advocacy skills are something that we as a support group empower
parents with. Helping parents learn how to be the BEST Advocates they can be for
their child especially during the school IEP meetings! Bringing back old
fashioned ‘Tea Parties’ by hosting ‘Advocacy Tea Parties’, parents meeting and learning with
other parents. Need help or advice...email us, hopefully they can
point you in the right direction for where you are presently.
Nancy Harris-Executive
Director
1270 SW 28th Terr.
Fort Lauderdale, FL 33312
Office ~ (954) 581-4165
Mary Pringle - President
pringleclan@msn.com
(239) 872-4778
cell
www.podsangels.org
NORTH CENTRAL FLORIDA PLAYGROUP
North Central Florida Playgroup is a local support group for families with a child with Down syndrome. Families with
children with other developmental delays are also welcome.
Gainesville FL
386-462-4988
352-373-4668
http://groups.yahoo.com/group/NCFL_Playgroup/
TREASURE COAST DOWN SYNDROME AWARENESS GROUP
The Treasure Coast Down Syndrome Awareness Group is here to support families, promote public awareness, network with other organizations and individuals and lobby for appropriate educational, vocational and social opportunities.
P.O. Box 326
Hobe Sound, Fl 33475
Contact List
Lisa Ewell – Babies and Toddlers
772-260-9893
treasuredangels@bellsouth.net
Randi Greenberg – Babies and Toddlers
407-497-0264
randig489@netzero.net
Paulette Barrier - Elementary School age
772-287-1418
pbeurrier@att.net
Laurie Frost – Elementary School age
772-341-3063
glfrostfour@yahoo.com
Marie Muniz – Middle and High School
772-221-3287(Home)
772-380-3145(Cell)
marieelenafla@aol.com
Sandy Coleman – Adults
772-546-7057 (Home)
918-520-0354 (Cell)
Sacs01@bellsouth.net
Mike Bouse
772-521-3468
michaelbouse@gmail.com
http://www.tcdownsyndromeag.org/
FLORIDA KEYS DOWN SYNDROME EDUCATIONAL TRUST
Key Largo GL
305-942-3967
MANASOTA BUDS (BRINGING UP DOWN SYNDROME)
Mission is to provide families with
a neutral and supportive forum for sharing and networking,
and to promote understanding and acceptance of Down syndrome.
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DOWN SYNDROME NETWORK OF PINELLAS
Mission: To be a
proactive, dynamic support group to all people who have
Down syndrome and their families.
Purpose is to:
•
Empower parents of children with Down syndrome, young
and old, by providing up-to-date
information and
resources.
• Pursue inclusion of individuals who have Down
syndrome in all areas of life so they embrace
opportunities to contribute and be valued members of society.
• Dispel myths, promote positive awareness, and
emphasize abilities of people with Down syndrome to parents, educators, physicians, therapists, and the
general public.
PO Box 523
Largo, FL 33779
BUDDY CRUISE, INC.
Buddy Cruise provides educational opportunities and resources for families, while promoting awareness, acceptance, and inclusion for individuals with Down syndrome through unique venues.
PO Box 162
Lithia, FL 33547
REACHING DOWN'S OF NORTHWEST FLORIDA
Milton FL
850-390-5786
ACTION UP WITH DOWNS
Acton Up With Downs, Inc (AUWDI) is Bay County’s Down syndrome support group. AUWDI is committed to supporting and enhancing the quality of life, and realizing the potential of all people with Down syndrome. We promote awareness, acceptance and inclusion in our community through a variety of services.
Phone: 850-249-9988
Acton Up With Downs, Inc
P.O. Box 9326
Panama City Beach, FL 32417
Member Contacts
Tammy Haight
tdhaight@bellsouth.netPresident
Rebecca Stanford
becbaby@gmail.comVice President
UPSIDE 2 DOWNS OF PENSACOLA
Upside 2 Downs of Pensacola is an organization that is going to aid and include those with Down Syndrome into society, and not as second class citizens. They are equipping our families and community with this knowledge by offering workshops, monthly support group meetings, community events, TV commercials, and more. When you involve the community and local agencies, they believe that acceptance and inclusion will blend into one. Believe me, there is an UPside to Down Syndrome.
UPside2Downs
P.O. Box 7546
Pensacola, Fl. 32534
http://www.upside2downs.org/
UP WITH DOWN OF HERNANDO COUNTY
Spring Hill FL
352-442-7117
upfordownshernando@live.com
BROWARD GOLD COAST DOWN SYNDROME ORGANIZATION
This organization is well aware of the special needs of your child and they are
available to help you help your child. Their goal is simple, to enhance the lives
of individuals with Down syndrome by helping them reach their full potential by
providing family support, education and social activities.
10250 NW 53rd Street
Sunrise, FL 33351
954.577.4122
www.bgcdownsyndrome.org
THE ARC OF FLORIDA
“Working with local, state, and national partners, The Arc of Florida advocates for local chapters, public policies, and high quality supports for people with developmental and other disabilities to be fully included in all aspects of their community.”
2898 Mahan Drive Suite 1, Tallahassee, Florida 32308 - 850-921-0460 -
Toll Free: 1-800-226-1155
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